Hashimoto's/Addison's and Conn's

[Guest guest]

I have tried to send the following messages multiple times, I really don't

know what is wrong with it:

Hello group!

Thanks for letting me join firsteval, I can't tell you how relieved I am to

finally find some kind of support or other patients. Still my hope to

finding someone who knows my problems isn't really high, but here I try:

My name is Eva, I'm 25 years old and I was diagnosed with Conn's a few month

ago - but my Aldosteron/Renin quotient has been bad since 2003 really.

Nobody noticed it though because everyone was focused on my other

endocrinological problems: I had Morbus (hypocortisolism) first, but

then it disappeared again - my right adrenal gland is gone for good though

(quasi non-existent), and the left one is really small also according to the

MRI.

Additionally I have Hashimoto Thyreoditis (hypothyreodism), also since 2003

or earlier, also only diagnosed this year.

That's why probably my Conn's syndroms are really weird. I still don't have

severe hypertonia for example. I was suffering from hypotonia for many

years, then everything seemed perfect with 105/75 or 110/80 for a really

long time until I started taking hormones for my thyreoid and now I'm on a

level between 130/80 until 140/90. I know for all of you that isn't really

high, but sometimes I just go back to 80/80 and that's really not a nice

experience either. The doctors right now tell me not to take more

thyroid-medications so I won't develop more hypertonia, but I really do feel

tired and awful all the time.

I have no idea weather my symptoms will get better at all: I suffer from

severe muskle cramps, a constant feeling of high stress (even if I had to

drop out of university for a semester and my life besides the body is quite

yummy ), Kalium problems (but I've been craving Bananas a lot - good girl

) as well as a lot of Cushing's symptoms - I gained loads of weight in 2

steps: 2003 (40 pounds) and 2008 (38 pounds from July-to date) without

changing my eating pattern, and almost all of it on the belly, as well as

the skin and the tendency to get marks really easy. My cortisol is still

bordering very low though, but normal now, my testosteron is also extremly

high though (without ovarial failure). All in all, I just feel extremly

unwell and here in Germany nobody really seems to care for such a complicate

case as mine. I'll be entering a medicinal investigation about Conn's in

January though, it might get better (and I can tell you the newest

developements).

Anyway - I also highly doubt that my symptoms can get any better with

medications and I'm not really convinced I should take some with Hashimoto

and everything else that I have..

Right now I'm just really confused and it seems as if I were an alien or

something. They actually asked me that after the MRI: How can you have

primary hyperaldosteronism e.g. Conn's, if you don't have an adenom and your

adrenal glands are really small or non-existent? I got checked multiple

times for Aldosteron and Renin in the past years, so there's really no

denying the problem.

So anybody any tipps or advice for me? Thanks for listening anyway...

Eva