Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Hi, We are the 's. Joy, Steve, Elena and Ariana. Yesterday, Ariana (7 mos) was molded for her helmet. I know that I am doing the best for her that I can. I wish that made me feel better, but I am not there yet. I am at an odd place with all of this. So, I am so happy to be here, with all of you, I think I need all of the support I can get. Her helmet should be ready in two weeks.... I just called and canceled the transfer pattern on it. I got home and decided it was too ugly for her. (shallow, shallow!) So I will attempt to decorate it myself. I would love to here any advice and tips on doing this. I just don't want to mess it up! We are in Plymouth, Ma.... Anyone else? Yesterday, the guy who did the cast asked me "what's with all the flat headed kids in Plymouth today?" That made me feel good that maybe we will see some other kids around town. Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Hi Joy & welcome to our group! We're glad to have you with us! The way you are feeling right now, your mixed emotions about getting your daughter into a band is very very common among us plagio parents! It's a difficult decision to make, you know you are making the right decision now though - keep reminding yourself of that! You're doing the right thing. You'll feel better once you start seeing Ariana's (beautiful name!) head improving! I had a very difficult time seeing my daughter in her band for the first week or two. Abby didn't mind for a second though! You know what you're doing is the best to do! Check out www.plagiocephaly.org/support then click decorating tips for some great ideas. I used stickers bought from s or scrapbook stores, even Walmart to decorate my Abby's bands.. I loved changing the stickers with holiday themes & such! You must be getting a STARband then - seems how they come with the designs on them. Let us know when the band is in....welcome again.!! Debbie Abby's mom DOCGrad MI > Hi, > We are the 's. Joy, Steve, Elena and Ariana. Yesterday, Ariana (7 mos) was molded for her helmet. > I know that I am doing the best for her that I can. I wish that made me feel better, but I am not there yet. I am at an odd place with all of this. So, I am so happy to be here, with all of you, I think I need all of the support I can get. > Her helmet should be ready in two weeks.... I just called and canceled the transfer pattern on it. I got home and decided it was too ugly for her. (shallow, shallow!) So I will attempt to decorate it myself. I would love to here any advice and tips on doing this. I just don't want to mess it up! > We are in Plymouth, Ma.... Anyone else? > Yesterday, the guy who did the cast asked me " what's with all the flat headed kids in Plymouth today? " That made me feel good that maybe we will see some other kids around town. > > Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hello to all the 's and welcome to the group! I don't think its vain of you to cancel the transfer pattern! I think you'll be happy that you did. I know I had a lot of fun decorating my twins's bands, and changing the design every so often. We used a variety of acrylic paint colors, stickers and rub on transfers. My hubby thought I was crazy for going to the craft store every other week, but decorating the bands seemed almost theraputic to me! Definitely check out the website that Debbie gave you the link for. You will tons of information there. And again, welcome to the group! Niki Kaylie & Danny (STAR grads) Phila., PA > Hi, > We are the 's. Joy, Steve, Elena and Ariana. Yesterday, Ariana (7 mos) was molded for her helmet. > I know that I am doing the best for her that I can. I wish that made me feel better, but I am not there yet. I am at an odd place with all of this. So, I am so happy to be here, with all of you, I think I need all of the support I can get. > Her helmet should be ready in two weeks.... I just called and canceled the transfer pattern on it. I got home and decided it was too ugly for her. (shallow, shallow!) So I will attempt to decorate it myself. I would love to here any advice and tips on doing this. I just don't want to mess it up! > We are in Plymouth, Ma.... Anyone else? > Yesterday, the guy who did the cast asked me " what's with all the flat headed kids in Plymouth today? " That made me feel good that maybe we will see some other kids around town. > > Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Joy, Hello and welcome! I'm glad you have joined us! How did the casting go for Ariana? That is often the most difficult part of the process. What kind of product will you be using? Locally made helmet, DOCband or STARband? I know just what you mean about being in an " odd place " with all that is going on. I had those same feelings. It is WAY harder for the parents to adjust to the idea thent he baby! wore her helmet 23 hours from Day 1 and never once cared that it was on her head. I cared WAY more then she did! LOL! We decorated her helmet ourselves with stickers and changed them weekly. Others in the group have used rub on transfers, some have painted the helmet as well as a variety of other options. Check out www.plagiocephaly.org/support - there you will find a link to decorating tips. Sometimes it is the UN-decorating of the helmet that is an issue when you want to change designs! Best of luck with the helmet - I think you will be amazed at how well Ariana adjusts! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Joy, I just want to second the great post that Debbie sent you- it is really an emotional rollercoaster- from learning about the diagnosis, to what to do next, your emotions can range from sad, anxious, hopeless, hopeful, eager, scared, you name it, your probably going through it. It does get easier once the process has begun and you can start seeing progress take shape. It validates your concerns and fears and puts to rest any doubts about comfort and adaptability for your child. Give it a few weeks and you will start to adjust better. I had totally prepared myself 2 months in advance about what the DOC band looks like and saw all the great pics of the banded beauties here, but it didn't help when I saw my baby in one and I burst into tears. My mom and DH were shocked- I had been the rock and so confident that this is what we needed to do- they were confused and ended up making me feel better about it! I just had a rush of sadness for him, and he could have cared less about it. I was surprised at my own reaction, but within a week I was feeling good about it and you will to once you can see some results as well. Good luck and hang in there- it will get easier and you can lean on all of us to get you through the hard spots! ) ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 thank you so much! i am actually getting excited to get the helmet and get started. Now I am starting to talk about it to people, like the woman in the stenciling store, when I told her what type of project I was going to do, she thought I was nuts, and an overreactive parent. Her daughter had crooked head, and she's fine. I felt like hitting her over the head, but that wouldn't have been nice....... maybe next time, LOL. Joy Re: Re: hi, i'm new here Joy,I just want to second the great post that Debbie sent you- it is really an emotional rollercoaster- from learning about the diagnosis, to what to do next, your emotions can range from sad, anxious, hopeless, hopeful, eager, scared, you name it, your probably going through it. It does get easier once the process has begun and you can start seeing progress take shape. It validates your concerns and fears and puts to rest any doubts about comfort and adaptability for your child. Give it a few weeks and you will start to adjust better. I had totally prepared myself 2 months in advance about what the DOC band looks like and saw all the great pics of the banded beauties here, but it didn't help when I saw my baby in one and I burst into tears. My mom and DH were shocked- I had been the rock and so confident that this is what we needed to do- they were confused and ended up making me feel better about it! I just had a rush of sadness for him, and he could have cared less about it. I was surprised at my own reaction, but within a week I was feeling good about it and you will to once you can see some results as well. Good luck and hang in there- it will get easier and you can lean on all of us to get you through the hard spots! )' MomFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 In a message dated 7/24/2002 6:59:01 PM Eastern Daylight Time, goimurph@... writes: when I told her what type of project I was going to do, she thought I was nuts, and an overreactive parent. Her daughter had crooked head, and she's fine. Joy, Many, many people, including family and friends, made me feel this way- and soon were eating those words when the results were in! I think people that don't get educated about it only see the bulky helmet and think its so horrible because they haven't dug their heels in like all of us to actually figure out that its not! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 Welcome to our family. You have come to the right group for support and understanding. Look forward to getting to know you. Hugs June ----- Original Message ----- From: witchyzing Hello all, I am new to being a group member anywhere. Recent events in my RA have led me to realize that I need support from people who know this illness, and who have some understanding of it. Please bear with me in my discovery of this group process, because I truly have no idea how this works. I imagine that in time I will get a handle on " doing it right " Thanks much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 Hi! Welcome to the group! Hey, there's no " getting it right " here--you just jump right in and let it all hang out. You'll never find a group of more caring, loving, supportive people anywhere. and a are the founts of knowledge, and everyone else just seems to know the answers to the rest of our questions, whether it is a long- lost recipe, or how to calm a fussy toddler or a fussy spouse, or tricks for dealing with joints that hurt or don't move right (or left LOL) I'm the " odd bird " of the group, as I don't have RA, but Dercum's Disease, but it causes me just as much grief as the rest, and I do have fibromyalgia. So please do come back and tell us all about yourself. Peace, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 Welcome, you've found the right place to learn about anything and everything including friendship, humility,medical questions, the message board and heaven knows what else.This family of people,myself included will do all we can to help in any way we can.I look forward to getting to know you better.Gentleness,Boo. Quote Link to comment Share on other sites More sharing options...
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