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Creating Awareness

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,

You have a really great outlook on getting Kale's helmet- great positive

approach! I know that I would have loved real advice in the real world from

other moms, but don't be surprised if it kind of takes people by surprise if

you do approach someone, sometimes there is a certain level of denial in the

first place. But hopefully you can reach out to someone that is eager to

learn from you, and you sound like a great mom to get the word out! Good

luck on your new mission! We're behind you!

' Mom

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Hi everyone,

We have an appointment with the Craniofacial people tomorrow and I

can't believe how nervous I am. Deep down inside, I'm afraid that

they will send us away just like the other doctors and tell us that

we don't need a helmet and that my baby will grow up with his

flattened head. I know that the doctor's that I'm seeing tomorrow

are 100% pro helmet and I know the stregnth of my own determination

which means that Kale's will eventually get a helmet and

correction. However, I can't shake those butterflies.

I also have a thought to share with those who are helmets or

bands...I was also thinking that when Kale gets that helmet, instead

of being shy or afraid that people will stare, I wish for the chance

to attract at least one of those moms out there who has

plagiocephaly but doesn't know it yet. There have got to be loads

of moms out there believing that their babies heads will round out

because the doctors said so. Gosh, I remember not knowing the name

of this 'flat head' or that there was such a thing as a helmet to

correct it. If it wasn't for my mother reading an article, I would

have know that medical term 'plagiocephaly', never found this site,

never found these progressive doctors; and I wouldn't be getting the

helmet; and Kale would have a severly lopsided head. If it is true

that 1 in 60 has plagio, then Kale and I have our own little mission

to create awareness when we can. Do you know what I mean?

(Kale's mom)

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,

I'm predicting that everything will go great with the specialist. You are on top

of things and you know what you are talking about.

I totally took 's helmet as a chance to educate and so do many, many people

here who have come, gone and remain in the group. Some have even printed

brochures to hand out when people asked! It really is a great way to think about

the helmet - instead of seeing it as a stigman see it as a chance to educate and

raise awareness! I think you have exactly the right idea!

Marci (Mom to )

Oklahoma

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