Re: plagio epidemic

[Guest guest]

Kia

I definetly think its more common then the stats say. I am constantly

seeing plagio babies! And my mom is too. Shes 360 miles away from me

and barely gets to see Mya yet she can spot plagio instantly. ITs so

funny. But I think for as many plagio babies as i see the stats have

to be wrong. I just think more awareness needs to be out because

before Mya was diagnosed I had no idea and had never even heard of

plagio or tort. And Mya is my 3rd child. We went 4 months of Myas

life not having a clue anything was wrong just thinking outit will

eventually round out. Parents need to be told in the hospital!

Christi mom to MYa (DOC band 3/6/02)

> Hi all,

>

> I went to my 2 1/2 year old's swim lesson class last night. They

had

> combined the infant and toddler class because they were short on

teachers

> (what a mess!). But between the 2 classes, there were 2 babies with

> moderate/severe plagio and a 3 year old with severe plagio. There

were

> probably only 15 kids total, and at least 3 of them had some degree

of

> plagio... in my opinion they were all pretty severe (definitely very

> " visible from across the room " ... to use that infamous

definition!). This

> is crazy! I am beginning to wonder about those statistics of 1 in

60... it

> seems like everywhere I go I see heads that are far from round. Of

course,

> I am inspecting heads everywhere I go now. It's contagious too...

my

> friends have started to notice plagio in other babies and

toddlers. Is it

> only me, or do you think it's more common than the stats are

indicating?

>

> Kia

[Guest guest]

Christi,

I definitely think awareness is lacking too. I believed my ped (who said it would round out and treated it casually) until Cole was 6 months... Then I finally did some internet research on my own, and realized how serious his plagio was (and the term "plagiocephaly" had never been mentioned to me, even when I asked about his head at his well check). It would be nice if pediatricians would do a better job educating parents. And I certainly would have loved to hear about it at the hospital, especially since Cole's plagio was evident from birth (looking back at pictures... hindsight is always 20/20!). Unfortunately I guess this is all relatively new still. Hopefully awareness will improve and parents will be given better information.

Kia (mom to Cole, STARBand 6/18/02)

P.S. Mya got her band on my birthday

-----Original Message-----From: CMZ1242 [mailto:christiz75@...]Sent: Tuesday, July 23, 2002 9:58 PMPlagiocephaly Subject: Re: plagio epidemicKiaI definetly think its more common then the stats say. I am constantly seeing plagio babies! And my mom is too. Shes 360 miles away from me and barely gets to see Mya yet she can spot plagio instantly. ITs so funny. But I think for as many plagio babies as i see the stats have to be wrong. I just think more awareness needs to be out because before Mya was diagnosed I had no idea and had never even heard of plagio or tort. And Mya is my 3rd child. We went 4 months of Myas life not having a clue anything was wrong just thinking outit will eventually round out. Parents need to be told in the hospital!Christi mom to MYa (DOC band 3/6/02)> Hi all,> > I went to my 2 1/2 year old's swim lesson class last night. They had> combined the infant and toddler class because they were short on teachers> (what a mess!). But between the 2 classes, there were 2 babies with> moderate/severe plagio and a 3 year old with severe plagio. There were> probably only 15 kids total, and at least 3 of them had some degree of> plagio... in my opinion they were all pretty severe (definitely very> "visible from across the room"... to use that infamous definition!). This> is crazy! I am beginning to wonder about those statistics of 1 in 60... it> seems like everywhere I go I see heads that are far from round. Of course,> I am inspecting heads everywhere I go now. It's contagious too... my> friends have started to notice plagio in other babies and toddlers. Is it> only me, or do you think it's more common than the stats are indicating?> > KiaFor more plagio info

[Guest guest]

i definitely agree with you christi: parents do need to be informed in the

hospital ; you know i just feel like i need to go to the hosp. and inform them

myself. -mary

[Guest guest]

You know Kia, two of our friends have babies with plagio. That's

alot. If the stats are 1 in 60, this means that everyone must know

someone with plagio.

> Hi all,

>

> I went to my 2 1/2 year old's swim lesson class last night. They

had

> combined the infant and toddler class because they were short on

teachers

> (what a mess!). But between the 2 classes, there were 2 babies

with

> moderate/severe plagio and a 3 year old with severe plagio. There

were

> probably only 15 kids total, and at least 3 of them had some

degree of

> plagio... in my opinion they were all pretty severe (definitely

very

> " visible from across the room " ... to use that infamous

definition!). This

> is crazy! I am beginning to wonder about those statistics of 1 in

60... it

> seems like everywhere I go I see heads that are far from round.

Of course,

> I am inspecting heads everywhere I go now. It's contagious too...

my

> friends have started to notice plagio in other babies and

toddlers. Is it

> only me, or do you think it's more common than the stats are

indicating?

>

> Kia

[Guest guest]

you know after my husband's friend's wife saw my bb with plagio. she

got scared and started to put her bb on the stomach..i was a little

embarrassed ...hehe..but now i know it can be fixed..i just wished

all those other moms knew!-mary

> > Hi all,

> >

> > I went to my 2 1/2 year old's swim lesson class last night. They

> had

> > combined the infant and toddler class because they were short on

> teachers

> > (what a mess!). But between the 2 classes, there were 2 babies

> with

> > moderate/severe plagio and a 3 year old with severe plagio.

There

> were

> > probably only 15 kids total, and at least 3 of them had some

> degree of

> > plagio... in my opinion they were all pretty severe (definitely

> very

> > " visible from across the room " ... to use that infamous

> definition!). This

> > is crazy! I am beginning to wonder about those statistics of 1

in

> 60... it

> > seems like everywhere I go I see heads that are far from round.

> Of course,

> > I am inspecting heads everywhere I go now. It's contagious

too...

> my

> > friends have started to notice plagio in other babies and

> toddlers. Is it

> > only me, or do you think it's more common than the stats are

> indicating?

> >

> > Kia

[Guest guest]

Hi Kia,

I can't remember where I read it,but it said that plagio is occurring

in 1 out of 40 births. I wish I could remember where I read it. If I

happen to remember, I'll post it. Plagio is everywhere! It blows my

mind how many babies I see with it now that I am aware of it!

> Hi all,

>

> I went to my 2 1/2 year old's swim lesson class last night. They

had

> combined the infant and toddler class because they were short on

teachers

> (what a mess!). But between the 2 classes, there were 2 babies with

> moderate/severe plagio and a 3 year old with severe plagio. There

were

> probably only 15 kids total, and at least 3 of them had some degree

of

> plagio... in my opinion they were all pretty severe (definitely very

> " visible from across the room " ... to use that infamous

definition!). This

> is crazy! I am beginning to wonder about those statistics of 1 in

60... it

> seems like everywhere I go I see heads that are far from round. Of

course,

> I am inspecting heads everywhere I go now. It's contagious too...

my

> friends have started to notice plagio in other babies and

toddlers. Is it

> only me, or do you think it's more common than the stats are

indicating?

>

> Kia

[Guest guest]

Kia:

I don't think it's just you, I do unfortunately feel that plagio is

increasing day by day right now. It's very sad too, especially that

plagio education is so uncommon in prenatal & hospital classes STILL,

after all these years of the back to sleep campaign.

Of course you are a head police member now, so of course you'll

notice it more than before, but I do think the cases are most likely

increasing .

In Abby's home daycare, there are currently 2 infants, BOTH with

moderate to severe plagio and brachy Thankfully the parents are

aware of repositioning and what to do thanks to seeing Abby in her

bands and the one baby's flatness has significantly improved over the

past 2 mos., let's hope it continues!

Debbie Abby's mom DOCGrad

MI

> Hi all,

>

> I went to my 2 1/2 year old's swim lesson class last night. They

had

> combined the infant and toddler class because they were short on

teachers

> (what a mess!). But between the 2 classes, there were 2 babies with

> moderate/severe plagio and a 3 year old with severe plagio. There

were

> probably only 15 kids total, and at least 3 of them had some degree

of

> plagio... in my opinion they were all pretty severe (definitely very

> " visible from across the room " ... to use that infamous

definition!). This

> is crazy! I am beginning to wonder about those statistics of 1 in

60... it

> seems like everywhere I go I see heads that are far from round. Of

course,

> I am inspecting heads everywhere I go now. It's contagious too...

my

> friends have started to notice plagio in other babies and

toddlers. Is it

> only me, or do you think it's more common than the stats are

indicating?

>

> Kia

[Guest guest]

Is it

> only me, or do you think it's more common than the stats are

indicating?

>

Kia,

Its definitely not just you, as you can tell by all the responses you

have received. Plagio is definitely occurring in what seems as

epidemic proportions largely due the Back to Sleep Campaign. I don't

think we'll ever know the correct statistics since so many doctors

brush plagio off as nothing to worry about. If the docs did take

parents seriously, I wouldn't be surprised to hear a lower

denomination. Personally speaking, I have 4 kids, 2 with plagio and

2 without. My brother in law has 2 kids, both with oddly shapen

heads. Right there is 4 out of 6 kids in my hubby's family alone. I

tease my hubby the flat heads must run in his family ;o)

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi all,

>

> I went to my 2 1/2 year old's swim lesson class last night. They

had

> combined the infant and toddler class because they were short on

teachers

> (what a mess!). But between the 2 classes, there were 2 babies with

> moderate/severe plagio and a 3 year old with severe plagio. There

were

> probably only 15 kids total, and at least 3 of them had some degree

of

> plagio... in my opinion they were all pretty severe (definitely very

> " visible from across the room " ... to use that infamous

definition!). This

> is crazy! I am beginning to wonder about those statistics of 1 in

60... it

> seems like everywhere I go I see heads that are far from round. Of

course,

> I am inspecting heads everywhere I go now. It's contagious too...

my

> friends have started to notice plagio in other babies and

toddlers. Is it

> only me, or do you think it's more common than the stats are

indicating?

>

> Kia

[Guest guest]

In a message dated 7/24/2002 4:04:07 PM Eastern Daylight Time, christiz75@... writes:

Its just sooo weird

to look back and say Man I shouldve known! But what can you do its in

the past now and shes getting treatment now!

Christi,

yeah, hindsight is always 20/20- we could have spotted ' plagio on his 2 day old photo if we knew what to look for (we thought that smaller eye was just a little squintier!)- and then the pics with his head tilted way left- makes you sad but when your uninformed- you just think they have floppy heads as babies! Boy have we all learned a lot, huh? (more than most Docs in some cases!

' Mom