Re: Helmet & TOT collar

[Guest guest]

Hi ,

I wish I could be of some help! I've read up on tot collars and seen

pictures of them. I don't see how one would interfer with the other.

I didn't know Eytan's tort was that bad. He didn't respond to PT?

I'm going to copy/paste what I found on the TOT collar.. sorry if it

gets long.

What is a TOT Collar?

A Tubular Orthosis for Torticollis (TOT) Collar is used to treat

infants with CMT. Basically, it is a very simple device that is made

from soft plastic tubing. This tubing fits around the neck, There are

hard plastic pieces that fit in-between the soft tubing on the tort

side. They are cut to fit the infants neck so that they hit the base

of the skull in certain places. When they tilt their head and hit

these harder pieces, it is uncomfortable and they straighten their

head. The collar is used for infants who are 4 months or older, show

a consistent head tilt of 5 degrees or more. They should already have

adequate ROM and have head control. The infant MUST be supervised at

all times while wearing the collar. They should wear it only when

awake and active. The collar should not be used on a child in a car

seat.

We have found through member experiences that the TOT is easiest to

use and most effective right after a child begins sitting and can be

used until they are walking! The TOT should be fit by a PT and often

has to be re-fit after considerable growth.

In a car seat, an infants ROM (range of motion) is already hindered,

and the tot collar can also hinder ROM. Also, if in car, you can't

see them. Most infants fall asleep in the car, and the collar should

only be worn when the infant is awake and active.

The parents and PT's that have used the TOT rave about it's success.

This device is a great addition to the treatment process for infants

with torticollis!

Check out this group for torticollis.

Torticolliskids/

I'm sure you'll find someone who has used both a band and the TOT

collar!

Good luck and please keep us posted,

> Hello to all. :-)

>

> I am posting this email to both sites, in hopes someone has an

answer. Have a prescription for both the helmet and TOT collar.

Does anyone know if both can be used at the same time? Obviously,

both devices work on different issues, but does it pose problems to

the baby if both are being used simultaneously? I would really like

to know what anyone else has done? Or, another question, am I

torturing my poor baby?

>

> Hope to hear from anyone.

>

> Thanks,

>

> (mom to Eytan, 7 1/2 months)