Our children and our children's children

February 12, 2000

Hi

I was diagnosed when my son was 7 and until then had no idea this was

genetic, because the doctors apparently never told my sister that it was and

she had already been sick about 11 years when I had . I know now

that I could never had dealt well with a small child in the condition I'm in

now and is still hard to cope with since he is 14 going on 40 and

ADHD and has Bipolar Disorder he inherited from Dad. We took him last week

to a child neurologist and he has no neuro deficits and no sign of CMT. So

thankfully for that. My mother tested negative also so now the doctors are

requesting my deceased sister's records and want my father to be tested to

try and locate the source. may be a carrier for all we know, but as

it is when or if he decides to have children besides the CMT there is

Asthma, ADHD, Bipolar Disorder and alcohol and drug abuse so it's not like

his gene pool wasn't already complicated. I am happy though he's not

showing any signs of the CMT and I hope he never does. He is now 5'7 " and

145 lbs. so he's a big help to me around the house if I can get him moving

that is. Now it's on the phone with his girlfriend and school stuff and

overnights at his best friend's house so I see much less of him and soon

he'll be in high school. Oh the joys of parenthood..LOL

Donna in Arlington(have a new e-mail)

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