Re: hi, i'm new here/ Kim & Sky

[Guest guest]

Hi Kim:

Welcome to the group! I'm glad to hear you've been reading thru all

the emails of the group for a bit now.

Great news to hear Sky has seen correction in her helmet already.

Would you mind sharing some more of Sky's plagio story with us all?

What type of helmet is she in (STAR, DOC, local)? All the good

plagio info we like to hear!

Welcome again WE look forward to hearing more from you & best of

luck with Sky's helmet success!

Debbie Abby's mom DOCGrad

MI

> Hi Joy - I am new at this too. I read emails but I have never

answered one

yet. Yours just struck me b/c my daughter Sky, almost 9 months now,

was

casted at about 7 1/2 months. She has now had the helmet for 5 wks.

So, we

are still pretty new to the helmet. I have had very mixed emotions

also. It

is a hard thing but I think the best. Good news, we have already seen

improvement & that is confirmed by the adjustments that have already

been made

to the helmet. I didn't believe it could work so quickly, hopefully

that will

be the caase for you also. One down side, Sky did have trouble

adjusting & I

have heard it is harder for the older babies - which makes sense -

so, if it

is frustrating just stick with it!!!!!

Kim

[Guest guest]

On Wed, 17 Jul 2002 01:27:22 -0000 debbieandabby <dj2kirby@...> wrote:

Hi Kim:

Welcome to the group! I'm glad to hear you've been reading thru all

the emails of the group for a bit now. 

Great news to hear Sky has seen correction in her helmet already. 

Would you mind sharing some more of Sky's plagio story with us all?

What type of helmet is she in (STAR, DOC, local)?  All the good

plagio info we like to hear!

Welcome again WE look forward to hearing more from you & best of

luck with Sky's helmet success!

Debbie Abby's mom DOCGrad

MI

> Hi Joy - I am new at this too. I read emails but I have never

answered one

yet. Yours just struck me b/c my daughter Sky, almost 9 months now,

was

casted at about 7 1/2 months. She has now had the helmet for 5 wks.

So, we

are still pretty new to the helmet. I have had very mixed emotions

also. It

is a hard thing but I think the best. Good news, we have already seen

improvement & that is confirmed by the adjustments that have already

been made

to the helmet. I didn't believe it could work so quickly, hopefully

that will

be the caase for you also. One down side, Sky did have trouble

adjusting & I

have heard it is harder for the older babies - which makes sense -

so, if it

is frustrating just stick with it!!!!!

Kim

[Guest guest]

Hi Kim and Skylar, welcome to the group!

Thanks so much for giving us some background into your story.

Unfortunately, your story with the ped is all to common. Luckily

cranio was ruled out, and now Sky is on her way to a rounded head!

Do you live in Philadelphia, or did you have to drive a distance to

ChOP? We live in Philadelphia, and my twins wore STARbands as well,

I was just wondering where Sky got her band from?

Anyway, its nice to have you both with us, and we all look forward to

getting to know you more! Take care!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

>

>

> Hi -

>

> Sky is in a StarBand.

>

> We think her plagio started inutero - I have a bicornuate uterus -

was on

> bedrest 14 wks. Had an ultrasound every 2 wks - she was ALWAYS

headdown, feet

> over head - never moved much - there wasn't much room, concern that

she would

> be premature but luckily the bedrest worked and she went to 38

wks. She was

> born w/ the back of her head flat - but she is my first & I didn't

think it

> was odd - AT FIRST.

>

> Started voicing concern at 4 month check up - but, was brushed off,

of course.

> Actually found out about " plagio " by accident looking through baby

> merchandise catalog - saw back sleeping product designed to

prevent " flathead

> syndrome " . Light bulb went off - I was like -OH MY GOD _ THAT " S

SKYLAR!!!!!!

>

>

> At 6 month check up ped changed her tune & was all of a sudden very

concerned-

> thinking it may be craniosyntosis- & thats were the most horrible

scary part

> started - I know you have all been threw that - finding the

specialist, the

> tests etc - waiting forever for results. Finally got the StarBand

by time she

> was 7 1'2 months. Still VERY angry w/ ped - but, can't change

things now.

> They were no help at all - found specialist on my own & luckily

found a great

> DR. at CHoP (Childrens Hos. of Phili)

>

> I know it would have been easier to start Sky younger b/c she is a

big baby &

> VERY strong willed - but she is adjusting - SLOWLY. I am getting

about 18 hrs

> a day. Can't seem to get to that 23 hr mark but it is summer so I

guess that

> is almost impossible. Too hot to let her go outside w/ it. I give

her 3

> breaks a day - morning for eating , getting dressed & we go

outside -

> afternoon- walk or pool time - & then night for bath. Always on

all night -

> feel that is probablt the most important time, right?

>

> Anyway - thats our story.

>

> Love Kim

[Guest guest]

On Wed, 17 Jul 2002 12:24:40 -0000 niki_jay175 <niki_jay175@...> wrote:

Hi Kim and Skylar, welcome to the group!

Thanks so much for giving us some background into your story. 

Unfortunately, your story with the ped is all to common.  Luckily

cranio was ruled out, and now Sky is on her way to a rounded head!

Do you live in Philadelphia, or did you have to drive a distance to

ChOP?  We live in Philadelphia, and my twins wore STARbands as well,

I was just wondering where Sky got her band from?

Anyway, its nice to have you both with us, and we all look forward to

getting to know you more!  Take care!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

>

>

> Hi -

>

> Sky is in a StarBand.

>

> We think her plagio started inutero - I have a bicornuate uterus -

was on

> bedrest 14 wks. Had an ultrasound every 2 wks - she was ALWAYS

headdown, feet

> over head - never moved much - there wasn't much room, concern that

she would

> be premature but luckily the bedrest worked and she went to 38

wks.  She was

> born w/ the back of her head flat - but she is my first & I didn't

think it

> was odd - AT FIRST.

>

> Started voicing concern at 4 month check up - but, was brushed off,

of course.

>  Actually found out about " plagio " by accident looking through baby

> merchandise catalog - saw back sleeping product designed to

prevent " flathead

> syndrome " .  Light bulb went off - I was like  -OH MY GOD _ THAT " S

SKYLAR!!!!!!

>

>

> At 6 month check up ped changed her tune & was all of a sudden very

concerned-

> thinking it may be craniosyntosis- & thats were the most horrible

scary part

> started - I know you have all been threw that - finding the

specialist, the

> tests etc - waiting forever for results.  Finally got the StarBand

by time she

> was 7 1'2 months.  Still VERY angry w/ ped - but, can't change

things now.

> They were no help at all - found specialist on my own & luckily

found a great

> DR. at CHoP (Childrens Hos. of Phili)

>

> I know it would have been easier to start Sky younger b/c she is a

big baby &

> VERY strong willed - but she is adjusting - SLOWLY.  I am getting

about 18 hrs

> a day.  Can't seem to get to that 23 hr mark but it is summer so I

guess that

> is almost impossible. Too hot to let her go outside w/ it.  I give

her 3

> breaks a day - morning for eating , getting dressed & we go

outside -

> afternoon- walk or pool time - & then night for bath.  Always on

all night -

> feel that is probablt the most important time, right?

>

> Anyway - thats our story.

>

> Love Kim

[Guest guest]

Kim:

Thanks for the addt'l information on Sky. My Abby's plagio also

began in utero, she didn't move much at all while in my womb either

(boy has that ever changed!). We also noticed on Abby's wkly

ultrasounds for the last 10 wks, that she was stuck in the same

position, or course plagio never crossed my mind then.

That's great Sky is in a band now. You'll be seeing improvement in

no time!

Welcome again....Please keep us updated on Sky. Good luck.

Debbie Abby's mom DOCgrad

MI

> Hi -

>

> Sky is in a StarBand.

>

> We think her plagio started inutero - I have a bicornuate uterus -

was on

> bedrest 14 wks. Had an ultrasound every 2 wks - she was ALWAYS

headdown, feet

> over head - never moved much - there wasn't much room, concern that

she would

> be premature but luckily the bedrest worked and she went to 38

wks. She was

> born w/ the back of her head flat - but she is my first & I didn't

think it

> was odd - AT FIRST.

>

> Started voicing concern at 4 month check up - but, was brushed off,

of course.

> Actually found out about " plagio " by accident looking through baby

> merchandise catalog - saw back sleeping product designed to

prevent " flathead

> syndrome " . Light bulb went off - I was like -OH MY GOD _ THAT " S

SKYLAR!!!!!!

>

>

> At 6 month check up ped changed her tune & was all of a sudden very

concerned-

> thinking it may be craniosyntosis- & thats were the most horrible

scary part

> started - I know you have all been threw that - finding the

specialist, the

> tests etc - waiting forever for results. Finally got the StarBand

by time she

> was 7 1'2 months. Still VERY angry w/ ped - but, can't change

things now.

> They were no help at all - found specialist on my own & luckily

found a great

> DR. at CHoP (Childrens Hos. of Phili)

>

> I know it would have been easier to start Sky younger b/c she is a

big baby &

> VERY strong willed - but she is adjusting - SLOWLY. I am getting

about 18 hrs

> a day. Can't seem to get to that 23 hr mark but it is summer so I

guess that

> is almost impossible. Too hot to let her go outside w/ it. I give

her 3

> breaks a day - morning for eating , getting dressed & we go

outside -

> afternoon- walk or pool time - & then night for bath. Always on

all night -

> feel that is probablt the most important time, right?

>

> Anyway - thats our story.

>

> Love Kim