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Hi everyone. I'm from the Philadelphia area.

My CMT story starts from June of 1999. I woke up with a numb left hand and was

told it was probably carpal tunnel syndrome. After my first EMG, I learned I

had a peripheral neuropathy and carpal tunnel. Months went by with no

improvement(it actually got worse with vitamin B6 and the wrist splint), so I

had a second EMG. This time I just had a peripheral neuropathy. Off I went to

a new neurologist and had more blood test done. At the request of this new

doctor, I had a third EMG. I felt like a laboratory rat! Finally, I was told

it was CMT; however, the genetic test said I did not have one of the three types

available for testing. Now I'm being shipped off to see another neurologist in

March. I said to my last doctor, " All I wanted to know was whether or not I had

carpal tunnel syndrome. "

Does anyone have leg twitches? They are annoying. How can I make them less

bothersome?

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