Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Kellie- I remember you posting about this before. We were told to lay Dane on his right side because he had reflux and it is suppossed to be more comforting to him. I think what happened was that a speech therapist said this first and then the nurses emphasized it over and over again. They make helmets at the Cleveland Clinic (CCF) and should know better. Those dr. screwed up so many times. They wrote scripts for meds 5x the normal dose for Dane on 2 or 3 occasions. Olivia was on these meds for reflux too so I recognized that right away. I never thought to question about laying him on his right side. I am going to write a letter to the Chair of Neonatology this weekend. At the very least, I want reassurance they will not tell another parent this! Dane's mom DOC Grad > Hey . Glad to see you back.. Everyone was getting real worried there > for a while. I noticed in your post that you said you were told in the > hospital to sleep Dane only on his right side. Did they tell you why they > wanted you to do that? I'm just curious because if it were possible to sue a > military hospital, I would've sued long ago because that's what the Army > hospital I delivered in told me to do! I mean, I knew about the whole > back-to-sleep thing, but had a rough, traumatic birth and was in the > NICU for a week after being born because of a high fever and rapid breathing, > of which they never found the cause, even after being hooked up to every > machine and two spinal taps. I was breastfeeding at the time and the NICU > nurses told me that if I ever put down to sleep right after feeding, to > place him on his right side just in case he spit up. Okay. So back in the > early days, he was always falling asleep right after eating, so I was ALWAYS > putting him on his right side, never the left, because silly me thought that > there was something significant about the right side. This went on until two > months when we noticed the flattening on the right side. Anyway, I wanted to > sue because of the whole situation: letting me go two and a half weeks > overdue with only one stess check, and that was the day they induced me > because of low amniotic fluid and lack of movement, not letting my husband > stay with me at night when I had to stay six nights in the hospital with a > newborn baby who would not sleep at night but scream because there was > something wrong, telling me to put him on his right side to sleep, then at > the wellbaby checks, " Oh, his head is fine, it won't stay like that forever, " > but never a mention of repositioning. Then finally at six months they refer > me to a specialist because suddenly his head shape is a problem. The > craniofacial dr looks at it and says, yeah, it's plagio, so go home and > reposition for a month. Doesn't work because he's seven months by this time > and almost 20 pounds! So after a month, he says, " Okay, let's do the > helmet. " We get casted the next week, but the ortho is short- handed, it > takes a month to get the helmet....by this time it's mid October and is > almost nine months. My husband was scheduled to be discharged from the Air > Force on October 27th, at which time our base and hospital priveleges would > be revoked. For the whole two weeks got to wear the stupid helmet, I > was given the runaround trying to find a way to get a temporary pass to get > the adjustments on post. No one would help me, no one knew what to do, and > the orthotist pretty much told me, " If you can find a way to get here I'll do > the adjustments on the band until he can't wear it anymore. " I was treated > like the second-rate military wife and asked repeatedly why my husband wasn't > with me. He was working 12 hour days at his job at the time and there was > just no way. And here I am, no military experience, running around an Air > Force base trying to explain plagiocephaly to some sergeant who could really > give a damn, only to be told, " Oh, you need to go talk to these people over > in this building, " only to go there and be laughed at, " Why would you think > WE handled that kind of thing? " got to wear that helmet for two weeks > after all the heartache. Then once we had civilian insurance, he got another > helmet that didn't do much because he was a year by the time he got > it...(sigh) > > All because a couple nurses told me to put on his right side to sleep. > I tell ya, If you could sue the Government, I think I'd have a case! > haha...oh well, I have a happy, healthy little boy and that's all that > matters. > > I will definitely never take another doctor's or nurse's suggestion as law > ever again. I used to treat their words like they were etched in stone, but > now I know that when it comes to your child, their suggestions really are > just suggestions, general suggestions, and not applicable to every child. > Only you, the mother, can determine what is truly right for your child. > > Anyway, that's all I have to say about that....LOL... > > Kellie, mom of > Olympia, WA Quote Link to comment Share on other sites More sharing options...
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