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hi ..i'm sorry i forgot to mention my name...i'm mary..and i have

detected my bb's head since she was 2mths..and during those times i

had tried to do research but everywhere i go ..bb's will grow out of

it..unfortunately at 6 mths..it's still there..since 2mths..i had

tried to put her on her tummy..then i started to put a soft pillow

under her..i learned not to follow the doc's all the time..4 mths..i

let her sleep on her tummy..well...to make it short..i found this

site 2 days ago..and i've contacted with cappskids.org..she told me

alot.. & was very funny and welcoming..i tell you i just want to cry

being a new mom & all...to end this short..my husband whom i love

very much ..has plagio...everyone teases him about his big head &

says that my daughter has his head and my facial features..but i know

that she wouldn't have it if i'd had known...he has the back

flattened.. & my dd has the commom kind in the back to the right..i

just hope my dr. will go on with the procedure and the ins. will

pay..we live 5 hrs away from craniatech in dallas and hoping that she

will have it corrected soon..oh..my husband does complain about

having headaches also...that's all the time now .thank you all for

helping. -mary

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  • 1 year later...

Welcome, Jutta!

Sorry that you've been facing your RA pretty much alone. I think you'll

find a lot of understanding people here.

Although there is much variation from person to person in what symptoms

of RA are present and to what degree, here are some links that list the

most common symptoms:

From the University of California , " What are the Symptoms of

Rheumatoid Arthritis? " :

http://www.ucdmc.ucdavis.edu/ucdhs/health/a-z/48RheumatoidArthritis/doc48symptom\

s.html

From MedlinePlus, " Rheumatoid Arthritis " :

http://www.nlm.nih.gov/medlineplus/ency/article/000431.htm

" RA Disease Basics " from Healthtalk.com:

http://www.healthtalk.com/rheumatoidarthritis/diseasebasics.cfm

a's Web site has a lot of excellent RA information:

http://rheumatoid.arthritis.freehosting.net/Rheumatoid Arthritis.html

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] thanks for the warm welcome

> I was diagnosed with RA about 6 years ago. Then it was very

> frightening, but I thought that I could handle anything that didn't

> kill me. And I can - to a certain extend.

>

> The things that frustrates me so much is that it isn't the kind of

> illness that has tangible outward signs, not in me anyway. When

> I am soooo tired, I have to force myself to move, I often think that I

> get viewed as lazy. I am a very active person, and I have a very

> physical job. So far I have been able to force myself to continue

> on as before. Lately, though, none of the coping mechanisms

> have worked, and I just had to take a day here and there off work.

>

> It is hard for me to seek support eventhough I would advise

> everybody else to do it. But last night, when I finally rerad through

> a lot of the posts from the past month, all I could do is cry,

> because I strated to see things that I usually just put in the file

'to

> be dealt with when ready'. I finally saw that some of what I have

> been feeling is not me being a whiner, but rather normal.

>

> I am uncertain as to how good my physician is. I live in Northern

> CA, and am with Kaiser. When I go in to see the rheumatologist,

> he is nice and kind to me. But as far as volunteering any

> information - that is a trick that he hasn't learned yet. I have to

> ask all the questions, and sometimes I wonder that he doesn't

> chatise me for that. However, I am stuck, because there aren't

> too many rheumatologists available in the Kaiser system.

>

> When reading last night, I noticed that a lot of the discomforts

> and pains that I am experiencing are RA related, and you can't

> imagine how much of a 'AHA' experience that was/is. Maybe you

> can :-). Is there a comprehensive list anywhere, that includes all

> or most of the symtoms of RA? Or is it just discover as you go

> along?

>

> Again, thank you everybody for the warm welcome.

>

> Jutta

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