Re: thanks for your encouragement

[Guest guest]

Ruth,

Thank you for your kind words and for being a part of this group.

Debbie/FL

> Hi Everyone,

> I noticed there are about 5 or so of us new to the support

group.

> I just wanted to say how I appreciate the caring spirit shown in

the

> group. It really helps to know people are willing to come along

side

> and reach out to others who are hurting. I have learned so much

> already from you all. Thanks for your encouragement. Debbie, I

know

> how hard it is to give up giving something that is intended to help

> others, you may feel you are not able to give right now, but you

> actually are showing us to reach out to people around us. Anyway,

> I'm sorry about your seder.

> God Bless

> Ruth

[Guest guest]

-

That is such great news! Just in time to relief your mind of some

of the stress so you can enjoy the weekend.

How far away from Kansas City are you? Have you considered Rehab

Designs of America (CT)? They have the DOC Band. I only ask this

in the event that is is closer than driving to OKC. I equate

driving long distances in the car with my kids to chipping away at

some of the time I will be spending in purgatory.

Dane's mom DOC Grad

> Thanks to every one for your encouragement. It is such a HUGE

releif to talk to others who have been there and know what I am

experincing and facing.

> Yesterday I spoke with a lady from Missouri's Early Intervention

Program (here it is called FIrst Steps, in OK I think it is Sooner

Starts), they will pay for Lucas's helmet, IF he qualifies. To

qualify the DR has to either say Lucas has a developmental delay,

deveopmentla disablity, or cranial facial anomoly. I would be

noramlly very leery of things like this, but any help we can get

would be better then none at all. They will come and asses Lucas (in

our home) to see

> if he will need any further therapy (PT, OT) if so they will cover

that too. I was

> so happy to hear that same agency will help us pay for us to have

respite care. It is

> basiaclly where they pay a sitter (of our choosing), up to 20

hours a month

> 7.50 an hour!! I was told I could sign a waiver so my insurance

did not pay, and I did not have

> to make the co-pay.That way the state will pay and I do not max

out his

> lifetime benefits. It has been a long few weeks here, my Dh has

been

> working 60-70 weeks to try and help pay for some of these

unexpected

> expenses. It gets to be a really long day when you are with them

24/7. That was such an answer to prayer. We have pretty much made

up our mind to get the band.

>

[Guest guest]

,

I just wanted to take this opportunity to welcome you to the group,

I'm sorry I'm so late with it! Good luck to you, be sure to keep uas

posted!!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Thanks to every one for your encouragement. It is such a HUGE

releif to talk to others who have been there and know what I am

experincing and facing.

> Yesterday I spoke with a lady from Missouri's Early Intervention

Program (here it is called FIrst Steps, in OK I think it is Sooner

Starts), they will pay for Lucas's helmet, IF he qualifies. To

qualify the DR has to either say Lucas has a developmental delay,

deveopmentla disablity, or cranial facial anomoly. I would be

noramlly very leery of things like this, but any help we can get

would be better then none at all. They will come and asses Lucas (in

our home) to see

> if he will need any further therapy (PT, OT) if so they will cover

that too. I was

> so happy to hear that same agency will help us pay for us to have

respite care. It is

> basiaclly where they pay a sitter (of our choosing), up to 20 hours

a month

> 7.50 an hour!! I was told I could sign a waiver so my insurance

did not pay, and I did not have

> to make the co-pay.That way the state will pay and I do not max out

his

> lifetime benefits. It has been a long few weeks here, my Dh has

been

> working 60-70 weeks to try and help pay for some of these unexpected

> expenses. It gets to be a really long day when you are with them

24/7. That was such an answer to prayer. We have pretty much made up

our mind to get the band.

>