Re: Help! Glasses?!?-Amie

[Guest guest]

Hey Amie,

I saw a baby in a band and wearing glasses! When was born she

had to be put on a respirator and then the CPAP. Can that cause

vision problems? Or do they need glasses due to them being preemies?

I think babies in glasses look so cute!!

--- In Plagiocephaly@y..., " AMIESGOSSIPBOX " <amiesgossipbox@y...>

wrote:

> Well, as with most twins my boys were born at 33 weeks, and luckily

I

> had time to get two steroids shots before I delivered.

Unfortunatly,

> due to TTTS, and just being early they were on O2 the first day of

> there life. Dakota especially needed more help being the sicker of

> the two (recipient of TTTS), and needed to be on the CPAP machine.

> Around there three month birthday we took them to get there eyes

> checked, and they saw nothing that needed immediate attention. They

> sent us away saying there would be a need for glasses, but they

> weren't exactly sure? At the time they were not going cross eyed,

or

> anything. We just figured they were fine, and have gone on from

> there. They are behind farther then normal, but we also just

figured

> they are babies learning at there own pace. There is a need for

> glasses, and this explains everything. They are both farsighted,

and

> Dakota is worse. Unfortunatly, at this point we are looking at them

> wearing them untill atleast age 6/7, and having them on full time.

It

> is so upsetting, but not that bad since there is still hope for

> correction. Now I don't know to cry. or be happy. We will be the

> first with having him in glasses this young, AND wearing his

> helmet... Hopefully that won't be to bad.. Anyone have an infant in

> glasses full time??? I need success stories!! THinking about it..

The

> helmet should help keep the glasses on, but it will have to be

> altered so he can wear both. I looked through the photo album, but

> saw no babies with glasses. The orthodist said she hasn't ever

> helmeted a baby that needed to wear glasses at the same time, and

we

> are the first case. HELP!

> Amie mommy to Dakota (star), and Dayton.

[Guest guest]

, I don't mean to scare you, but get her to an eye doc right

away!!! Really, I can't explain the two medical conditions that can

be a result of O2, but they require IMMEDIATE surgery!! Babies who

are on the breathing machines are at a VERY high risk of developing

problems in the first year of life, so it's necessary to be seen. HOw

old is ? Really, all they do is dialate the eyes, and look in

them with there magnafine lenses. Check into it, and DEMAND to be

seen. Good luck! Like I said... I didn't think there was a problem,

and almost cancled there appointment. Just proves you never know!

Amie

[Guest guest]

Hi Amie,

Thanks for your reply. She was only on the respirator until the next

day. Then on the CPAP. I don't remember how long, they were going to

put her back on the respirator b/c she had episodes where she would

stop breathing but she would self resolve it, on one occassion she

had to be stimulated to breath again. No one ever told me anything

about this!! She just turned 1 on the 27th. She has her wellbaby

check up on the fifth of August. I'll mention it to her doctor then.

Do you know the names of the conditions? This way I'll be able to

tell her doctor why I need a referral to see an eye doctor.

I think her vision is fine though. Do your boys have any " symptoms "

of having a vision problem?

Amie, thanks so much!

PS I can't believe nobody mentioned this to me, when she was

discharged from the NICU!! This really upsets me!!!

--- In Plagiocephaly@y..., " AMIESGOSSIPBOX " <amiesgossipbox@y...>

wrote:

> , I don't mean to scare you, but get her to an eye doc right

> away!!! Really, I can't explain the two medical conditions that can

> be a result of O2, but they require IMMEDIATE surgery!! Babies who

> are on the breathing machines are at a VERY high risk of developing

> problems in the first year of life, so it's necessary to be seen.

HOw

> old is ? Really, all they do is dialate the eyes, and look in

> them with there magnafine lenses. Check into it, and DEMAND to be

> seen. Good luck! Like I said... I didn't think there was a problem,

> and almost cancled there appointment. Just proves you never know!

>

> Amie

[Guest guest]

Amie -

When you say O2, I assume you mean oxygen. Is this correct? Dane

had a canola lead for a few days and had to be bagged a few times in

the NICU. His vision seems okay. He doesn't have any issues

developmentally, except the only word he says is " dada. " My

daughter said about 10 words at this point (almost 11 months).

Do I need to be worried about this too?

Dane's mom DOC Grad

--- In Plagiocephaly@y..., " AMIESGOSSIPBOX " <amiesgossipbox@y...>

wrote:

> , I don't mean to scare you, but get her to an eye doc right

> away!!! Really, I can't explain the two medical conditions that

can

> be a result of O2, but they require IMMEDIATE surgery!! Babies who

> are on the breathing machines are at a VERY high risk of

developing

> problems in the first year of life, so it's necessary to be seen.

HOw

> old is ? Really, all they do is dialate the eyes, and look

in

> them with there magnafine lenses. Check into it, and DEMAND to be

> seen. Good luck! Like I said... I didn't think there was a

problem,

> and almost cancled there appointment. Just proves you never know!

>

> Amie

[Guest guest]

,

My memory is kind of fuzzy on how long they were on the oxygen, but

it wasn't quite 24 hours. Daktoa needed more help, so he was on the

CPAP. Dayton went under the 'hood', so wasn't exposed as long. The

NICU is definatly a scary place! Sounds like she suffered from brady-

cardia spells when she would quit breathing, so did her heart rate

drop too? My boys both did that for the first week, and a half.

Actually, the outlook wasn't the best, so they tried co-bedding them

to see if that would help. Not many hospitals will let twins sleep

together for fear of germs spreading, or confusing them. Anyways, all

those symptoms stoped once they were snuggled together, started

breast-feeding, and when I got to see them more. Part of there

discharge orders was to immediatly see an eye dr, but I really don't

know of the excat name of the conditions they look for. A good

website to get a general idea is

http://www2.medsch.wisc.edu/childrenshosp/Parents_of_Preemies/laterey

e

..html , but keep in mind my boys are NOT showing ANY of these signs!

We have a pysical therapist, and a home 'teacher' that comes out none

of wich thought there was a problem. We are involved in a program

called head start, and they have a nurse who is going to get the info

for me. Later I will pass that on, and let you know! Do you think you

can get a referal? Hopefully, they will with out any troubles!

Amie

[Guest guest]

... I must say have him checked if you can, and it's really not

that hard. To dialate there eyes it was just a simple spray, and then

we waited 20 minutes. After they were fully dialated the drs took ONE

look, and sent me away with eye glass perscriptions. Some things too

look for are...

The most common eye problems to appear after discharge are:

Poor vision (either near sighted or far sighted)

Strabismus (inward or outward turning of one or both eyes)

Amblyopia (lazy eye due to unequal vision)

Nystagmus (constant or frequent jerking movements of the eye)

Decreased color vision (some colors look alike, for example

purple,blue,green)

Smaller field of vision

Some signs are:

Infant frequently pokes at his/her eye

Lazy eye, slow to move

Constant movement of eyes, even when trying to look at something

Frequent crossing of eyes, beyond three months of age correcting for

prematurity

One eye that stays out or in most of the time

Frequent or constant jerking of eyes especially when looking straight

ahead. A few jerks when looking to the far left or far right is

normal.

The infant fails to blink to a camera flash just in front of the face

The surface of the eye or the pupil (black circle in the center of

the eye) appears cloudy or white

In a photo, the center of one eye appears red while the other eye

does not

Abnormal head turn or head tilt

The infant (beyond 6 weeks of age correcting for the weeks of

prematurity) cannot fix his/her eyes on an object or a face, or

follow it as it moves

The infant's eyelid droops so much that it completely covers the

pupil (black center) of the eye when he/she is awake

Normal lighting seems to hurt the baby's eyes and make him/her cry or

turn away

Again.. none of wich we are experiencing... Except the red eyes in

photos, but I just thought that was normal. Just proves it that they

must suprise me everyday one way, or another! LOL Definatlly look

into an eye dr, and let us know how it goes! Rember correction can be

made for some (as is our case), and need to be caught ASAP. Babies on

oxygen are at a FAR greater risk of vision problems before age one,

so check it out. Here in KC they have a really good clinic, so I am

considering myself very luck! I do know of MANY cases of preemies on

O2 for atleast a week that have turned out with OUT any problems, so

you just never know! Good luck!

Amie

[Guest guest]

Hi Amie,

She was in the NICU for 11 days, I think on the CPAP for 7 or 8 days.

The NICU terrified me. It's like a different world up there. Until

was there, it wasn't something I ever thought about.

was born with Transient Tachypnea of the Newborn. She had rapid

breathing b/c there was too much fluid in her lungs. Her case was

severe, they very rarely vent a baby born with TTN. I don't think I

got to nurse her until she was like 3 days old, they had to tube feed

her. It really was a nightmare.

After what I went through to get her tort diagnosed and to FINALLY

get her in a band, my doctor isn't going to have a choice,but to give

me a referral!!! I'll keep you posted!

Thanks again,

> ,

> My memory is kind of fuzzy on how long they were on the oxygen, but

> it wasn't quite 24 hours. Daktoa needed more help, so he was on the

> CPAP. Dayton went under the 'hood', so wasn't exposed as long. The

> NICU is definatly a scary place! Sounds like she suffered from

brady-

> cardia spells when she would quit breathing, so did her heart rate

> drop too? My boys both did that for the first week, and a half.

> Actually, the outlook wasn't the best, so they tried co-bedding

them

> to see if that would help. Not many hospitals will let twins sleep

> together for fear of germs spreading, or confusing them. Anyways,

all

> those symptoms stoped once they were snuggled together, started

> breast-feeding, and when I got to see them more. Part of there

> discharge orders was to immediatly see an eye dr, but I really

don't

> know of the excat name of the conditions they look for. A good

> website to get a general idea is

>

http://www2.medsch.wisc.edu/childrenshosp/Parents_of_Preemies/laterey

> e

> .html , but keep in mind my boys are NOT showing ANY of these

signs!

> We have a pysical therapist, and a home 'teacher' that comes out

none

> of wich thought there was a problem. We are involved in a program

> called head start, and they have a nurse who is going to get the

info

> for me. Later I will pass that on, and let you know! Do you think

you

> can get a referal? Hopefully, they will with out any troubles!

> Amie