Re: Boston Children's Hospital?

[Guest guest]

I'm copying and pasting a message I found in the archives from someone who took

their baby to Boston Children's Hospital. Hope this helps!

Marci (mom to )

Oklahoma

From:  " hgmurray " <hgmurray@...>

Date:  Fri May 17, 2002  10:52 am

Subject:  Re: Helen (hgmurray)

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I had my appointment with my daughter last Friday. We saw Dr.

Proctor at the Childrens Hospital in Boston (whom I found through

this site!). He measured her head and told me that he felt she was

fairly advanced and that even with repositioning, it was unlikely we

would have great results. So he wrote a prescription for a helmet

and before I knew it my daughter was covered in plaster being casted

for a helmet at NOPCO. I wasn't expecting it that very day so I was

a little stressed. But the man at NOPCO who did the fitting was

incredibly nice and very helpful. I was really happy I decided to

bring her to be looked at now instead of waiting. They were very

enthusiastic about her young age (4 1/2 months now) since she is

likely to get good results. I was told that she may be able to wear

the helmet for 2 months full time and then possibly just at night

after that for 2 more months? She gets her helmet next Friday. I'm

just a little concerned about her somewhat sensitive skin, the hot

weather coming, and if she will have trouble sleeping in it at

first. We are also doing neck stretches although the Dr. felt that

she didn't seem to have too much of a problem with that.

I have an appointment with her regular ped. this afternoon and I

feel a little bad that I never even consulted her. I just made an

appointment with a specialist and went. I don't need a referral for

my insurance. I have no idea whether the helmet will be covered or

not. I know the plagio website recommends waiting for an answer from

your insurance before getting the helmet but I just didn't want to

let them be the boss of my daughter's treatment. If that means I

pick up the tab, so be it. I will of course try to get them to cover

at least some.

Thanks so much for your help and I will be sure to update after

we get the helmet!

Helen and Grace

[Guest guest]

Following is one more archived message that I found regarding Boston Children's

Hospital. As you can see from both messages their email addresses are attached.

You might try emailing them directly to see if they can give you anymore input.

Marci (Mom to )

Oklahoma

From:  nbrown@...

Date:  Thu Jan 3, 2002  9:22 am

Subject:  RE: Trip to Boston

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Hi -

My son who is 10mos. old started going to Boston Childrens 4 mos

ago. His neurologist is Dr. Mark Proctor and he sees a couple different

orthotists @ Nopco...Mike and Randy. Everyone has been extremely helpful

and thoughtful. Not to mention the fact that has responded to the

treatment extremely well. We actually will be seeing both doctors tomorrow

(we go in every other Friday). The helmet treatment is passive and has

been great! was considered severe when we started and when you take

his helmet off you can't even tell. We will be getting some new

measurements tomorrow so I'm anxious to find out how much improvement he's

had.

We originally planned on going w/the DOC Band, we actually felt that it was

the only and best way to go. But I must say that once we met w/Mark

Proctor and saw the treatment and outcome of many patients, we decided to

try it out. I am so glad we did too! has done tremendously well

and these are truly some " top notch " doctors and surgeons at Boston

Childrens, so we feel very comfortable w/putting our child in their care.

We too live about 45 minutes north of Boston. So please let me know if

there is anything I can do to help. I just gave my notice at work to

become a stay at home Mom, so my email address @ home is brownys4@...

- mom to and Jack - 10 month old twins