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Dear Janelle:

I've never been able to wean more than a 1/2 mg at a time. It's a slow, long

drawn out process, but that has worked best for me. Some people do it by

alternating doses every other day (i.e. 12, 13 , 12, 13), but for me, it was

just easier to cut the pills in half. It was always painful, but slowing it

down minimized the pain. I have been unable to get below 7.5 mg. I'm

currently at 8. I never had a problem with vomiting, though. I wonder if

something else is going on. I just get fatigue and terrible joint pain and

my left side pain kicks in fiercely. Good luck, and I hope that you're

feeling better soon.

Kathy (AIH)

Seattle area

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Janelle,

I was weaned rather rapidly down to 10 mgs of pred and developed giant

hives. My pred was boosted back up to 15 mgs. then reduced at 1 mg per

week until I stopped taking it completely last New Years Eve. I was off it

altogether for a month and by February I needed help getting out of a

chair. It was a disaster. A Rheumatologist put me back on 10 mgs. daily

because my Hepatologist was out of town. She also prescribed Vicoden and

had no problem saying that doctors who refuse pain meds are poorly informed

and misguided.

When I started back on 10 mgs. I felt so good I thought I must be totally

cured. No pain, no problems of any kind. But then I started reducing

again and the pain began to return and increased. So did fatigue. Now, at

5 mgs., I'm having some major problems and it's unclear if it's because of

reduced pred or because of bone conditions that have been caused by

long-term Prednisone use. I see an Orthopedic Surgeon on the 24th. so he

can check out whatever is going on.

However, I never had chills, vomiting or fever like you're having. That

sounds like another problem altogether. I do get more headaches than I've

had in a long time but they could be caused by anything. I used to get

headaches all of the time until I started taking Prednisone.

Take care,

Geri

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  • 3 years later...

>

> Hello,

>

> So, I've been looking, reading and trying to understand what adrenal

insufficiency is, how this might be affecting our son, and, of course,

how to help him. I ran across this source:

>

> http://www.biopathics.com/BioPDFs/Adrenal_Insufficiency.pdf

>

> It sounds about right, but as I am truly unable to discern the valid

from the invalid on this (and many other) subjects, could someone have

a look and let me know their thoughts.

>

> Also, I tried to get a better idea of what I am looking for from

Andy's book, but am having a hard time. From what I understand, ther

are " sweaters " and " non-sweaters " . Our son is definitely a

" sweater " . Which then places him in the " high average " cortisol

group.

Ummmmmm...... what page did I say that on? Sweating is not directly

controlled by the adrenals.

>Also, he would fall into the thin arms/legs, fat abdomen... if he had

any fat. I think I would characterize his abdomen as large, or

distended, rather that fat.

>

> However, he also suffers from anxiety, depression, agitation,

hypoglycemia - which are symptomatic of " low " cortisol levels.

Yes. This means he is low.

>

> Also, what is ACTH?

The hormone the pituitary releases to tell the adrenals to let out

more cortisol. It is called AdrenoCorticoTrophic Hormone. ACTH.

>

> How would mercury have an effect on the adrenal system?

It can impair the ability of the adrenal gland to actually make

cortisol and other steroiids. It may also mess with the brain's

ability to tell the adrenal glands to do so.

> And could it be related in any way to the sulfation process?

No. This is irrelevant to sulfation.

>(I am just beginning to try to understand all this, so please be

patient if my questions are nonsensical.)

>

> Many thanks,

>

>

>

>

> [Non-text portions of this message ha

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-

Andy,

It is on page 118. I am also confused by this. My son is a

nonsweater, but fits adrenal insufficiency as well. Craves salt,

very thin, no traditional allergy symtoms but got lots of

infections,low potassium, etc. Also has ADHD which I read somewhere

yrs. ago could be caused by adrenal exhaustion. Will chelation take

care of this, or is there something more I should do now? I've been

chelating for 20 months. He is 15. Thank-you.

Judy

-- In , " andrewhallcutler

<AndyCutler@a...> " <AndyCutler@a...> wrote:

>

> >

> > Hello,

> >

> > So, I've been looking, reading and trying to understand what

adrenal

> insufficiency is, how this might be affecting our son, and, of

course,

> how to help him. I ran across this source:

> >

> > http://www.biopathics.com/BioPDFs/Adrenal_Insufficiency.pdf

> >

> > It sounds about right, but as I am truly unable to discern the

valid

> from the invalid on this (and many other) subjects, could someone

have

> a look and let me know their thoughts.

> >

> > Also, I tried to get a better idea of what I am looking for from

> Andy's book, but am having a hard time. From what I understand,

ther

> are " sweaters " and " non-sweaters " . Our son is definitely a

> " sweater " . Which then places him in the " high average " cortisol

> group.

>

> Ummmmmm...... what page did I say that on? Sweating is not

directly

> controlled by the adrenals.

>

> >Also, he would fall into the thin arms/legs, fat abdomen... if he

had

> any fat. I think I would characterize his abdomen as large, or

> distended, rather that fat.

> >

> > However, he also suffers from anxiety, depression, agitation,

> hypoglycemia - which are symptomatic of " low " cortisol levels.

>

> Yes. This means he is low.

>

> >

> > Also, what is ACTH?

>

> The hormone the pituitary releases to tell the adrenals to let out

> more cortisol. It is called AdrenoCorticoTrophic Hormone. ACTH.

> >

> > How would mercury have an effect on the adrenal system?

>

> It can impair the ability of the adrenal gland to actually make

> cortisol and other steroiids. It may also mess with the brain's

> ability to tell the adrenal glands to do so.

>

> > And could it be related in any way to the sulfation process?

>

> No. This is irrelevant to sulfation.

>

> >(I am just beginning to try to understand all this, so please be

> patient if my questions are nonsensical.)

> >

> > Many thanks,

> >

> >

> >

> >

> > [Non-text portions of this message ha

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> I am also confused by this. My son is a

> nonsweater, but fits adrenal insufficiency as well. Craves salt,

> very thin, no traditional allergy symtoms but got lots of

> infections,low potassium, etc. Also has ADHD which I read somewhere

> yrs. ago could be caused by adrenal exhaustion. Will chelation take

> care of this, or is there something more I should do now? I've been

> chelating for 20 months. He is 15. Thank-you.

What you do for immediate symptom relief is:

magnesium 100-200 mg 4 times a day, free access to salt, licorice

extract or candy, adrenal cortex extract, epsom salt baths, and if it

doesn't scare the wits out of your doctor, 5 mg hydrocortisone 2 or 3

times a day (it is Rx unless you get the OTC skin cream and measure

out the amount to deliver 5 or 10 times that much and smear it on him

in the morning - rotate locations if you do this, e. g. 1-2 tsp of the

cream smeared on him when you get him up in the morning).

>

> Judy

>

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  • 1 year later...
Guest guest

I'm hypothyroid and hypoadrenal. I was hypothyroid first, though. I was

hypothyroid at age 5 and was diagnosed with adrenal fatigue a few months ago.

In truth, I did not have adrenal symptoms until about 6-9 months ago. I'm

treating both and feel a lot better.

sprint3000us <sprint3000us@...>

wrote:http://www.medindia.net/Patients/PatientInfo/hypothyroidism.htm

" Should thyroxine be given for all cases of hypothyrodism?

No. In secondary hypothyroidism, thyroxine should not be given until

adrenal insufficiency has been evaluated and if present treated. "

Is the above statement true ?

So, if one has secondary hypothyroidism, first adrenal should be

checked and treated ??

Anybody here has hypothyroid and hypoadrenal ?

Thanks,

Sam

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Guest guest

Did you check for adrenal defiency before you had adrenal symptoms ?

http://www.medindia.net/Patients/PatientInfo/hypothyroidism.htm

>

> " Should thyroxine be given for all cases of hypothyrodism?

> No. In secondary hypothyroidism, thyroxine should not be given

until

> adrenal insufficiency has been evaluated and if present treated. "

>

> Is the above statement true ?

>

> So, if one has secondary hypothyroidism, first adrenal should be

> checked and treated ??

>

> Anybody here has hypothyroid and hypoadrenal ?

>

> Thanks,

> Sam

>

>

>

>

>

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Guest guest

The statement is true and not only for secondary hypothyroidism - the

insert on the Synthroid box says it should only be given after adrenal

problems are ruled out.

Some doctors estimate 40% of hypothyroid people also have adrenal

fatigue, as untreated hypothyroidism stresses the adrenals. I have

hypoadrenia too, although I didn't at the time I was first diagnosed and

medicated, it happened years later after a lot of stress in my life and

the development of other diseases.

Jan

sprint3000us wrote:

>http://www.medindia.net/Patients/PatientInfo/hypothyroidism.htm

>

> " Should thyroxine be given for all cases of hypothyrodism?

>No. In secondary hypothyroidism, thyroxine should not be given until

>adrenal insufficiency has been evaluated and if present treated. "

>

>Is the above statement true ?

>

>So, if one has secondary hypothyroidism, first adrenal should be

>checked and treated ??

>

>Anybody here has hypothyroid and hypoadrenal ?

>

>Thanks,

>Sam

>

>

>

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Guest guest

No. But, I am an unusual case in that I had hypothyroidism in childhood. So,

the thyroid problem was diagnosed first. Because hashimoto's is very strong in

my family, I believe I had that first, then the adrenal problems. I also

believe this because I had hashimoto's for about 40 years before I was diagnosed

with the adrenal problems. If I had adrenal problems for that long, I believe

it would have shown up long ago.

sprint3000us <sprint3000us@...> wrote:Did you check for adrenal defiency

before you had adrenal symptoms ?

http://www.medindia.net/Patients/PatientInfo/hypothyroidism.htm

>

> " Should thyroxine be given for all cases of hypothyrodism?

> No. In secondary hypothyroidism, thyroxine should not be given

until

> adrenal insufficiency has been evaluated and if present treated. "

>

> Is the above statement true ?

>

> So, if one has secondary hypothyroidism, first adrenal should be

> checked and treated ??

>

> Anybody here has hypothyroid and hypoadrenal ?

>

> Thanks,

> Sam

>

>

>

>

>

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  • 1 year later...

In a message dated 9/13/2005 5:50:31 PM Eastern Daylight Time, TwisterAlley2@... writes:

You might need to find you an altenative medicine doctor who would treat your condition with alternative or natural remedies like Raw Adrenal and such.I have not needed a General Practitioner in 5 1/2 years since putting my health in the hands of my Alternative Medicine doctor. Haven't seen my neuro in almost 2 years...I do see my GYN yearly.

Hi

I'm sorry I should have explained further. This is a holistic medicine doctor who is an MD. He mentioned the Cortep first, but when I told him I didn't thinks steroids were compatible with ldn, he started me on a lot of different supplements. Said he wants me to be comfortable and these supps should help. I was just curious about the steroids and ldn.

By the way, he asked who had given me the script for ldn and wanted to know how it's helped me. He said the info I gave him from the ldn website really interested him. He also said he had a couple of other ms patients that he might consider giving it to. He said they are doing very well now, but if it's supposed to stop progression it might be worth it. So next time a ned a script, I can get it from him. He did say that my neuro was very forward thinking for giving it to me originally.

We got another doc on board!

Arlene

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In a message dated 9/13/2005 7:00:15 PM Eastern Daylight Time, lkilcollin@... writes:

how did you find the doc

My husband went to him last year b/c he wanted to get on natural thyroid meds. He works out of a holistic medicine clinic run by a doctor who specializes in Thyroid and has written several books.

Originally we a search for docs who prescribed Armour thyroid meds. I did more research and found out he is also Lyme Literate.

Arlene

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>

> I went to my doctor yesterday to get results of tests. He said my adrenal

> function is low and talked about taking physilogical doses of hydrocortisone.

> I thought that corticosteroids (sp) were not compatible with ldn.

>

>

> Does anyone have any ideas on this?

>

> Thanks

> Arlene

=========

You might need to find you an altenative medicine doctor who would treat your

condition with alternative or natural remedies like Raw Adrenal and such.

I have not needed a General Practitioner in 5 1/2 years since putting my health

in the hands of my Alternative Medicine doctor. Haven't seen my neuro in almost

2 years...I do see my GYN yearly.

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> how did you find the doc

=====

I got lucky...he is my ophthalmologist and he also practices alternative

medicine.

You might check your yellow pages for holistic doctors and alternative medicine

doctors.

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>

> In a message dated 9/13/2005 5:50:31 PM Eastern Daylight Time,

> TwisterAlley2@w... writes:

>

> You might need to find you an altenative medicine doctor who would treat

> your condition with alternative or natural remedies like Raw Adrenal and

such.

>

> I have not needed a General Practitioner in 5 1/2 years since putting my

> health in the hands of my Alternative Medicine doctor. Haven't seen my neuro

in

> almost 2 years...I do see my GYN yearly.

>

>

>

>

> Hi

> I'm sorry I should have explained further. This is a holistic medicine

> doctor who is an MD. He mentioned the Cortep first, but when I told him I

didn't

> thinks steroids were compatible with ldn, he started me on a lot of

> different supplements. Said he wants me to be comfortable and these supps

should

> help. I was just curious about the steroids and ldn.

>

> By the way, he asked who had given me the script for ldn and wanted to know

> how it's helped me. He said the info I gave him from the ldn website really

> interested him. He also said he had a couple of other ms patients that he

> might consider giving it to. He said they are doing very well now, but if

it's

> supposed to stop progression it might be worth it. So next time a ned a

> script, I can get it from him. He did say that my neuro was very forward

> thinking for giving it to me originally.

>

> We got another doc on board!

> Arlene

===========

Not good to use steroids long-term with LDN. They can cancel one another out.

Go to your search engine and type in Raw Adrenal, Premier Labs. You might want

to ask your doctor about this.

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LOW ADRENAL FUNCTION? REDUCE COFFEE, TAKE PLENTY OF PANTOTHENIC ACID AND RAW ADRENAL ENZYMES. GET CORTISOL LEVELS CHECKED OR BETTER YET JUST ADD A GOOD HEALTHY DOSE OF PHOSPHYTLSERINE TO YOUR REGIMEN. KATHY(200 MGS) iT REDUCES CORTISOL LEVELS AND HELPS YOU HANDLES STRESS MORE EFFECTIVELY

[low dose naltrexone] Adrenal insufficiency

I went to my doctor yesterday to get results of tests. He said my adrenal function is low and talked about taking physilogical doses of hydrocortisone. I thought that corticosteroids (sp) were not compatible with ldn.

Does anyone have any ideas on this?

Thanks

Arlene

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  • 8 months later...

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