Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Beth, I had the twitches but they went away right after explant. When I was in Idaho with the girls I do remember someone talking about it an they were taking something that helped them get rid of it, for the life of me I can't remember what it was. It could have been magnizime. (spelled wrong). Who ever it was will let you know once they read your post. Sorry your going through this Beth Love Cricket --- In , " bethlakey " <bethlakey@y...> wrote: > To everyone who has experienced the muscle twitches, when do the > darned things go away? I am doing everything I can tolerate to get > better, but I still have them every day, almost all day long. Last > night I woke up with them in my left foot, my toes were cramping and > going nuts. I have tried super malic, which makes them worse. So > does this probably mean that I've still got heavy metals/chemicals > moving around or does it mean that the nerves are still misfiring > and need to be repaired? The tingling is better and mild mostly in > my left hand and foot; it's bearable I think. > I am still on supplements, doing occasional enemas, Epsom > salt/ginger detox baths, trying to eat organic when possible. Am so > miserable; sorry to be a whiner. > Thanks, > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi Beth, I am sure that you have already heard from someone here that Calcium and Magnesium (and Potassium) help with the twitches and cramping. Try the the type that combines calcium and magnesium (CALMAC by Nutrina) and disolves into water, it absorbs better. Even if it does not relieve the twitches, it should help considerably with the cramping. Take it at bed time, because it can make you sleepy. I am sorry to say that it does not always work with twitches, some people try the anti convulsant type drugs with good results. As for me, the drugs had too many side effects, so I decided just to live with the muscle twitches. Of course, take all of your symptoms into consideration and possibly see a qualified doc, because the twitches can be a sign of a serious condition. Take care, Ann > > To everyone who has experienced the muscle twitches, when do > the > > darned things go away? I am doing everything I can tolerate to > get > > better, but I still have them every day, almost all day long. > Last > > night I woke up with them in my left foot, my toes were cramping > and > > going nuts. I have tried super malic, which makes them worse. So > > does this probably mean that I've still got heavy metals/chemicals > > moving around or does it mean that the nerves are still misfiring > > and need to be repaired? The tingling is better and mild mostly > in > > my left hand and foot; it's bearable I think. > > I am still on supplements, doing occasional enemas, Epsom > > salt/ginger detox baths, trying to eat organic when possible. Am > so > > miserable; sorry to be a whiner. > > Thanks, > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Cricket, I am trying not to panic, but of course when it's bad like this I think of MS or ALS. I have had two MRIs, NCV and EEG, all normal. Have not had spinal tap or nerve biopsy. I did read on Mercola's site that heavy metals will prevent nutrient absorption, so maybe my magnesium isn't absorbing. Thanks, Beth > > To everyone who has experienced the muscle twitches, when do > the > > darned things go away? I am doing everything I can tolerate to > get > > better, but I still have them every day, almost all day long. > Last > > night I woke up with them in my left foot, my toes were cramping > and > > going nuts. I have tried super malic, which makes them worse. So > > does this probably mean that I've still got heavy metals/chemicals > > moving around or does it mean that the nerves are still misfiring > > and need to be repaired? The tingling is better and mild mostly > in > > my left hand and foot; it's bearable I think. > > I am still on supplements, doing occasional enemas, Epsom > > salt/ginger detox baths, trying to eat organic when possible. Am > so > > miserable; sorry to be a whiner. > > Thanks, > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Beth, Don't panic yet, you were just explanted three months ago. Try the magnesium. Some of this stuff just takes time. At first I had many flars after explanting. Now they are few and far between. Sweating would be good too. You do not have MS or ALs. You are staying away from diet stuff. Because the nutra sweet can cause MS symptoms. That includes diet drinks, sugar less gum. Pretty much anything sugarless. Hang in there Love Cricket > > > To everyone who has experienced the muscle twitches, when do > > the > > > darned things go away? I am doing everything I can tolerate to > > get > > > better, but I still have them every day, almost all day long. > > Last > > > night I woke up with them in my left foot, my toes were cramping > > and > > > going nuts. I have tried super malic, which makes them worse. > So > > > does this probably mean that I've still got heavy > metals/chemicals > > > moving around or does it mean that the nerves are still > misfiring > > > and need to be repaired? The tingling is better and mild mostly > > in > > > my left hand and foot; it's bearable I think. > > > I am still on supplements, doing occasional enemas, Epsom > > > salt/ginger detox baths, trying to eat organic when possible. > Am > > so > > > miserable; sorry to be a whiner. > > > Thanks, > > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Beth remind me of how long it has been since you got them out. YOU DON " T HAVE MS OR ANYTHING LIKE THAT what we have is always atypical. It just is not really the true disease, the symptoms mimic those though, and yes I know how frightening it is. My neuro stuff was the first thing that went away for me and the pain stuff is what took the longest and obviously I still have some pain issues with my feet, no one can tell me if that is just a coincidence and sometimes I want to believe that, because after almost 4 years how can it still be the implants? Esp when all the other wierd stuff is gone right? Anyhow I do think that the working out will help you, it helped me, and yes to answer your other question I was still sick when I worked out, I had to work out I was afraid of losing my stregnth my stamina and my figure so I just kept at the workout and it helped me through the worse times. I remember being so dizzy on my runs and walks thinking I was surely going to die, but I never did. It is sad but true. At any rate I did get better, so will you girl, hang in there. In , " bethlakey " <bethlakey@y...> wrote: > Cricket, > > I am trying not to panic, but of course when it's bad like this I > think of MS or ALS. I have had two MRIs, NCV and EEG, all normal. > Have not had spinal tap or nerve biopsy. I did read on Mercola's > site that heavy metals will prevent nutrient absorption, so maybe my > magnesium isn't absorbing. > > Thanks, > Beth > > > > > > To everyone who has experienced the muscle twitches, when do > > the > > > darned things go away? I am doing everything I can tolerate to > > get > > > better, but I still have them every day, almost all day long. > > Last > > > night I woke up with them in my left foot, my toes were cramping > > and > > > going nuts. I have tried super malic, which makes them worse. > So > > > does this probably mean that I've still got heavy > metals/chemicals > > > moving around or does it mean that the nerves are still > misfiring > > > and need to be repaired? The tingling is better and mild mostly > > in > > > my left hand and foot; it's bearable I think. > > > I am still on supplements, doing occasional enemas, Epsom > > > salt/ginger detox baths, trying to eat organic when possible. > Am > > so > > > miserable; sorry to be a whiner. > > > Thanks, > > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Beth, I am so sorry you are still going through this. I had this same problem, I have told you. I was so worried it was ms for the longest time. Thank God for Patty, she pulled me through with some warm hearted messages at the time. And Crystal too with phone calls .She was going through the same thing. I got worse after explant with the numbness in my left foot, had me freaked out! if you went back around sept 2002 to about feb 2003 , and look at the posts you would see my messages are just like yours. It has gotten better. Alot of things resemble this. Hormones imbalance (like my thyroid meds not working, causing a fibro type situation-leading to more aggressive medication treatments) toxins, damage to nerves, magnesium or potassium imbalance, yeast. It may be a number of things combined, but it got worse after explant, then got better after some time. If it makes you feel better, my neuro doc told me if it were MS, (and does not believe it is, or ever will be) it would go in relapses , like every few months. Or worse case- if I had the progressive Multiple sclerosis, it would not remain only numbness in one foot for over 2 years, it would have went on to more damaging things. Like most are crippled by that time with progesssive. So the other types would not stay the same almost all the time, you are supossed to have relapses , something I did not have. The numbness was constant all the time. Worse in the morning in my left foot. It was so bad at one point, I stepped on a tac, and did not know it, until I heard the clacking on the wood floors! I was so scared! I was tested by 4 tests, twice for ms and ALS! I hope that makes you feel better. I am better now! the numbness is like only about 10% of what it was, and I know will be gone by next year, or worse case, if nerve damage is done-the same, but no worse. Keep detoxing, try to eliminate gluton products, or take a gliadon antibody test, as celiac conditions will do this, and mimic ms, and often come up (you become sensitive for a time) from surgery or a stressful event. Yeast like candida can also cause this, so take out all breads, peanuts and cheeses. So it can be so many other things! Keep up the good work. and know, that only God , hard work and time will heal! If you need too again, call me. We will chat. Love julie Message ----- From: bethlakey Sent: Friday, June 25, 2004 8:30 AM Subject: muscle twitches not going away To everyone who has experienced the muscle twitches, when do the darned things go away? I am doing everything I can tolerate to get better, but I still have them every day, almost all day long. Last night I woke up with them in my left foot, my toes were cramping and going nuts. I have tried super malic, which makes them worse. So does this probably mean that I've still got heavy metals/chemicals moving around or does it mean that the nerves are still misfiring and need to be repaired? The tingling is better and mild mostly in my left hand and foot; it's bearable I think. I am still on supplements, doing occasional enemas, Epsom salt/ginger detox baths, trying to eat organic when possible. Am so miserable; sorry to be a whiner. Thanks,Beth Quote Link to comment Share on other sites More sharing options...
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