Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 - Beth Boy do I know how you feel! That is why it is so very important to have support groups like this that validate our symptoms and give us great ideas to try. Think of it this way----I would rather NOT be diagnosed with something specific like MS. That way I always have more hope that I can get rid of it. The truth is, there are many many forms of autoimmune illness and it really doesnt matter what you name them (except for disabiltiy and I realize how important that is). What is important is reclaiming our health. Even if you were diagnosed with lupus, ms, rheumatoid arthritis, scleroderma, etc.--all of those diseases have no cure according to the medical establishment. They would most likely get you on some immune suppressants and do nothing to help you actually fight the problem. I find doing my own research has been far more helpful then getting a diagnosis. I was diagnosed with fms 20 years ago. In that 20 years I haven't been given one helpful medicine or piece of advice by mainstream docs. The more I research the more I become convinced that we are on the right track with juicing, cleansing, killing off pathogens, etc. The problem is that for most of us, it isn't a straight line from start to finish. We have many relapses, herxes, steps backwards, etc. But at the same time, most of us would acknowledge that we are moving inexorably forward. Sometimes almost unnoticably so!! Like you, I do many weird things my husband just shakes his head at. It really is kind of amusing. My kids think I am nuts. I drive an hour just to get a gallon or two of raw milk! I eat organic whenever I can and am always touting something they don't want to hear. Gratifying enough, now my 23 year old son has picked up my way of life. When we visited him in texas, he was shopping at the Whole Food store and taking supplements, etc. I was so proud!! Hang in there and continue to believe the best about your symptoms-- that you can and will get better over time!! By the way, I saw your pic in the photo section and you look so young, beautiful and healthy! Believe that you will someday feel as good as you look! Hugs, kathy -- In , " bethlakey " <bethlakey@y...> wrote: > Kathy, > > I will have to try the Kitty White! Great idea. I am also checking > into magnetic clay or mud baths, I figure why not. Could you tell > it was working for you? > > My husband looks at all my " stuff " and just shakes his head. I have > a section of the tub set aside for the epsom salts, ginger, etc. > Yesterday morning he walked over and picked up the ginger and said, > uh, Beth, why do you have Ginger on the tub? I just mumbled and > said something like it makes the bath feel better. I don't try to > explain anymore that Ginger is reported to help draw out toxins, > yadda yadda. > > It's so frustrating when you have symptoms of a disease like MS, but > can't get a diagnoses that is recognized by the medical community. > I kind of feel like Rodney Dangerfield when he used to say > he " couldn't get no respect. " > > hugs, > Beth > > > > > > > > - > > Beth > > Sorry to hear that your symptoms are increasing again. It can be > so > > frustrating---and scary at times. So much of this seems > cyclical. > > Most of the time I can't be sure why my symptoms return or get > worse > > than usual. But usually they get better again after a day or > > several days. Just wanted to tell you that I bought a far > infrared > > sauna about a year ago. While nice, it hasn't cured me or even > > stopped my muscle twitches. I was disappointed that I didn't see > > more results. I still use it quite a bit and I think it nice to > > have. Here is a good way to detox. tAke bentonite baths. the > > bentonite draws out toxins. I buy 100% clay kitty litter. Mine > is > > called Kitty White. I read about this on a candida site. I take > > about a cup or two and put it in the blender to make it more > fine. > > Then I soak for twenty minutes. It is definitely a detoxifier! > > In the past, when I took my anitibiotics to kill mycoplasma, I > would > > get more more numbing sensations, as well as other neurological > > symptom increase--muscle spasms, sensations like I couldn't lift > my > > arm, desensititation of my skin in general and many other strange > > things. I would get scared and think I was reacting to the doxy. > > But when I took olive leaf extract the same symptoms occurred. So > > it must be a herx. So hopefully your symptoms are herxes too. > Hang > > in there!! > > Hugs, > > kathy Quote Link to comment Share on other sites More sharing options...
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