Re: I'd like to share My visit to the GYN

August 4, 2004

,

Yeah for your husband and you!!! That's awesome....I agree that we should try to inform when we can, but boy, does it get frustrating dealing with pompous ass doctors who think they know it all and are very close minded. I have a few memories of those, and maybe I am less able to deal with it now....I used to want to show them all, (and I have sent regular updates to my explanting doc to let him know that yes, it was the implants), but I found that many times the energy felt wasted, and like I was beating against a brick wall. I decided to expend what energy I had into helping other women.

But I think what you did was way cool! You go girl and keep it up! I love the fact that your neurologist changed her new patient form! You are right...the only way these doctors are going to be able to figure it out is being presented with women like us who get better after implants, and we CAN PROVE the implants made us ill.

I still think we need to post your blood work results that show how everything got better after explant...what do you think?

PattyJOSEPH PALANCA <juliejp61@...> wrote:

Terry, that is pure crap and very condensating!I am so sorry you had to go through this. Sometimess, they can be so belittling .I was so sick of every doctor adimatatlly fighting me like I was a frickin bull over this. I mean, what is their issuewith this, do they own stock or what?! Then I fnally got sick of hearing it, made copies of all the studeis, incluing the NCCI increased cancer risk study, and brought a folder in with me to every apt. Inform them. If one argues with me, I was calmly say, here are some copies of some relevant studies and information on breast implants, included the moldy implants story out of glamour, and other studies. (Kacey has much more info now to show them, like the news releases and articles) Do you now some doctors called me back at home, 2 actually witrh questions, and were open to the topic? Only after reading it alone. Its like you cant realy talk level to level with them, esp on

this topic. And I had one doctor that would not take the stdies, he refused, and I said " you will be dealing with more and more of saline breast implanted women ,dont you want to see this?" He wouldnt. SO I mailed them to him, and he mailed them right back unread. jerk a**! But I will say this, if you talk calmly, and leave literature, it opens them up to the possiblity. This may help other patients in the future, with care , advise and proper medical blood tests. I know you think you are fighting a losing battle and just to stay quite, but Terry get mad about it! Thats why there is so little info out there, and I was treated like a leopor and didnt get help until I found this site. The more doctors informed, the better we are. I found it to be my responsibilty. I think all my arguing and looking crazy, then learning not to argue or debate, but bring up valid points and leave info has done incredible things.My neurologist

now has on her previous medical list for all new patients, question number two added: Have you ever had silicone implants, or saline breast implants, and for how long? Have had them removed, if so when?Do you attribute any symptoms after having the implants? If so, which symptoms, list seperatly .

That is so awesome. She is watchling cosely at her simular cases, and believes that salines are casuing a lyme like disease, in which mimics ms. She firmly believes I was very ill from saline breast implants after hearing me! And is a well known specialist for neurological diseases, and had never seen my issues all mixed like before, like a mixed ms dieases, and was very intertested in all the studies, in fact I still email her most of the new stidies I find here. Dont ever feel like you are losing a battle, or that you may look crazy. Ask that doc if the probabitly of you rejecting an organ and becoming ill is real, why isnt a foreign object such as an implant capable...You have been through hell, and the more women he hears like you, the more it may stick in his head to start being open.

I am so mad hearing this. I know I went through. I had a rhuemie (the worst in my mind) after telling me I had Hashimotos' ntos and Rheuamtoid arthritis at the age of 26-tell me that I was just a "sick girl", and to deal with it! He never wanted to hear about the implants again, Period. If I did bring it up again, he would no longer seem me! I was astonded! my hubby had to speak for me, I was os shocked-and he did very loudly! He told him, we would get them out, I was too young to be so ill, I wasnt crazy, and he was a pompous a** not to be open to the possibility! Let me tell you, that doc was speechless.Jerk/ I still send him studies in the mail. Ha ha

8" <Dimonds6881@...> >Reply- > >Subject: I'd like to share My visit to the GYN >Date: Wed, 04 Aug 2004 03:37:29 -0000 > > Today I went to a new GYN. Seems like I am always at the GYN. I am >there so often, I wish I was dating one! LOL Anyway, I suspected an >infection of some sort. Before the exam, he asked me of my problem, >diseases, ect. I told him I had FMS, he did not know what it was, so >I said it is an 'autoimmune type disorder', that effects my muscles >and joints with fatigue. I kept it simple. He had asked me if I ever >had SURGERY. I said NO, hoping he would not do a breast exam >(sometimes they don't). Anyway, he did a breast exam, and asked if I >had a reduction(that is a bit of an understatement, scince I look >like a 12 year old, lying down.LOL). Anyway, I said I had implants >removed with a lift(again, I kept it simple).

He asked did you have >problems? And I said yes( I did not state what kind) I figured that >would be that. WELL, he went into this whole speech. 'you know that >there is no scientific evidence that implants cause autoimmune >disorders'. Then he asked 'what kind did I have salines or >silicone?". I said salines. He repeated well there is no scientific >data that Silicone gels or salines give woman autoimmune >diseases'. 'They took the gels off the market with no Scientific >data, just by 'hearsay'. "It is like this women get these autoimmune >diseases because when they get them, they are in their childbearing >years, and that is when women get autoimmune illness'. I was >like 'yeah'. I basically just "yessed him to death', and tuned him >out. I DID not even say, I think I got sick because of implants, for >all he knows, I could of had capsular contraction. I just wanted my >exam and meds for my crotch, I was NOT there to talk about the

>politics of implants! I was not even thinking implants! I thought I >was being the better person 'by tuning his stupidity out'. BUT now I >am finding myself very hostile and bitter over the whole thing. 'I >think that VERY unprofessional of him to start talking about that??? >Who the hell is he??? I feel like I should have said 'don't you feel >that this is off the subject, and isn't your department vaginal???? >What is up with that? I am trying to 'let go of my anger', I needed >to vent, so I came here. Sorry I really needed to get this out, and >come to a place where people may understand. I don't know why it >really got to me after I got home. I almost said to myself, maybe I >never did get sick from the implants, maybe I would have gotten sick >anyway? I mean how many times have I heard 'it was not my implants' >that made me sick????? Sometimes I feel like I am crazy, or should I >say the world is crazy, and I am 'sane'. Anyway, I feel

a bit better >venting, and I guess I am kind of proud of myself for not going 'off >on him' and wasting my energy. If I were well, and it was 5 years >ago, well, that could have been a scene. I wish I had an outlet for >my anger at times. I used to box and kickbox, and if something or >someone bothered me, a few hours in the gym and I would be ok. I >guess as my boyfriend would say 'Anger is really just fustration'. I >think he is right. I would say, 'anger is one letter short of >danger'. Anyway, thanks for letting me come here. Sometimes I feel >so alone. peace,hugs and health to everyone TERRY PS. On a good >note, he did a swab test, and I had a high bacteria count. So I got >my meds for a bacterial infection. > > > >

August 4, 2004

Patty, i have to find it! i have looked through my labs, and my medical stuff... I dont know if when showing my labs to mercola, or another docs...hmmm- he made copy and didnt retun it to me or what .But i want to get that lab result back, as it shows my ANA went away, and my thyroid antibodies went from 12,000 to 70 after explant-in two weeks.

As for the docs- I dont care about fighting up against the wall, I am such a pistol on this! I was excluded, and repremanded by so many docs, I am realy still upset over the way I was treated. If I had listened, as so many do-what would have happened to me and my deteriating health? They should at least be open that there is a probablity,as we just dont know enough yet. They dont even have to agree with me, just listen, know the facts, and be open, that maybe...

I know what you are saying, some of them are looking into glass, nothing. It is so frustrating... I also tell many "we are so based in the medical field on bacteria,antibiotics, ect. Cleansers, wipes, towels, everything. (although I think its out of proportion) We know that thse things cause sickness, diseases. So why is hard to find that a salty, warm dark bag of water, set the silicone isuue to the side at best, could be filled with many orgainsims and infections, capable of wreaking havoc on our bodies? " That ususally get them. I tell them to put a baggie with salt water under a heated towel in their dark cupboard for a few years. Now I say'would you put that in your body?

I know I drive alot of them crazy, maybe Im radical to them- hell I think they are radical- but I also have some very smart doctors looking into this now, who have repect for me in a way I never thought. I had my neurologist over last winter for a Christmas Dinner. My hubby's like "Doctor so and so called-this is nuts they call you ! "But bigger than that- they may have respect for this very real issue in future. So that is the hope. Docs see far more many ill women than we ever will, so we have to try. Just go easy, and informative, and if they cut you off, leave info for them to look through.Most will -

>From: Tricia Trish <glory2glory1401@...> >Reply- > >Subject: RE: I'd like to share My visit to the GYN >Date: Wed, 4 Aug 2004 09:12:39 -0700 (PDT) > >, >Yeah for your husband and you!!! That's awesome....I agree that we should try to inform when we can, but boy, does it get frustrating dealing with pompous ass doctors who think they know it all and are very close minded. I have a few memories of those, and maybe I am less able to deal with it now....I used to want to show them all, (and I have sent regular updates to my explanting doc to let him know that yes, it was the implants), but I found that many times the energy felt wasted, and like I was beating against a brick wall. I decided to expend what energy I had into helping other women. > >But I think what you did was way cool! You go girl and keep it up! I love the fact that your neurologist changed her new patient form! You are right...the only way these doctors are going to be able to figure it out is being presented with women like us who get better after implants, and we CAN PROVE the implants made us ill. > >I still think we need to post your blood work results that show how everything got better after explant...what do you think? >Patty > >JOSEPH PALANCA <juliejp61@...> wrote: > >Terry, that is pure crap and very condensating!I am so sorry you had to go through this. Sometimess, they can be so belittling .I was so sick of every doctor adimatatlly fighting me like I was a frickin bull over this. I mean, what is their issuewith this, do they own stock or what?! Then I fnally got sick of hearing it, made copies of all the studeis, incluing the NCCI increased cancer risk study, and brought a folder in with me to every apt. Inform them. If one argues with me, I was calmly say, here are some copies of some relevant studies and information on breast implants, included the moldy implants story out of glamour, and other studies. (Kacey has much more info now to show them, like the news releases and articles) Do you now some doctors called me back at home, 2 actually witrh questions, and were open to the topic? Only after reading it alone. Its like you cant realy talk level to level with them, esp on this topic. And I had one doctor that would not take the stdies, > he refused, and I said " you will be dealing with more and more of saline breast implanted women ,dont you want to see this?" He wouldnt. SO I mailed them to him, and he mailed them right back unread. jerk a**! >But I will say this, if you talk calmly, and leave literature, it opens them up to the possiblity. This may help other patients in the future, with care , advise and proper medical blood tests. I know you think you are fighting a losing battle and just to stay quite, but Terry get mad about it! Thats why there is so little info out there, and I was treated like a leopor and didnt get help until I found this site. The more doctors informed, the better we are. I found it to be my responsibilty. I think all my arguing and looking crazy, then learning not to argue or debate, but bring up valid points and leave info has done incredible things.My neurologist now has on her previous medical list for all new patients, question number two added: Have you ever had silicone implants, or saline breast implants, and for how long? Have had them removed, if so when?Do you attribute any symptoms after having the implants? If so, which symptoms, list seperatly . > >That is so awesome. She is watchling cosely at her simular cases, and believes that salines are casuing a lyme like disease, in which mimics ms. She firmly believes I was very ill from saline breast implants after hearing me! And is a well known specialist for neurological diseases, and had never seen my issues all mixed like before, like a mixed ms dieases, and was very intertested in all the studies, in fact I still email her most of the new stidies I find here. Dont ever feel like you are losing a battle, or that you may look crazy. Ask that doc if the probabitly of you rejecting an organ and becoming ill is real, why isnt a foreign object such as an implant capable...You have been through hell, and the more women he hears like you, the more it may stick in his head to start being open. > >I am so mad hearing this. I know I went through. I had a rhuemie (the worst in my mind) after telling me I had Hashimotos' ntos and Rheuamtoid arthritis at the age of 26-tell me that I was just a "sick girl", and to deal with it! He never wanted to hear about the implants again, Period. If I did bring it up again, he would no longer seem me! I was astonded! my hubby had to speak for me, I was os shocked-and he did very loudly! He told him, we would get them out, I was too young to be so ill, I wasnt crazy, and he was a pompous a** not to be open to the possibility! Let me tell you, that doc was speechless.Jerk/ I still send him studies in the mail. Ha ha > > > >8" <Dimonds6881@...> >Reply- > >Subject: I'd like to share My visit to the GYN >Date: Wed, 04 Aug 2004 03:37:29 -0000 > > Today I went to a new GYN. Seems like I am always at the GYN. I am >there so often, I wish I was dating one! LOL Anyway, I suspected an >infection of some sort. Before the exam, he asked me of my problem, >diseases, ect. I told him I had FMS, he did not know what it was, so >I said it is an 'autoimmune type disorder', that effects my muscles >and joints with fatigue. I kept it simple. He had asked me if I ever >had SURGERY. I said NO, hoping he would not do a breast exam >(sometimes they don't). Anyway, he did a breast exam, and asked if I >had a reduction(that is a bit of an understatement, scince I look >like a 12 year old, lying down.LOL). Anyway, I said I had implants >removed with a lift(again, I kept it simple). He asked did you have >problems? And I said yes( I did not > state what kind) I figured that >would be that. WELL, he went into this whole speech. 'you know that >there is no scientific evidence that implants cause autoimmune >disorders'. Then he asked 'what kind did I have salines or >silicone?". I said salines. He repeated well there is no scientific >data that Silicone gels or salines give woman autoimmune >diseases'. 'They took the gels off the market with no Scientific >data, just by 'hearsay'. "It is like this women get these autoimmune >diseases because when they get them, they are in their childbearing >years, and that is when women get autoimmune illness'. I was >like 'yeah'. I basically just "yessed him to death', and tuned him >out. I DID not even say, I think I got sick because of implants, for >all he knows, I could of had capsular contraction. I just wanted my >exam and meds for my crotch, I was NOT there to talk about the >politics of implants! I was not even thinking implants! I thought I >was being the better person 'by > tuning his stupidity out'. BUT now I >am finding myself very hostile and bitter over the whole thing. 'I >think that VERY unprofessional of him to start talking about that??? >Who the hell is he??? I feel like I should have said 'don't you feel >that this is off the subject, and isn't your department vaginal???? >What is up with that? I am trying to 'let go of my anger', I needed >to vent, so I came here. Sorry I really needed to get this out, and >come to a place where people may understand. I don't know why it >really got to me after I got home. I almost said to myself, maybe I >never did get sick from the implants, maybe I would have gotten sick >anyway? I mean how many times have I heard 'it was not my implants' >that made me sick????? Sometimes I feel like I am crazy, or should I >say the world is crazy, and I am 'sane'. Anyway, I feel a bit better >venting, and I guess I am kind of proud of myself for not going 'off >on him' and wasting my energy. If I were well, and it was 5 > years >ago, well, that could have been a scene. I wish I had an outlet for >my anger at times. I used to box and kickbox, and if something or >someone bothered me, a few hours in the gym and I would be ok. I >guess as my boyfriend would say 'Anger is really just fustration'. I >think he is right. I would say, 'anger is one letter short of >danger'. Anyway, thanks for letting me come here. Sometimes I feel >so alone. peace,hugs and health to everyone TERRY PS. On a good >note, he did a swab test, and I had a high bacteria count. So I got >my meds for a bacterial infection. > > > >

August 4, 2004

's right--arm yourself with studies and data. If you give them data and studies and they still reject you, REJECT THEM. Don't patronize such doctors and give them your hard earned $$$$$$$$$$$$$$$.You're a consumer--use your power. If they snooze, let them loose-- your business.

I personally have not been confronted with such an issue--doctor being closed off to what I have read(studies/data), be it on implants or (mostly) hair loss. But it would piss me off if it did.

LMJOSEPH PALANCA <juliejp61@...> wrote: