Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 : Your Indiana doc sounds good.Is he an endo? Does he use bioidentical hormones? The doc I saw in Beverly Hills was a follower. I don't like that--he nearly killed me as was stated by the ER docs at GWU. I still keep an eye on my thyroid and look for changes. I had a rapid heart beat for 2 months after going hyper. I'm OK now--that was back in 02.My heart rate is normal and only increases with exercises and panic--the goes back to normal. My current endo thinks outside the box and does not think I have any hormone issue besides the progesterone thing. I'm going on yam-derived low dose oral progesterone starting next month. I'm starting slow and will increase the dose only if needed. When the time comes, if I should need it. I'll take bioidentical estrogen too--Estriol. Are you on estrogen? Progesterone? I'd like to see more data on bioidenticals but for now I'm willing to risk the oral progesterone going slowly because my PMS is sheer hell. Hugs, LMJOSEPH PALANCA <juliejp61@...> wrote: Marie, I totally agree with you. Thyroid hormones are very potent stuff. You have to be going to a very good doctor. I have read 's book and almost went on the therapy, but didn’t like how fast you go up on t3. I am seeing this thyroid specialist every 4 weeks for a very in depth physical exam. Only then, does he move me up on the meds. I also have his home phone if any thing, like heart palipations occur. He is going very slow on upping my meds (esp t3) as you are right, they have to be watched. Up until now, I am showing very slow metabolic responses. I think Dr Lowe is very careful as well. You have to have tons of blood work and screenings done to see if your body can handle it, or if there is another component, like cortisol excess displaying the same symptoms that need to be addressed. If done properly, it can be a lifesaver. Love julie ---- Original Message ----- From: Jane Doe Sent: Wednesday, August 11, 2004 4:05 PM Subject: Re: Re: FMS--Dr. Lowe and All: Dr. Lowe's site is very interesting. I am a believer that one can have hypothyroidism and be in the TSH "normal range".I know a few women who had TSHs between 3.0-4.0 (technically in that normal range) who's lives/health have improved greatly with appropriate thyroid meds. So there is no doubt that physicians need to think outside the box when it comes to thyroid therapy--and all conditions for that matter. I would also agree with Lowe that if a patient exhibits signs/symptoms of hypothyroidism a carefully monitored (telling patients what harmful side effects may occur) trial run of thyroid therapy would be warranted providing the doctor goes about this therapy and exercises great caution. If a patient's body rejects a very low doses of meds, their body does not need this thyroid medication and the therapy should cease at this point.The problem is with some dangerous practitioners out there, this is not always the case: they "force" thyroid meds on folks and this often results in trips to the ER or even worse--death (as in the case litigated in Fla.). I made the near fatal mistake of going to a " type" MD and he tried to "force" my body to "accept" thyroid meds it clearly did not want. I could have died. After just consuming a half grain T3 T4 for two days, then dropping down to a 1/4 for five days, I ended up in the ER. When my symptoms first began--nearly straight away, I had contacted this doc immediately with symptoms of heart palps, bone-growing sensation, eyeball popping sensation, extreme jitters and shakes, shortness of breath, inability to sit still or sleep.He told me to take Xanax and allow my body to "except" the thyroid meds. His belief is the "popular" belief than any TSH over 2.0 is hypothyroidism. I had dry skin, hair loss from surgery so he took a leap from that and decided I was hypothyroid.Very shallow thinking, not to mention dangerous. If anyone's thyroid is normal or not, know the signs of going hyper BEFORE beginning any thyroid treatment. If you react badly to a low LOW does of T3 and/or T4, chances are you never needed the meds to begin with. It is worth trying to rule out this disease--just be careful to avoid the hoopla and take only YOUR individual situation into account because your life may very well depend on it as mine did and other people I know who were wrongfully diagnosed/medicated. A good doctor will be very careful and proceed with EXTREME CAUTION. Have your thyroid checked regularly. LMJOSEPH PALANCA <juliejp61@...> wrote: I was told i had FMS, as I had all aymptoms, and 11 of the 18 trigger points by a rheumy and a chiropracter. I was told this with my implants in, and shortly after. Since doing Dr Lowe's metabolic program www.drlowe.com with higher thyroid meds(esp t3) to overcome cellular resitance, and myofasial massage to the tender points by a chiro- almost all fms sympotoms are gone, and I only have two tender points left. Dr Lowe believes most FMS cases are due to under regulation of thyroid hormones, whether or not blood work shows it.He has a huge wellness center based on Fibromyalgia, and has dealt with FMS for years, and written two books on metabolic issues and FMS. If you have FMS, I would just look into it, very informative. >From: jaylow2100@... >Reply- > >Subject: Re: Re: FMS-- >Date: Wed, 11 Aug 2004 12:08:23 EDT > >Hi , > >I have a pretty bad case of FMS but am slowly getting better. It came on >strong about two years ago right before I had my implants out. Since then I have >been up and down with it. Somedays I am in a lot of pain and some days not >so bad. I am currently getting a pretty wierd treatment but it seems to be >working better than anything else I have done. I have detoxed to the max. > >I am now getting bee venom treatments. I am lucky to have a practioner here >that does it. She takes out the stinger from bees and gently taps them into >different acupuncture points. The venom (also the pollen, royal jelly and >propolis) all have strong anti inflammatory properties and strong anti bacterial, >anti viral and anti fungal properties as well. I did some research and this >has been used as a treatment for arthritis and rhuematism for centuries. It >was used extensively in the US before the advent of steroids. > >My lady went to Japan to study this treatment BUT there are apitheripists all >over the country who will give you bee venom treatments. If you go on line >you can find them through the apitherapy website. I have had three treatment >so far and feel a lot less achy and the extreme back pain has lessened >considerably. I am going to go for at least three months. This lady treats a lot of >MS patients and says that it takes a long time but some actually go into >remission. > >I have talked to a few of her FMS patients and they say they have improved >immensely. >You have to make sure you are not allergic to bees though before you start. I >feel good about this because it is totally natural and does not have the side >effects of anti inflammatory pain drugs and steroids. > >Love to all, >Judi L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Marie yes, he is an endo. And really is outside of the box. He wont go on blood results in all cases. Like mine for instance, states for the last 6 months, and what I have been on, that I should be extremly hyper. No symptoms of that. No rapid heart beats, sweating ,headaches, no hair loss. Actually, hair is growing so long and shiny now. I have more energy, and sleep better too. So with me, he knows although it is floating around in the blood, it isn't be properly assimulated for use within the cells. He is trying to override it. I am also told to get myscofacial therapy to 'open up the muscles and tissues" you could say. Workout every day, take mag/cal chelated supps, a multi vitamin, and yes, he still has me on progesterone. He is a MD. Actually, my adrenals were producing high amounts of cortisol, even at night for a while, but he asked me to go off a adrenal support formula, (which seemed to be helping) and take the right amount thyroid, as once that is in balance, the body wont surge on cortisol ,trying to create a faster metabolism. All hormones work together, but the thyroid is considered the master gland, If that it out of whack, your progesterone will be depleted, from over amounts of cortisol eating it up. Sending you into-estrogen dominance! Big step by step process, as you can see. So, I stopped taking it, and my adrenal functions are perfect now, as I have upped my thyroid. Great, as I save on not having to buy/take that! I kept insisting to other docs I felt very hypothyroid. None would listen. None. my labs were fine. but I felt terrible. I almost went to Dr Lowe, as I had all the symptoms of impaired metabolism. Dr Manakas was a god send and has helped me dramatically within the short 6 months of seeing him, doing treatment close to Dr Lowe's with the correct amount of cytomel (T3) and T4 upped slowly , but often higher than normal, to get to the level of a normal functioning metabolism. Re: Re: FMS-- >Date: Wed, 11 Aug 2004 12:08:23 EDT > >Hi , > >I have a pretty bad case of FMS but am slowly getting better. It came on >strong about two years ago right before I had my implants out. Since then I have >been up and down with it. Somedays I am in a lot of pain and some days not >so bad. I am currently getting a pretty wierd treatment but it seems to be >working better than anything else I have done. I have detoxed to the max. > >I am now getting bee venom treatments. I am lucky to have a practioner here >that does it. She takes out the stinger from bees and gently taps them into >different acupuncture points. The venom (also the pollen, royal jelly and >propolis) all have strong anti inflammatory properties and strong anti bacterial, >anti viral and anti fungal properties as well. I did some research and this >has been used as a treatment for arthritis and rhuematism for centuries. It >was used extensively in the US before the advent of steroids. > >My lady went to Japan to study this treatment BUT there are apitheripists all >over the country who will give you bee venom treatments. If you go on line >you can find them through the apitherapy website. I have had three treatment >so far and feel a lot less achy and the extreme back pain has lessened >considerably. I am going to go for at least three months. This lady treats a lot of >MS patients and says that it takes a long time but some actually go into >remission. > >I have talked to a few of her FMS patients and they say they have improved >immensely. >You have to make sure you are not allergic to bees though before you start. I >feel good about this because it is totally natural and does not have the side >effects of anti inflammatory pain drugs and steroids. > >Love to all, >Judi L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 : Hi. Your doc sounds really good. Is he near Indianapolis? I had an apt. downtown Indy that I recently gave up and I'm on a wait list to get another downtown place. Maybe this guy would be worth seeing? It's good that he does not diagnose you based on what blood tests show but rather HOW YOU FEEL. Tell me more about him--does he taken insurance, treat PMS? I wonder if he's associated with WIP? Thanks! LM JOSEPH PALANCA <juliejp61@...> wrote: Marie yes, he is an endo. And really is outside of the box. He wont go on blood results in all cases. Like mine for instance, states for the last 6 months, and what I have been on, that I should be extremly hyper. No symptoms of that. No rapid heart beats, sweating ,headaches, no hair loss. Actually, hair is growing so long and shiny now. I have more energy, and sleep better too. So with me, he knows although it is floating around in the blood, it isn't be properly assimulated for use within the cells. He is trying to override it. I am also told to get myscofacial therapy to 'open up the muscles and tissues" you could say. Workout every day, take mag/cal chelated supps, a multi vitamin, and yes, he still has me on progesterone. He is a MD. Actually, my adrenals were producing high amounts of cortisol, even at night for a while, but he asked me to go off a adrenal support formula, (which seemed to be helping) and take the right amount thyroid, as once that is in balance, the body wont surge on cortisol ,trying to create a faster metabolism. All hormones work together, but the thyroid is considered the master gland, If that it out of whack, your progesterone will be depleted, from over amounts of cortisol eating it up. Sending you into-estrogen dominance! Big step by step process, as you can see. So, I stopped taking it, and my adrenal functions are perfect now, as I have upped my thyroid. Great, as I save on not having to buy/take that! I kept insisting to other docs I felt very hypothyroid. None would listen. None. my labs were fine. but I felt terrible. I almost went to Dr Lowe, as I had all the symptoms of impaired metabolism. Dr Manakas was a god send and has helped me dramatically within the short 6 months of seeing him, doing treatment close to Dr Lowe's with the correct amount of cytomel (T3) and T4 upped slowly , but often higher than normal, to get to the level of a normal functioning metabolism. Re: Re: FMS-- >Date: Wed, 11 Aug 2004 12:08:23 EDT > >Hi , > >I have a pretty bad case of FMS but am slowly getting better. It came on >strong about two years ago right before I had my implants out. Since then I have >been up and down with it. Somedays I am in a lot of pain and some days not >so bad. I am currently getting a pretty wierd treatment but it seems to be >working better than anything else I have done. I have detoxed to the max. > >I am now getting bee venom treatments. I am lucky to have a practioner here >that does it. She takes out the stinger from bees and gently taps them into >different acupuncture points. The venom (also the pollen, royal jelly and >propolis) all have strong anti inflammatory properties and strong anti bacterial, >anti viral and anti fungal properties as well. I did some research and this >has been used as a treatment for arthritis and rhuematism for centuries. It >was used extensively in the US before the advent of steroids. > >My lady went to Japan to study this treatment BUT there are apitheripists all >over the country who will give you bee venom treatments. If you go on line >you can find them through the apitherapy website. I have had three treatment >so far and feel a lot less achy and the extreme back pain has lessened >considerably. I am going to go for at least three months. This lady treats a lot of >MS patients and says that it takes a long time but some actually go into >remission. > >I have talked to a few of her FMS patients and they say they have improved >immensely. >You have to make sure you are not allergic to bees though before you start. I >feel good about this because it is totally natural and does not have the side >effects of anti inflammatory pain drugs and steroids. > >Love to all, >Judi L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 LM, Hey i wonder if that is the male Doctor I almost made an appt with last year, in Indianapolis. Icant remeber his name. Manakas is a MD, he takes all types of insurance, I dont know if he is WIP associated. You know, I did call earlier this morning, (as I did blood work and needed to know if I had to fast-duh!) and hes not even a endo!He is an MD that got into metabolic disorders about 15 years ago, as he came about seeing that a low thyroid would be the case in almost all his chronically ill patients. It was very cvommon, and very overlooked. Whether, patients were undertreated, or not at all, they werent getting well until that was addressed. So he really got into this issue, and also goes to seminars and has read many books.Believe me, he knows his stuff. He also gets into hormones -although honestly, i dont know how much. He addresses the progesterone thing, and adrenal issues with me. I guess, metabolism is like his specialty now. Ill tell you one thing- he's better than any endo I have been too. I call them number docs. If your numbers are ok, you are too. Out the door you go.Fat, hairless and sad. Love (PS- I would say it is an hour from Indianapolis. ) >From: Jane Doe <oceanlilly_csu@...> >Reply- > >Subject: Re: Re: FMS--Dr. Lowe-- >Date: Thu, 12 Aug 2004 17:15:28 -0700 (PDT) > >: >Hi. Your doc sounds really good. Is he near Indianapolis? I had an apt. downtown Indy that I recently gave up and I'm on a wait list to get another downtown place. Maybe this guy would be worth seeing? >It's good that he does not diagnose you based on what blood tests show but rather HOW YOU FEEL. > >Tell me more about him--does he taken insurance, treat PMS? I wonder if he's associated with WIP? > >Thanks! >LM > > > >JOSEPH PALANCA <juliejp61@...> wrote: > Marie yes, he is an endo. And really is outside of the box. He wont go on blood results in all cases. Like mine for instance, states for the last 6 months, and what I have been on, that I should be extremly hyper. No symptoms of that. No rapid heart beats, sweating ,headaches, no hair loss. Actually, hair is growing so long and shiny now. I have more energy, and sleep better too. So with me, he knows although it is floating around in the blood, it isn't be properly assimulated for use within the cells. He is trying to override it. I am also told to get myscofacial therapy to 'open up the muscles and tissues" you could say. Workout every day, take mag/cal chelated supps, a multi vitamin, and yes, he still has me on progesterone. He is a MD. >Actually, my adrenals were producing high amounts of cortisol, even at night for a while, but he asked me to go off a adrenal support formula, (which seemed to be helping) and take the right amount thyroid, as once that is in balance, the body wont surge on cortisol ,trying to create a faster metabolism. All hormones work together, but the thyroid is considered the master gland, If that it out of whack, your progesterone will be depleted, from over amounts of cortisol eating it up. Sending you into-estrogen dominance! Big step by step process, as you can see. So, I stopped taking it, and my adrenal functions are perfect now, as I have upped my thyroid. >Great, as I save on not having to buy/take that! >I kept insisting to other docs I felt very hypothyroid. None would listen. None. my labs were fine. but I felt terrible. I almost went to Dr Lowe, as I had all the symptoms of impaired metabolism. Dr Manakas was a god send and has helped me dramatically within the short 6 months of seeing him, doing treatment close to Dr Lowe's with the correct amount of cytomel (T3) and T4 upped slowly , but often higher than normal, to get to the level of a normal functioning metabolism. Re: Re: FMS-- >Date: Wed, 11 Aug 2004 12:08:23 EDT > >Hi , > >I have a pretty bad case of FMS but am slowly getting better. It came on >strong about two years ago right before I had my implants out. Since then I have >been up and down with it. Somedays I am in a lot of pain and some days not >so bad. I am currently getting a pretty wierd treatment but it seems to be >working better than anything else I have done. I have detoxed to the max. > >I am now getting bee venom treatments. I am lucky to have a practioner here >that does it. She takes out the stinger from bees and gently taps them into >different acupuncture points. The venom (also the pollen, royal jelly and >propolis) all have strong anti inflammatory properties and strong anti bacterial, >anti viral and anti fungal properties as well. I did some research and this >has been used as a > treatment for arthritis and rhuematism for centuries. It >was used extensively in the US before the advent of steroids. > >My lady went to Japan to study this treatment BUT there are apitheripists all >over the country who will give you bee venom treatments. If you go on line >you can find them through the apitherapy website. I have had three treatment >so far and feel a lot less achy and the extreme back pain has lessened >considerably. I am going to go for at least three months. This lady treats a lot of >MS patients and says that it takes a long time but some actually go into >remission. > >I have talked to a few of her FMS patients and they say they have improved >immensely. >You have to make sure you are not allergic to bees though before you start. I >feel good about this because it is totally natural and does not have the side >effects of anti inflammatory pain drugs and steroids. > >Love to all, >Judi L > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 : Hi. The guy who nearly killed me is not in Indy, but Beverly Hills and Torrence, Ca. Manakas sounds very good. Perhaps I'll give him a ring if I don't get anywhere with my rheumy next month and this endo I'm seeing in Bethesda, MD. Thanks for you help. Have a great weekend--enjoy! LMJOSEPH PALANCA <juliejp61@...> wrote: LM, Hey i wonder if that is the male Doctor I almost made an appt with last year, in Indianapolis. Icant remeber his name. Manakas is a MD, he takes all types of insurance, I dont know if he is WIP associated. You know, I did call earlier this morning, (as I did blood work and needed to know if I had to fast-duh!) and hes not even a endo!He is an MD that got into metabolic disorders about 15 years ago, as he came about seeing that a low thyroid would be the case in almost all his chronically ill patients. It was very cvommon, and very overlooked. Whether, patients were undertreated, or not at all, they werent getting well until that was addressed. So he really got into this issue, and also goes to seminars and has read many books.Believe me, he knows his stuff. He also gets into hormones -although honestly, i dont know how much. He addresses the progesterone thing, and adrenal issues with me. I guess, metabolism is like his specialty now. Ill tell you one thing- he's better than any endo I have been too. I call them number docs. If your numbers are ok, you are too. Out the door you go.Fat, hairless and sad. Love (PS- I would say it is an hour from Indianapolis. ) >From: Jane Doe <oceanlilly_csu@...> >Reply- > >Subject: Re: Re: FMS--Dr. Lowe-- >Date: Thu, 12 Aug 2004 17:15:28 -0700 (PDT) > >: >Hi. Your doc sounds really good. Is he near Indianapolis? I had an apt. downtown Indy that I recently gave up and I'm on a wait list to get another downtown place. Maybe this guy would be worth seeing? >It's good that he does not diagnose you based on what blood tests show but rather HOW YOU FEEL. > >Tell me more about him--does he taken insurance, treat PMS? I wonder if he's associated with WIP? > >Thanks! >LM > > > >JOSEPH PALANCA <juliejp61@...> wrote: > Marie yes, he is an endo. And really is outside of the box. He wont go on blood results in all cases. Like mine for instance, states for the last 6 months, and what I have been on, that I should be extremly hyper. No symptoms of that. No rapid heart beats, sweating ,headaches, no hair loss. Actually, hair is growing so long and shiny now. I have more energy, and sleep better too. So with me, he knows although it is floating around in the blood, it isn't be properly assimulated for use within the cells. He is trying to override it. I am also told to get myscofacial therapy to 'open up the muscles and tissues" you could say. Workout every day, take mag/cal chelated supps, a multi vitamin, and yes, he still has me on progesterone. He is a MD. >Actually, my adrenals were producing high amounts of cortisol, even at night for a while, but he asked me to go off a adrenal support formula, (which seemed to be helping) and take the right amount thyroid, as once that is in balance, the body wont surge on cortisol ,trying to create a faster metabolism. All hormones work together, but the thyroid is considered the master gland, If that it out of whack, your progesterone will be depleted, from over amounts of cortisol eating it up. Sending you into-estrogen dominance! Big step by step process, as you can see. So, I stopped taking it, and my adrenal functions are perfect now, as I have upped my thyroid. >Great, as I save on not having to buy/take that! >I kept insisting to other docs I felt very hypothyroid. None would listen. None. my labs were fine. but I felt terrible. I almost went to Dr Lowe, as I had all the symptoms of impaired metabolism. Dr Manakas was a god send and has helped me dramatically within the short 6 months of seeing him, doing treatment close to Dr Lowe's with the correct amount of cytomel (T3) and T4 upped slowly , but often higher than normal, to get to the level of a normal functioning metabolism. Re: Re: FMS-- >Date: Wed, 11 Aug 2004 12:08:23 EDT > >Hi , > >I have a pretty bad case of FMS but am slowly getting better. It came on >strong about two years ago right before I had my implants out. Since then I have >been up and down with it. Somedays I am in a lot of pain and some days not >so bad. I am currently getting a pretty wierd treatment but it seems to be >working better than anything else I have done. I have detoxed to the max. > >I am now getting bee venom treatments. I am lucky to have a practioner here >that does it. She takes out the stinger from bees and gently taps them into >different acupuncture points. The venom (also the pollen, royal jelly and >propolis) all have strong anti inflammatory properties and strong anti bacterial, >anti viral and anti fungal properties as well. I did some research and this >has been used as a > treatment for arthritis and rhuematism for centuries. It >was used extensively in the US before the advent of steroids. > >My lady went to Japan to study this treatment BUT there are apitheripists all >over the country who will give you bee venom treatments. If you go on line >you can find them through the apitherapy website. I have had three treatment >so far and feel a lot less achy and the extreme back pain has lessened >considerably. I am going to go for at least three months. This lady treats a lot of >MS patients and says that it takes a long time but some actually go into >remission. > >I have talked to a few of her FMS patients and they say they have improved >immensely. >You have to make sure you are not allergic to bees though before you start. I >feel good about this because it is totally natural and does not have the side >effects of anti inflammatory pain drugs and steroids. > >Love to all, >Judi L > > > Quote Link to comment Share on other sites More sharing options...
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