Re: Implants-LM and anyone else who cares-Gayle

[Guest guest]

Gayle:

Thank you!

Please e-mail me privately and we can discuss this further. oceanlilly_csu@...

Take Care,

-Marieqiessence <qiessence@...> wrote:

I would be happy to speak on the issue of mastectomyreconstruction - implants vs. other modalities...I had amastectomy and was forced to decide between saline andsilicone...yes, silicone. No other options were'available' to me. At this time silicone can ONLY be usedin a case of breast cancer, but if 'some' plastic surgeonshave their way, silicone would be back on the market forall.Gayle--- Jane Doe wrote:> :> Hi. I'd like to do something about mastopexy education in> a big way but don't know how to go about this exactly. I> need your help.> Of all of the women I met on line AOL chat mostly, their> premise for seeking BA or having undergone a BA procedure> has been by and large, due to ptosis. I'd like to address> this issue both on and off the group.

I feel if their was> more education out there on alternatives to BA, there> would be less of them. As for the issue of small breasts,> I think women are lucky to be born small breasted but> many might disagree with that so this topic is not so> convincing I'm afraid.> As for survivors of breast cancer,truthfully, I'd feel> uncomfortable dissuading women in this situation who have> been mastectomized. I feel I'd be speaking out of school> on this issue. For that reason, I feel most comfortable> and feel I can be effective in shifting focus off BA and> on to mastopexy for ptosis women especially.> > What are you thoughts, or anyone else's?> Love,> LM> > > naturalbeauty38 wrote:> Ya see what I am saying, I believe the number of women> who get online > like us and talk about what we do is growing, but still>

just a > handful of the women out there with real problems. And of> those with > problems even a smaller handful that correlate any of it> to the > implants, therefore it makes sense to asume that the> patients not > complaining is not helping our cause and when someone> does complain > it is not very often therefore how do the Dr's even know> that the > problems are so rampant.> I think the biggest work we have to do is to spread the> word that > implants cause these issues and then get those women to> at least come > forward with their complaints. They may not be able to> remove the > damn things but at least look at the facts and talk about> it.> I wish big breasts were not so important to us all. I am> so glad i am > mostly over that, I mean to this day I have about 1% of> me that caves > in to boob envy

occasionally. But not of implants EVER,> just maybe of > my girlfriends that have nice real boobs.> I hate implants, I hate the way they look and feel and> think they are > so ugly. MY PERSONAL OPINION IS THAT HAD I KNOWN THEY> FELT LIKE ROCKS > AND WERE SO HARD AND UGLE I NEVER WOULD HAVE GOT THEM.> hugs> C> > > > > > > In , Jane Doe > wrote:> > :> > This is only one e-mail friend I have from AOL but an> example of > how sometimes patients don't let their docs know what's> going on with > them. My friend got her implants in land, had to be> re implanted > 2x because of CC and now has no breast tissue left.I> suggested > mastopexy, she claims there is no more tissue to make a> mastopexy. > She's got FMS, she does believe her implants made

her> sick, but won't > part with them. She's now in AZ and is getting a new set.> I asked her > what her PS though about her getting implants with FMS,> she said she > doesn't know what he thinks because she never told him.> She stated > that her health is "none of his business" and that all he> needs to > worry about is getting the job done right.> > Her mainstream rheumy suggested implant removal to be> on the safe > side, she won't do it--she's adamant. Whatever.> > > > I'm with you on making mastopexy a trend, providing the> patient is > in good health and goes to a great PS. There are risks> with that too--> but it beats implants!> > Hugs,> > LM> > > > naturalbeauty38 wrote:> > Lynda your statements can and are often taken out of> context > possibly > > because the

way your wording them. Which is what led> both LM and I > to > > think you were refering to one of us as for this> brainwashing > thing. > > I mean you can say whatever you want, but again in the> post I am > > replying to here your saying that most of the> population thinks > that > > medical Dr's are god.I agree with that, but I also see> that many > > people actually treat Dr's with a good deal of contempt> these days. > > Anyhow I think there are allot of people with the> misconception > that > > Dr's know everything. This is simply not true. There> are good and > bad > > Dr's just like there are good and bad Teachers, good> and bad police > > officers etc. The fact is that because we all had bad> experiences > it > > is easy to blame all Dr's when in fact the real

crooks> are the > > manufacturers. Drs are simply filling the need that> exists, > > unfortunatly as long as there are women lining up to> get implants, > > there will be dr's there to put them in happily. It is> sad, it is > > sick and until something in our society changes that is> the way it > is.> > If lifts became the big fad and no one wanted implants> anymore Dr's > > would be learning and studying how to do better lifts.> It is that > age > > old phenomenon called supply and demand. Where there is> the demand > > there is the supply.> > The Dr;s have often been mislead just like the patients> that these > > devices are wonderful bla bla blah. I agree that by now> these Dr's > > should know better after seeing so many of us come back> ill. The > > other problem now is

that allot of women refuse to> admit they are > ill > > from implants or even to complain to the PS about what> is going on > > with them. There fore I believe that many PS's don't> know that > their > > patients are having problmems. Many of us did go back> to them and > > that is good, if only more would stick up for> themselves such as my > > own sister, then more and more of them might start to> believe that > > the implants really do cause disease.> > Anyhow I got a bit off track here.> > I am glad that we can all agree at least on one thing,> that there > is > > good and bad in all and that we, the patient, the> consumer have to > > take a certain responsibility in making sure that> whatever we do to > > our bodies we are completely 100% informed. I was naive> and stupid >

> when I got my implants, and that is why I made sure> before I took > > them out that i was educated and new exactly what was> going to > happen > > upon removal. I will never ever again let another> surgeon touch me > > without completely researching and getting different> opinons etc so > I > > have learned a very valuable lesson through this.> > take care> > > > > > > > > === message truncated ===

[Guest guest]

What has surprised me is that women with saline implants get sick so much

faster. I

suppose this can be bad, but good in that you know what is going on, or soon do.

I had silicone implants for 20 years, before I ever connected that my health was

being

affected from the implants. I think one implant may have been bi-lumin, meaning

one

saline 'implant' and one silicone implant - like an implant within an implant.

Upon

removal, the surgeon found a staph infection in my right breast, grossly

ruptured implants

and migration outside of the *intact* capsule.

Giant cells on the outside of the capsule attest to my autoimmune response.

I have been dx with multiple sclerosis, connective tissue disease & possible or

probable

lupus, and Hashimoto's thyroiditis. I have peripheral neruopathy, positive ANA

(1:320),

positive anti-SSA and anti-SM (indicative of lupus), carpel tunnel & plantar

fasciatis (both

which are aggravated by connective tissue disease). Brain and C-Spine MRIs show

demyelination and a spinal tap shows elevated igG and oligoclonal banding.

Before

explant, I woke up in the middle of the night with hives for no apparant reason.

I went

into anaphlactic shock at the dermatologist's office (I figured i was safer

there than in ER,

and I still believe I was right). I had had rashes for 4 years without relief,

that felt like small

stings and then would itch until I scratched them into raw wounds. I had to

make an

additional trip (3 total) to my surgeon in another state because surgery had

been canceled

at the last minute because of very high liver enzymes (550/590). Finally, I had

surgery in

April 2004. I was SO glad to have these horrible things out.

It's been a rocky road. I still have a lot of pain, fatigue, 'brain fog', and

have deferred

taking a bar exam now twice - the last time because I was in the hospital for

c-difficile

colitis. That's been my most recent battle. I was in such pain that in the

hospital they

gave me dilaudid, but my liver did not metabolize this well. My doc has since

taken me off

all medications, and is slowly putting me back on.

Five years ago I jogged, bicycled on the highest bike path in the United States,

was fit

physically and mentally. Although I believe (my doc believes) one implant was

leaking for

a long time and the other probably completely ruptured (gross rupture) about 5

years ago.

I have thought at times I was going to die.

I just take it a day at a time and hope that I will get through this and my

health will get

better. This has disrupted my health, our finances and our lives. My husband

is very

supportive, but it has been a horrible experience. I wonder if I will ever be

able to enjoy

life or work again.

Molly

Putting silicone implants back on the market would be evil. The saline

implants should

never have been 'approved' by the FDA, either.

> > > Lynda your statements can and are often taken out of

> > context

> > possibly

> > > because the way your wording them. Which is what led

> > both LM and I

> > to

> > > think you were refering to one of us as for this

> > brainwashing

> > thing.

> > > I mean you can say whatever you want, but again in the

> > post I am

> > > replying to here your saying that most of the

> > population thinks

> > that

> > > medical Dr's are god.I agree with that, but I also see

> > that many

> > > people actually treat Dr's with a good deal of contempt

> > these days.

> > > Anyhow I think there are allot of people with the

> > misconception

> > that

> > > Dr's know everything. This is simply not true. There

> > are good and

> > bad

> > > Dr's just like there are good and bad Teachers, good

> > and bad police

> > > officers etc. The fact is that because we all had bad

> > experiences

> > it

> > > is easy to blame all Dr's when in fact the real crooks

> > are the

> > > manufacturers. Drs are simply filling the need that

> > exists,

> > > unfortunatly as long as there are women lining up to

> > get implants,

> > > there will be dr's there to put them in happily. It is

> > sad, it is

> > > sick and until something in our society changes that is

> > the way it

> > is.

> > > If lifts became the big fad and no one wanted implants

> > anymore Dr's

> > > would be learning and studying how to do better lifts.

> > It is that

> > age

> > > old phenomenon called supply and demand. Where there is

> > the demand

> > > there is the supply.

> > > The Dr;s have often been mislead just like the patients

> > that these

> > > devices are wonderful bla bla blah. I agree that by now

> > these Dr's

> > > should know better after seeing so many of us come back

> > ill. The

> > > other problem now is that allot of women refuse to

> > admit they are

> > ill

> > > from implants or even to complain to the PS about what

> > is going on

> > > with them. There fore I believe that many PS's don't

> > know that

> > their

> > > patients are having problmems. Many of us did go back

> > to them and

> > > that is good, if only more would stick up for

> > themselves such as my

> > > own sister, then more and more of them might start to

> > believe that

> > > the implants really do cause disease.

> > > Anyhow I got a bit off track here.

> > > I am glad that we can all agree at least on one thing,

> > that there

> > is

> > > good and bad in all and that we, the patient, the

> > consumer have to

> > > take a certain responsibility in making sure that

> > whatever we do to

> > > our bodies we are completely 100% informed. I was naive

> > and stupid

> > > when I got my implants, and that is why I made sure

> > before I took

> > > them out that i was educated and new exactly what was

> > going to

> > happen

> > > upon removal. I will never ever again let another

> > surgeon touch me

> > > without completely researching and getting different

> > opinons etc so

> > I

> > > have learned a very valuable lesson through this.

> > > take care

> > >

> > >

> > >

> > >

> >

> === message truncated ===

>

>

>

>

[Guest guest]

Doctors are every bit as much to blame as manufacturers. The plastic surgeons

who make

a fortune on implanting women have also essentially placed a gag order on their

peers by

eviscerating their peers who speak out against implant. These doctors approved a

pma by

Inamed which was only disapproved thanks to the outrage of the panel chair.

THese plastic surgeons profit greatly by implants - pushing them and installing

them.

They are hardly innocent. The majority also do not give patients adequate

information,

falling far short of any " informed consent " . Why not? Because they deny thre

is any

danger.

There is good reason many of us are disgusted withn plastic surgeons. And then

there are

the rheumatologists and neuroliogists who treat us as a lepers, if we mention

we've had

implants. I have hunted high and low for competent doctors who will listen to

what I am

saying - and read the damn lab tests that they have in front of their noses -

and at the

same time not exploit me.

I have found them, but not without effort.

> > > Lynda your statements can and are often taken out of

> > context

> > possibly

> > > because the way your wording them. Which is what led

> > both LM and I

> > to

> > > think you were refering to one of us as for this

> > brainwashing

> > thing.

> > > I mean you can say whatever you want, but again in the

> > post I am

> > > replying to here your saying that most of the

> > population thinks

> > that

> > > medical Dr's are god.I agree with that, but I also see

> > that many

> > > people actually treat Dr's with a good deal of contempt

> > these days.

> > > Anyhow I think there are allot of people with the

> > misconception

> > that

> > > Dr's know everything. This is simply not true. There

> > are good and

> > bad

> > > Dr's just like there are good and bad Teachers, good

> > and bad police

> > > officers etc. The fact is that because we all had bad

> > experiences

> > it

> > > is easy to blame all Dr's when in fact the real crooks

> > are the

> > > manufacturers. Drs are simply filling the need that

> > exists,

> > > unfortunatly as long as there are women lining up to

> > get implants,

> > > there will be dr's there to put them in happily. It is

> > sad, it is

> > > sick and until something in our society changes that is

> > the way it

> > is.

> > > If lifts became the big fad and no one wanted implants

> > anymore Dr's

> > > would be learning and studying how to do better lifts.

> > It is that

> > age

> > > old phenomenon called supply and demand. Where there is

> > the demand

> > > there is the supply.

> > > The Dr;s have often been mislead just like the patients

> > that these

> > > devices are wonderful bla bla blah. I agree that by now

> > these Dr's

> > > should know better after seeing so many of us come back

> > ill. The

> > > other problem now is that allot of women refuse to

> > admit they are

> > ill

> > > from implants or even to complain to the PS about what

> > is going on

> > > with them. There fore I believe that many PS's don't

> > know that

> > their

> > > patients are having problmems. Many of us did go back

> > to them and

> > > that is good, if only more would stick up for

> > themselves such as my

> > > own sister, then more and more of them might start to

> > believe that

> > > the implants really do cause disease.

> > > Anyhow I got a bit off track here.

> > > I am glad that we can all agree at least on one thing,

> > that there

> > is

> > > good and bad in all and that we, the patient, the

> > consumer have to

> > > take a certain responsibility in making sure that

> > whatever we do to

> > > our bodies we are completely 100% informed. I was naive

> > and stupid

> > > when I got my implants, and that is why I made sure

> > before I took

> > > them out that i was educated and new exactly what was

> > going to

> > happen

> > > upon removal. I will never ever again let another

> > surgeon touch me

> > > without completely researching and getting different

> > opinons etc so

> > I

> > > have learned a very valuable lesson through this.

> > > take care

> > >

> > >

> > >

> > >

> >

> === message truncated ===

>

>

>

>

[Guest guest]

-

Molly

My heart goes out to you. There are so many women like us and it

seems more everyday are making the connection between breast implants

and our illnesses. I am so glad you are explanted and hopefully on

your way to a healing path. I know you will get great advice here.

Why did you get c difficile colitis? Are you or were you on any heavy

duty antibiotics? I know that some of them--like clindamycin--can

cause this if taking too much or for too long. I hope that you are on

very good probiotics and taking antifungals like primal defense, oil

of oregano or olive leaf extract. Have you heard of antibiotic

therapy? There are some interesting trials going now with it and ms.

I think they are finding it useful in some cases. Try looking up

antibiotic therapy and Multiple sclerosis in Google or askjeeves.com.

Also, my doctor told me that sacchromyces boulardii is very good to

help prevent c difficule colitis. It is primal defense, but a

separate supplement just containing that ingredient might be warranted

in your case. Good luck

Blessings, kathy

-- In , " MollyBloom54 " <jawlaw93@y...> wrote:

> What has surprised me is that women with saline implants get sick so

much faster. I

> suppose this can be bad, but good in that you know what is going on,

or soon do.

> I had silicone implants for 20 years, before I ever connected that

my health was being

> affected from the implants. I think one implant may have been

bi-lumin, meaning one

> saline 'implant' and one silicone implant - like an implant within

an implant. Upon

> removal, the surgeon found a staph infection in my right breast,

grossly ruptured implants

> and migration outside of the *intact* capsule.

> Giant cells on the outside of the capsule attest to my autoimmune

response.

> I have been dx with multiple sclerosis, connective tissue disease &

possible or probable

> lupus, and Hashimoto's thyroiditis. I have peripheral neruopathy,

positive ANA (1:320),

> positive anti-SSA and anti-SM (indicative of lupus), carpel tunnel &

plantar fasciatis (both

> which are aggravated by connective tissue disease). Brain and

C-Spine MRIs show

> demyelination and a spinal tap shows elevated igG and oligoclonal

banding. Before

> explant, I woke up in the middle of the night with hives for no

apparant reason. I went

> into anaphlactic shock at the dermatologist's office (I figured i

was safer there than in ER,

> and I still believe I was right). I had had rashes for 4 years

without relief, that felt like small

> stings and then would itch until I scratched them into raw wounds.

I had to make an

> additional trip (3 total) to my surgeon in another state because

surgery had been canceled

> at the last minute because of very high liver enzymes (550/590).

Finally, I had surgery in

> April 2004. I was SO glad to have these horrible things out.

> It's been a rocky road. I still have a lot of pain, fatigue, 'brain

fog', and have deferred

> taking a bar exam now twice - the last time because I was in the

hospital for c-difficile

> colitis. That's been my most recent battle. I was in such pain

that in the hospital they

> gave me dilaudid, but my liver did not metabolize this well. My doc

has since taken me off

> all medications, and is slowly putting me back on.

>

> Five years ago I jogged, bicycled on the highest bike path in the

United States, was fit

> physically and mentally. Although I believe (my doc believes) one

implant was leaking for

> a long time and the other probably completely ruptured (gross

rupture) about 5 years ago.

>

> I have thought at times I was going to die.

> I just take it a day at a time and hope that I will get through this

and my health will get

> better. This has disrupted my health, our finances and our lives.

My husband is very

> supportive, but it has been a horrible experience. I wonder if I

will ever be able to enjoy

> life or work again.

>

> Molly

>

> Putting silicone implants back on the market would be evil. The

saline implants should

> never have been 'approved' by the FDA, either.

>

>

> > > > Lynda your statements can and are often taken out of

> > > context

> > > possibly

> > > > because the way your wording them. Which is what led

> > > both LM and I

> > > to

> > > > think you were refering to one of us as for this

> > > brainwashing

> > > thing.

> > > > I mean you can say whatever you want, but again in the

> > > post I am

> > > > replying to here your saying that most of the

> > > population thinks

> > > that

> > > > medical Dr's are god.I agree with that, but I also see

> > > that many

> > > > people actually treat Dr's with a good deal of contempt

> > > these days.

> > > > Anyhow I think there are allot of people with the

> > > misconception

> > > that

> > > > Dr's know everything. This is simply not true. There

> > > are good and

> > > bad

> > > > Dr's just like there are good and bad Teachers, good

> > > and bad police

> > > > officers etc. The fact is that because we all had bad

> > > experiences

> > > it

> > > > is easy to blame all Dr's when in fact the real crooks

> > > are the

> > > > manufacturers. Drs are simply filling the need that

> > > exists,

> > > > unfortunatly as long as there are women lining up to

> > > get implants,

> > > > there will be dr's there to put them in happily. It is

> > > sad, it is

> > > > sick and until something in our society changes that is

> > > the way it

> > > is.

> > > > If lifts became the big fad and no one wanted implants

> > > anymore Dr's

> > > > would be learning and studying how to do better lifts.

> > > It is that

> > > age

> > > > old phenomenon called supply and demand. Where there is

> > > the demand

> > > > there is the supply.

> > > > The Dr;s have often been mislead just like the patients

> > > that these

> > > > devices are wonderful bla bla blah. I agree that by now

> > > these Dr's

> > > > should know better after seeing so many of us come back

> > > ill. The

> > > > other problem now is that allot of women refuse to

> > > admit they are

> > > ill

> > > > from implants or even to complain to the PS about what

> > > is going on

> > > > with them. There fore I believe that many PS's don't

> > > know that

> > > their

> > > > patients are having problmems. Many of us did go back

> > > to them and

> > > > that is good, if only more would stick up for

> > > themselves such as my

> > > > own sister, then more and more of them might start to

> > > believe that

> > > > the implants really do cause disease.

> > > > Anyhow I got a bit off track here.

> > > > I am glad that we can all agree at least on one thing,

> > > that there

> > > is

> > > > good and bad in all and that we, the patient, the

> > > consumer have to

> > > > take a certain responsibility in making sure that

> > > whatever we do to

> > > > our bodies we are completely 100% informed. I was naive

> > > and stupid

> > > > when I got my implants, and that is why I made sure

> > > before I took

> > > > them out that i was educated and new exactly what was

> > > going to

> > > happen

> > > > upon removal. I will never ever again let another

> > > surgeon touch me

> > > > without completely researching and getting different

> > > opinons etc so

> > > I

> > > > have learned a very valuable lesson through this.

> > > > take care

> > > >

> > > >

> > > >

> > > >

> > >

> > === message truncated ===

> >

> >

> >

> >