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Just an update.

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Today we got to talk to a very resourcful receptionist. She read to

the december visit Jessie had. It really didn't say much. Is

this normal? It said that Jessie's curvature progressed from 35

degrees from T7 to T11 to a left thoracoulmbar (sp?) curvature from

T7 to L1 at 57.6 degrees. The doctor ordered CAT Scan in which Leigh

Ann has rescheduled twice now. did get to talk to Jessie on

the phone yesterday and he was his normal happy jabbering self.

Neither of us see any problem with him getting his CAT on the 11th.

Unfortunately, they also informed us that Leigh Ann can schedule

Jessie's surgery for either spinal fusion with or without growth

bars without being informed. We did make sure that they where

aware that we see no possible way Leigh Ann will be able to take

care of Jessie after any type of spinal surgery. As long as she

claims to have someone helping her they see no concern. We are still

trying to talk Leigh Ann into a second opinion with no luck as of

yet. Leigh Ann figures since she went through numerous surgeries

herself with her cebral palsy, spinal surgery isn't a big deal. It

seems that Jessie's current doctor, as far as we know, does not do

the VEPTR surgery. is calling the doctor on the 11th in hopes

of recieving the results of the CAT as well as the treatment plan.

Wish us luck, we sure need it.

Jackie, Ohio

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