Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 i agree judi, i am happy to hear you are feeling better. just don't overdo (hopefully i'll take my own advice too. man is my foot swollen, my back and arms hurt but withthe prednisone i just keep movin. ) kathy in il 800-588-2300 empire today Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2003 Report Share Posted August 17, 2003 Hi Judi, It is sad to me to know how we must fight and keep fighting for good medical care. I worked for doctors, mostly surgeons for almost 25 yrs and people do not realize that all doctors do not come through medical school at the top of their class....some barely pass and their medical decisions sometimes show that! We are in FL now and moving back home to PA Oct 1...Only problem is I just had gall bladder surgery last week, we have no home to go to nor a mover to move our things as yet and I am getting worried.... I am very stressed and teary. The cost of home there is so high but that is where our family is. Also the medical care in FL is terrible!!!!! Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 good luck tomorrow at being surrounded by so many dr's!! it's also my son's 20th birthday tomorrow and last night he told of his engagement to mandy!! they plan on a long engagement they say for now. this new job is taking alot more out of me. lots more paperwork and bursting. i am getting physical therapy on my feet and calves. i do get free chiro care at work, but been too busy to get adjusted. maybe tomorrow before the weekend. we have decided to stay on 5mgs of prednisone and up my mtx to 4ccs a week. i am hanging in there, also took my car to get a tune up. they could not do it. told me to take it to a dealer because something else is wrong with it. but no clue what it is. also my transmission is leaking. waahhhh kathy in il i'll say a prayer for you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2003 Report Share Posted October 3, 2003 Thanks, Kathy, and happy birthday/engagement to your son! I can relate to the car problems, we just took our old car back to the dealer for the 3rd time with the same problem! I think they just want to sell us a new car, not fix the old one. Will be glad when tomorrow is over, but hoping for some good news. Take care, and get that adjustment! Judi > good luck tomorrow at being surrounded by so many dr's!! it's also my son's > 20th birthday tomorrow and last night he told of his engagement to mandy!! they > plan on a long engagement they say for now. this new job is taking alot more > out of me. lots more paperwork and bursting. i am getting physical therapy on > my feet and calves. i do get free chiro care at work, but been too busy to get > adjusted. maybe tomorrow before the weekend. we have decided to stay on 5mgs > of prednisone and up my mtx to 4ccs a week. i am hanging in there, also took > my car to get a tune up. they could not do it. told me to take it to a dealer > because something else is wrong with it. but no clue what it is. also my > transmission is leaking. waahhhh kathy in il i'll say a prayer for you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2003 Report Share Posted October 3, 2003 Kathy, my daughter just turned 20 on Monday. Pretty close in age there. No ring for her yet, but I think that's pretty close too. So young...... Noreen Re: [ ] judi good luck tomorrow at being surrounded by so many dr's!! it's also my son's 20th birthday tomorrow and last night he told of his engagement to mandy!! they plan on a long engagement they say for now. this new job is taking alot more out of me. lots more paperwork and bursting. i am getting physical therapy on my feet and calves. i do get free chiro care at work, but been too busy to get adjusted. maybe tomorrow before the weekend. we have decided to stay on 5mgs of prednisone and up my mtx to 4ccs a week. i am hanging in there, also took my car to get a tune up. they could not do it. told me to take it to a dealer because something else is wrong with it. but no clue what it is. also my transmission is leaking. waahhhh kathy in il i'll say a prayer for you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2003 Report Share Posted October 3, 2003 i am still trying to get that adjustment. we are so busy!! still trying to get my last check from dr tisa. even though he just got 1/3 of my paycheck as a pymt from medicare for treatment he gave me. be strong and learn them all good!!! yuk yuk!! kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2003 Report Share Posted October 5, 2003 Dear Judi, I am sorry that you had such a painful trip but hope that it will help more docs to become familar with your disease. How did it start for you? Was it just a few lumps to start off with and then a rapid increase? I need to read about Dercums. I would like to be able to view a photo showing what it does. I hope that this is the last surprise that is in store for you. You have had more than your fair share this past year. I have always had a lot of lumps on my rib cage area but now three or four have shown up in my upper arm. My mother also has them and she has had one cut out that was the size of a lemon. I have one in exactly the same place as hers. I have also been thinking about you but since I am only catching pieces of the conversations, I am not exactly sure of what all has been going on for you. Take care of yourself. Iris --- mormar46 <mormar46@...> wrote: > Hi there! > > Good to see you posting again--I've been thinking about you. I go to > Indy tomorrow morning and am supposed to be presented to a group of > 45-50 Indiana dermatologists at a conference as a case example of > Dercum's. The derma at IU said it's good to pick that many brains. > Ron's going--said if it's a " group grope " he wants to be there! > > Sure hope they have some ideas, this disease is no fun! (what one > is?) > > Peace, > Judi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Thanks so much...I am trying to hold on and hold his hand but I am also very scared! hugs Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 i am sorry you are having so much pain. it sounds like so much fun to be had with all the kids!!! i hope you enjoy your tea. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Thanks, Kathy I'm learning that I'd rather have physical pain than emotional pain. I know a few people who are going thru rough times emotionally, and I think they suffer far more than I do. I just want to hug them. At least I can laugh (though even that hurts some days) and see beauty in life. Peace, Judi > i am sorry you are having so much pain. it sounds like so much fun to be had > with all the kids!!! i hope you enjoy your tea. kathy in il > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 yes judi, i try to laugh alot at myself too kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 ((((((((((((((((((Judi!!!!)))))))))))))))))) Oh my word you poor thing! I'm so sorry to hear of your saga - you had me smiling with your usual positive description though! I hope you are resting and getting taken care of. Thanks for the congratulations! ((((((((((((((Giant Hugs)))))))))))))))) Heidi [ ] Hi everyone! It's the " plaid sheep " checking in-- I had the best intentions of keeping up with the posts last week, then had to be the oddball of the family (my biological family that is) and have a flu bug hit me. I hope I was the oddball of this family too, because I wouldn't wish this bug on anyone! It was the intestinal kind, you know, worshiping the porcelain idol in both positions, high fever, the whole 9 yards, and it just wouldn't quit. Not a weight loss solution I'd recommend. By Friday I felt like my insides were a toxic waste dump. My sweet future SIL came over in the morning (he's a week short of starting a new job) and rather than argue with me about the merits of seeing a doctor, he just picked me up and carried me out to his car, with Ron trailing along with my purse, and we were off to the immediate care center (Tom's daughter works there.) Windi, Tom's daughter, was ready for us (Tom had called on his cell phone) with a wheel chair so at least I didn't have to come in feet first) at the side door, and the rest of the world didn't have to see me in my Duck jammies bundled up in my SpongeBob blanket. By then I didn't much care anyway. But, 4 hours and one IV later, they let me come home. I'm starting to feel more like my old self, but I think they'll have to run the Boston Marathon without me this year. Shoot, I was SO looking forward to it! Ah, but there seems to be a ray of sunlight here! Maybe even two rays! Apparently the resting and high fevers did something to the horrible bursitis I'd been dealing with in my hips, because I haven't even been needing my cane the last 2 days. I'm sure that won't last long, but I'm going to enjoy the relief while I've got it. And was so worried about me, she forgot to be mad at her ex, Duane, and they actually had some civil words and decided to make peace and be adult with their dealings with each other. I know there have been a number of major " events " posted here, and I am sorry not to respond to them individually. Those who are having difficult times always have my prayers, and I hope you are able to see the sunlight soon. Heidi, my best congratulations on your new CAREEER! and a, as always, thanks for being the best ever! Peace and smiles, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Judi, What a beautiful and uplifting story. Thanks for sharing. Hugs to you. Iris --- mormar46 <mormar46@...> wrote: > I love words. Words have a fascination for me, in the way they are > spelled, the way the sound, and in their derivation. I have found > sometimes that I think I know what a word means, and after looking it > up in a dictionary, I find that myoriginal definition may have been > way off base. > > Today I was looking up a word, and happened to glance at the > word " miracle. " Thinking it must be a mistake on my part, I looked > more closely, and found that the WORD miracle derives from the Latin > word " mirare " meaning " to smile! " > > I have seen some miracles in my lifetime. Perhaps the earliest one > is the miracle of my growing into a healthy, somewhat intelligent > adult despite the predictions of the doctor who delivered me. I was > more than six weeks premature, the result of a fall my mother > suffered from which she later developed toxemia. She was told that I > had cerebral palsy, and probably should be put in an institution > because my mind would never develop. She refused to believe that, > and raised me as a firm believer in miracles. It would appear the > doctor was mistaken on his prediction, as I graduated 2nd in my high > school, and later went on to work in many aspects of business, > including a technical writer for a large pharmaceutical company, > traveling several times overseas. > > Mom taught me to see small miracles too, in the sparkle of dew on the > grass, in the tiniest of details inside flowers, in the songs of > birds, in the movements of clouds, in the vastness of the universe. > Although her life was not a happy one for many reasons, she taught me > to smile and see joy in my life. I learned to be happy with whatever > I had, and to enjoy simple things. That has not changed. > > A later miracle was my own daughter. I was told I probably would not > be able to conceive, both from my own physical shortcomings, and due > to the fact that my husband had sustained an electrical charge in a > lightning strike. A little over a year and a half after we were > married, our daughter was born. She later experienced her own > miracles with the birth of her son, and last year triplets in spite > of having polycystic ovaries. > > With the knowledge of the derivation of the word " miracle, " I now > look at miracles as times when God has smiled, rather like a loving > parent smiles when giving a child an unexpected gift. And I plan to > look at all the smiles in the world, and see just how many miracles > there are out there that I may have missed before. Actually, I think > an honest, joyful smile is a miracle in itself. > > Judi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Sorry to hear you are in so much pain, but being a quilter, and a cat owner, I can understand how the cat could get quilted. THEY ARE ALWAYS IN THE WAY. I think they feel if you are sitting, you should be putting all your attention on them. Worse thing for me, was when the cat lay down on a shirt I was doing embroidery on. The shirt couldn't move right, so the stitching was screwy and I had to repair it before I could give it the customer. Luckily it was my SIL, so I apologized and told her it was a " catsasstrophe " , because the cat sat his a** on the shirt and messed it up. Noreen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 LOL, Noreen! It's been a long time since I've had a cat in the house, but I remember well trying to read the newspaper or do homework without a furry feline plopping down right in the middle of what I was trying to focus on. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Re: Judi > Sorry to hear you are in so much pain, but being a quilter, and a cat owner, > I can understand how the cat could get quilted. THEY ARE ALWAYS IN THE WAY. I think they feel if you are sitting, you should be putting all your attention on them. > > Worse thing for me, was when the cat lay down on a shirt I was doing embroidery on. The shirt couldn't move right, so the stitching was screwy and I had to repair it before I could give it the customer. Luckily it was my SIL, > so I apologized and told her it was a " catsasstrophe " , because the cat sat his a** on the shirt and messed it up. > > Noreen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 Judi, OK, as an avid gardener, I'm curious - what is this garden claw you're talking about? And I too hope the endo will be able to help you. We need all the garden time we can get! Dix Re: [ ] Re: Judi to a Judi, Maybe the Endo will help you and you¹ll even have MORE time for playing with your new garden claw! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Thanks Judi. I've been working on things to do that are fun each day after Dan gets home to help keep him optimistic. It was working well until late yesterday, when he started getting grouchy. That's a sign he's starting to get anxious. So I'm calling the Dr. tomorrow. Dix [ ] Dixie--fortune cookies Hey Dix, If God can appear through Burns, why not in a fortune cookie! Just ask my daughter, Mom doesn't always know best (LOL!) You gotta grab those good thoughts wherever you can. You guys just have a wonderful day now, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Ah, Judi, that sounds like a little slice of heaven! The water in the pool at the seniors facility is a little less than freezing at 74 degrees. It has to be at least 80 for me to be comfortable. By the way, some of the older girls could out excercise me by double. I was the only one there with brown hair (well o.k., brown with getting more gray every day.) Your evening sounds wonderful! Relax and enjoy your weekend! Iris --- nonny46 <nonny46@...> wrote: > Hi Iris, > > Went to aquatherapy today. The water was 96 degrees and I didn't > want to get out!! We do the exercises at " stations " (like Curves)and > there are 8 of us in the pool. We do 2 minutes at each station, and > go around twice, so it's not boring and not really too hard, but I'm > usually pretty pooped when I get home. Just finished baking 2 loaves > of bread to take over to church for Communion on Sunday, then we're > gonna settle down for some salads and a movie on TV. Have a good > weekend, > > Judi > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 Hi Judi, Just come on down here...105 with the heat index!. You won't need a sweater inside or out. Iris --- a54 <a54@...> wrote: > Judi, > > I feel for you Judi. I HATE to be cold. It is just so painful. > > a > > > > a, > > > > Gee, that's what I need, your inventions sound great! A temperature > > regulator and alien shrinkenator. People look at me like I'm nuts > > when they're drinking iced tea and I'm ordering hot coffee! > > > > Judi > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 http://www.shop-in-service.com/bodybio.htm#NM Here is a link for practioners of the PK protocol. There is on in Santa Fe I believe. Didn't you say you were in New Mexico? Anita The Wonders of Garlic Awesome article on garlic Love http://www.thenutritionreporter.com/garlic.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2005 Report Share Posted February 21, 2005 Judi How wonderful to hear from you!! I am so glad you are feeling better. The bath soak was a product I got from a holistic Doctor - the brand name was Liquid Needle - the type I used was Gold-105. Of course I wouldn't recommend using anything like this without a doctor involved for your safety. love shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2005 Report Share Posted February 21, 2005 Thanks Shari, I ordered some. It sounds great!! Can't wait to start using it. Lets all get completely well!!! Love Judi Quote Link to comment Share on other sites More sharing options...
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