Hi, New to this group-Beth&Spleen!

[Guest guest]

Hello......

I just received ilena email and decided to check out this support

group. Ilena's email was about

http://memphisflyer.com/MFSearch/full_results.asp?xt_from=1 & aID=6246

Great article!!

I have looked around here briefly and you look like another good

supporting group. So now ok, so this is the 6th support group for

me...

AND, I had to chime in right away because I read the post regarding

Beth....about an enlarged spleen, etc.

About me: My name is and I live in Calif. I had silicone

implants put in in 1966!!! I was just EX-planted last year 2003 and

had the 2nd surgery to finish the reduction part just this last

March! So, I had them for 38 years!! (This is the longest I have

heard of anyone with these.)

I had to let Beth know that an enlarged spleen could mean serious

disease! I have CML (leukemia)...my oncologist says the implants

made me sick. Am enlarged spleen is one of the charactoristics of

CML so please, make sure you are seeing a good doctor and have this

checked out. I take Gleevec and am in remission with the CML, but

those implants made me so sick that my immune system crashed and I

got CML.....the ultimate immune disease, that,btw, is not on Dow

Corning list of acceptable diseases!

I am happy to meet you all and look forward to talking with you,

xxx in Ca

[Guest guest]

Hi linda

I just wanted to welcome you to this group. Wow, I can't believe that

you had your implants so long. I was so sorry to hear of your cml and

other immune problems. You sound very upbeat however. Have you

noticed improvements since being explanted last year? You should pick

up alot of tips here. I was glad to hear that you CML is in

remission. We are a very supportive group and we are glad to have

you join us!

Hugs, kathy

--- In , " lindabones9 " <lindabones9@y...>

wrote:

> Hello......

> I just received ilena email and decided to check out this support

> group. Ilena's email was about

> http://memphisflyer.com/MFSearch/full_results.asp?xt_from=1 & aID=6246

> Great article!!

> I have looked around here briefly and you look like another good

> supporting group. So now ok, so this is the 6th support group for

> me...

> AND, I had to chime in right away because I read the post regarding

> Beth....about an enlarged spleen, etc.

>

> About me: My name is and I live in Calif. I had silicone

> implants put in in 1966!!! I was just EX-planted last year 2003 and

> had the 2nd surgery to finish the reduction part just this last

> March! So, I had them for 38 years!! (This is the longest I have

> heard of anyone with these.)

> I had to let Beth know that an enlarged spleen could mean serious

> disease! I have CML (leukemia)...my oncologist says the implants

> made me sick. Am enlarged spleen is one of the charactoristics of

> CML so please, make sure you are seeing a good doctor and have this

> checked out. I take Gleevec and am in remission with the CML, but

> those implants made me so sick that my immune system crashed and I

> got CML.....the ultimate immune disease, that,btw, is not on Dow

> Corning list of acceptable diseases!

>

> I am happy to meet you all and look forward to talking with you,

> xxx in Ca

[Guest guest]

Hi ,

Welcome. Oh my goodness, 38 years! 1966! That is incredible! I am

really, really so very sorry for your illness. When did you start

exhibiting symptoms of illness from your implants? No doubt, you

had no clue as to what was going on. I would love to hear more

about your experiences, and as you can see, I am still catching up

with everyone...I'll keep reading.

I hope you find our group helpful!

Love,

Patty

> Hello......

> I just received ilena email and decided to check out this support

> group. Ilena's email was about

> http://memphisflyer.com/MFSearch/full_results.asp?

xt_from=1 & aID=6246

> Great article!!

> I have looked around here briefly and you look like another good

> supporting group. So now ok, so this is the 6th support group for

> me...

> AND, I had to chime in right away because I read the post

regarding

> Beth....about an enlarged spleen, etc.

>

> About me: My name is and I live in Calif. I had silicone

> implants put in in 1966!!! I was just EX-planted last year 2003

and

> had the 2nd surgery to finish the reduction part just this last

> March! So, I had them for 38 years!! (This is the longest I have

> heard of anyone with these.)

> I had to let Beth know that an enlarged spleen could mean serious

> disease! I have CML (leukemia)...my oncologist says the implants

> made me sick. Am enlarged spleen is one of the charactoristics of

> CML so please, make sure you are seeing a good doctor and have

this

> checked out. I take Gleevec and am in remission with the CML, but

> those implants made me so sick that my immune system crashed and I

> got CML.....the ultimate immune disease, that,btw, is not on Dow

> Corning list of acceptable diseases!

>

> I am happy to meet you all and look forward to talking with you,

> xxx in Ca

[Guest guest]

Rogene,

I'll have to read that book you are talking about " King of

Torts " ...sounds good.

I just wanted to mention about the leukemia thing...I agree, we have

not seen too many women with a diagnosis of that disease. The only

one I can remember is our precious angel Phyllis....she mentioned to

me several times when we met that she had been diagnosed with that

disease, but then later it was retracted and they weren't sure what

was going on.(I am sure she mentions that in her story) She was told

she was going to die..what a terrible thing to hear! I know it was

too challenging for her, but she was such a fighter...I just wish

she had hung on.

I really do miss her...

, I hope you show signs of healing since explant.

Hugs,

Patty

> Hi !

>

> Welcome to the group.

>

> I think you'll find this is the best group ever! . . .

>

>

> I'm sure you have a lot to share with everyone.

>

> I'm so sorry to hear about your CML! What kind of

> treatment are you getting? How did the doctor find it?

>

> It seems that, with implant women, our complicated

> health issues make diagnoses very difficult! If we can

> get a doctor to hang in with us until he/she figures

> it out!

>

> There are many, many messages in the archives. I don't

> remember any woman reporting leukemia before. Doesn't

> surprise me though. I hope we won't be seeing more of

> it as implants age.

>

> I had silicone gel implants for 16 years . . . they've

> been out for 11 years. Most the time I'm doing really

> well . . . what problems I have now, I'm not sure are

> connected to implants, except in that my immune system

> was whacked!

>

> I wonder . . . After reading a book " King of Torts " ,

> if Dow might end up with extended liability because of

> implant related diseases that they didn't acknowledge?

>

> Again, Welcome

>

> Rogene