Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 Please read the bottom, this article states that neurological problems can be related directly to a gluten sensitivity, even without celiac disease. http://neuro-m Several reports document the existence of peripheral neuropathy in association with celiac disease.[75] [77] [158] The cause of peripheral neuropathy is unknown, but it generally occurs late in the course of celiac disease and occasionally during exacerbations of steatorrhea. Deficiencies of vitamins B12 , B6 , and E are implicated, and one report describes dramatic improvement in peripheral neuropathy with large amounts of parenteral vitamins ... Myopathy has also been reported in association with celiac disease.[7] [12] [27] [55] [58] [63] [139] Patients with celiac disease and steatorrhea are at risk for developing significant electrolyte abnormalities. One such patient with hypokalemia and hypocalcemia developed quadriparesis and muscle spasms. ... From the same article: . Many processed foods contain by-products of these grains. In addition, there is significant potential for gluten contamination of nongluten-containing foods during processing. Wheat products are often used as extenders in many processed foods, and current labeling of processed foods is often insufficient to guarantee the absence of gluten. “The most common cause of failure to respond to a gluten-free diet is incomplete removal of gluten from the diet.”[159] Gluten may serve as an inactive ingredient in various medications and vitamins. The elimination of gluten requires very informed and active involvement of all persons preparing foods for patients with gluten sensitivity. Consultation with registered dietitians with particular expertise in celiac disease is highly recommended. The National Center for Nutrition and Dietetics Consumer Nutrition Hotline (1-800-366-1655) is an excellent resource for information regarding the treatment of gluten sensitivity. Support groups are also quite helpful in providing information and support for patients and families initiating a gluten-free diet. ... Neurologic Clinics Volume 20 • Number 1 • February 2002 Copyright © 2002 W. B. Saunders Company Lastly, here is an informative link on celiac disease. It IS IMPORTANT TO NOTE that gluten sensitivity can cause seizures without intestinal evidence of celiac disease. INSIST that the antigliadin antibodies be included in any screening, and KNOW that postive antigliadins ARE MEANINGFUL for neurological patients. A discussion of the antibody screening can be found in the informative link below, under the diagnostics thread: The Gluten Filehttp://neuro-mancer.mgh.harvard.edu/ubb/Forum262/HTML/000052.htmlancer.mgh.harvard.edu/ubb/Forum33/HTML/012641.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 keep the info on gluten coming. I have been researching on the internet too and I am a little discouraged that apparently none of the tests are a sure thing. The site I looked at last nite said that even biopsy will sometimes be wrong--the biopsy be negative--but if they had chosen another area it would be positive. Also, false negatives and positives with endomysal (sp?) test and the saliva test that I did. I am having difficulty trying to follow this diet. Apparently gluten can be in just about anything. I had ovaltine in my milk yesterday before I realized it has malt and malt has gluten. And apparently ketchup, mustard and mayonnaise can too. Anything with hydrolized vegetable protein. It seems impossible to me. Have you used any gluten free flour? Tell me more about your diet. YOu can just email me if you want. I really want to give this a try. thanks kathy > Please read the bottom, this article states that neurological problems can be related directly to a gluten sensitivity, even without celiac disease. > http://neuro-m > Several reports document the existence of peripheral neuropathy in association with celiac disease.[75] [77] [158] The cause of peripheral neuropathy is unknown, but it generally occurs late in the course of celiac disease and occasionally during exacerbations of steatorrhea. Deficiencies of vitamins B12 , B6 , and E are implicated, and one report describes dramatic improvement in peripheral neuropathy with large amounts of parenteral vitamins > > .. > > Myopathy has also been reported in association with celiac disease.[7] [12] [27] [55] [58] [63] [139] Patients with celiac disease and steatorrhea are at risk for developing significant electrolyte abnormalities. One such patient with hypokalemia and hypocalcemia developed quadriparesis and muscle spasms. > > .. > From the same article: > Many processed foods contain by-products of these grains. In addition, there is significant potential for gluten contamination of nongluten-containing foods during processing. Wheat products are often used as extenders in many processed foods, and current labeling of processed foods is often insufficient to guarantee the absence of gluten. " The most common cause of failure to respond to a gluten-free diet is incomplete removal of gluten from the diet. " [159] Gluten may serve as an inactive ingredient in various medications and vitamins. The elimination of gluten requires very informed and active involvement of all persons preparing foods for patients with gluten sensitivity. Consultation with registered dietitians with particular expertise in celiac disease is highly recommended. The National Center for Nutrition and Dietetics Consumer Nutrition Hotline (1-800-366-1655) is an excellent resource for information regarding the treatment of gluten sensitivity. Support groups are also quite helpful in providing information and support for patients and families initiating a gluten-free diet. > > .. > Neurologic Clinics > Volume 20 . Number 1 . February 2002 > Copyright © 2002 W. B. Saunders Company > > Lastly, here is an informative link on celiac disease. It IS IMPORTANT TO NOTE that gluten sensitivity can cause seizures without intestinal evidence of celiac disease. INSIST that the antigliadin antibodies be included in any screening, and KNOW that postive antigliadins ARE MEANINGFUL for neurological patients. A discussion of the antibody screening can be found in the informative link below, under the diagnostics thread: > > The Gluten File > <http://neuro-mancer.mgh.harvard.edu/ubb/Forum33/HTML/012641.html>http://ne= uro-mancer.mgh.harvard.edu/ubb/Forum262/HTML/000052.html<http://neuro-mancer= ..mgh.harvard.edu/ubb/Forum262/HTML/000052.html>ancer.mgh.harvard.edu/ubb/For= um33/HTML/012641.html<http://neuro-mancer.mgh.harvard.edu/ubb/Forum33/HTML/0= 12641.html> Quote Link to comment Share on other sites More sharing options...
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