Re: Challenges of growing and CMT

[Guest guest]

Hi :

Wow, sounds like Spencer is going to be a big guy!

Our doctor mentioned that there are two hurdles ahead, both linked to major

growth spurts..at puberty like Spencer, Adam and and at about age 6.

They said that if we can get him past the 6 growth spurt (he's 4 and 1/2

now) without major surgery then we should be on a slower rate of change to

12. They're checking him for signs of scoliosis every visit...do your

children have it?

We are trying the vitamin C with Gavin and using its benefits as an argument

in favour of morning oj and grapefruit (anything that will get him to eat

properly!).

Cheers and thanks...its so great to be able to speak with other parents and

helps so much.

Sally

[Guest guest]

Hi Sally,

No my kids do not have scoliosis as of yet. I only have a touch of it. Crossing

fingers they won't have that on top of everything else. Early diagnosis is key

to correcting it. So if they do get it, it won't develop to far.