Neurontin amount

[Guest guest]

I was taking as much as 2400 mg a day until I felt my brain wasnt working, I

have slowly weaned myself down to 400 mg a day and only at night. Seems the

vit. C, lodeine and Tylenol Arthritis does as well with less side effects.

In OK

[Guest guest]

I take 2700mg of Gabapentin (generic for Neurontin) a day (900mg 3x a day).

My doctor says that's really the max amount to take for any effectiveness. I

too, started with a small amount that helped immediately with the cramping

feeling, but needed to increase the dosage over time. My neurologist mentioned

switching to Zonegran at some point, but I thought to leave well enough alone

with what I am taking. My orthopedic surgeon said that Zonegran was pretty

much the same thing as Neurontin. Anyone have any experience with Zonegran? I

wonder about the effectiveness of the Gabapentin I am taking, since I seem to

deal with a varying level of " discomfort " most of the time.

[Guest guest]

I take 900mg of neurontin 4 times a day. I tried elavil, ultram and a couple

more meds I can't remember the names of. I do okay and without it the pain

is so bad I can't function. In larger doses I know from a friend who takes

three times this amount that you get blurred vision as the day wears on.

Cathleen

in Arkansas

[Guest guest]

I no longer take Neurontin, but to about 5 years ago I took 300 mgs of it 3

times a day. Yes, it helped then. But I continued my research and found out all

kinds of things; was also on a Neurontin List where people with CFS, Fibro, et

al were taking 4,000 mg of it a day. After about 7 months of starting to take

Neurontin at 900 mg a day (which is the amount recommended in the PDR and the

approved amount by the FDA), two things happened: 1) Suddenly Neurontin started

to cause me extreme tremor surges in the morning (when I NEVER have tremors) and

2) my doctor wanted me to take more of it.

I knew I did not need " more " and slowly took myself OFF the Neurontin all

together, and returned to taking a small amount of Elavil. Within a few days my

tremor surges were stabilized and I knew the Elavil was still working. The only

reason I took Neurontin in the first place was that I had some wierd, very

sharp, electrical-like-jolts pain in both arms at rest, and my doctor thought I

should be on Neurontin. I agreed to it at the time. I also stopped Neurontin

because I wanted to see if those electric jolts would come back or not. The good

news is they have NOT! And that was several years ago.

At first I had a good response with Neurontin, but I do not feel I will ever

take it again after my research and all that has come from it.

Gretchen

[Guest guest]

Never even heard of it.

Dan

[Guest guest]

What did you learm in your research? I don't have any electrical or sharp pain,

just chronic aching pain in my legs.

[Guest guest]

Hi :

I am presently taking 700mg x 3 times a day for 2100mg. I started with 400mg

several years ago, and I have found it necessary to control the severe pain

in the tips of my fingers and toes. The neurologist I have told me it is

possible to take up 5400mg. a day -- not that I think I would ever need that

amount. He also told me I could take up 75mg of Elavil.

I presently take 50mg. of Elavil at bedtime along with 700 mg of Neurontin.

This helps to keep the top of my feet from burning. It does work. It is just

about time to get to bed as well.

I find taking Elavil (Amitriptyline) makes my mouth very dry. I find it odd

that taking an anti-depressant (Elavil) helps with the burning sensation.

But then again Neurontin's original target was for epilepsy. The FDA has

approved Neurontin for pain. I was picking up my Neurontin prescription the

other day and I jokingly said to the pharmacist " I don't know anyone who

takes more of this stuff than me " . And he quickly said " I do " . He indicated

to me that many people take Neurontin for nueropathic pain.

Sometimes I believe the cold weather we experience has a lot to do with the

amount of pain in my extremities. It was a fairly cold today, and I did

spend a fair bit of time outdoors. I always wear heavy socks, and I wear

finger gloves inside my " Hot-Paws " gloves. But I can still get my fingers

and toes cold. It did get up to 32 degrees today, but right now, about minus

14 degrees C (that is about 20 degrees F), and I am having trouble typing

because finger tips hurt so bad. Some days are worse than others.

This is my experience with Neurontin. I am sure you will hear different

experiences from our group. It is important that you find what works for

you. We are all different. I think that under medical supervision you may

want to do some experimenting. How else are you going to know?

Regards,

[Guest guest]

Jeanann here. Neurontin

I take 900mg twice a day. Total of 1800mg

[Guest guest]

,

I'm taking 1800 mg. of Neurontin per day, but after reading Gretchen's comments

I'm wondering if I should be. I was taking 900 mg. per day but that didn't seem

to be stopping the burning of feet late in the day. Some mornings my hands

shake so bad I have trouble writing my name. Most mornings that doesn't occur.

I'll see my neurologist in about 3 months and will talk to him about it then.

Carl

What color or groups of colors would you choose in describing how you manage

your CMT? Our newest poll needs your input!

/polls

[Guest guest]

I need to ask anyone about the comparison between Neurontin and Oxycontin.

I don't know what Neurontin is and have been on 140 milligrams of Oxycontin

for a couple of years now but can still feel pain and the burning, as we speak

actually.

I cannot tell ever if I'm wearing socks or barefoot (which rarely happens) and

my hands are getting worse. I know that my tolerance is high and don't want to

go to a higher dossage. I'd like to know how Neurontin works. I've tried

Celebrex and Vioxx, but they hurt my stomach.

It felt like it was bleeding. I have had pancreas problems in the past and

it hasn't bothered me since I've been on Oxycontin.

I just wanted to know if it was a morphine based medication.

It doesn't seem like many of you guys are on Oxycontin. Is there a reason

for that? I know it has a bad reputation, but for me it works. I also know

doctors have a problem prescribing it. Is anyone else out there on

Oxycontin? I would try something else if I thought it would help more, but

at the same time, I'm afraid to take a big step like that if it will make

things worse. Any input would be greatly appreciated.

Thank you,

[Guest guest]

I am taking 4800mg a day, but I was experiencing tremors and shocks. My Dr.

told me to go down to 4000 mg and see what happens. I went down yesterday, and

today I am feeling some pain in my hands. I constantly have to remember to

weigh the benefits and the side effects.

[Guest guest]

Hi ,

I feel like I'm out of the loop. My computer has been down for 4 days now and

I'm just getting it back up. I'm on 900mgs three times a day. And my doc

just upped that dosage also. I've noticed with Neurontin I seem to have about a

week or two of feeling good whenever I up the dosage and then the pain comes

back. Still looking for something to work all the time.

Elaina/NY