Re: pain in legs

[Guest guest]

Hi ,

I am 47 and know exactly what you are talking about when it comes to leg pain.

I have described my pain as feeling like a nausea of the legs. I know

that sounds weird but it's not pain as much as a very uncomfortable feeling.

It comes and go but lately whenever I go to the gym I suffer some pain or

discomfort the next day. I don't overdo it either! I work out on the rowing

machine about ten minutes and then walk on the treadmill for

one mile. That's it.

As a result of my gait, (I do not wear AFOs but have foot drop on the left side)

I have done a number on my back and neck. The MRIs are scary but fortunately,

I have managed and am able to continue being fairly active. I

cannot wear heels at all but have found that tennis shoes and Merrels (mules

that have a rocking action when walking) are great. The Merrels come in tons of

colors and look great with capri pants! hehe

I know CMT is a progressive disease. I was misdiagnosed with MS for over three

years and took injections daily, just to find out that I most likely have CMT2.

Like many others who have been tested, the results did not confirm CMT but

that's what my neurologist seems to think I have. I have extremely

high arches (I took ballet for seven years growing up and could never go up on

point on my left foot) I just thought my left foot was weak. I have hammer

toes and my left leg is starting to atrophy. However, no one in my family

seems to have this.

So..................

Hang in there. I feel strongly that when ones' gait is off, the body suffers in

many ways. For what it is worth, I agree with your doctor that your leg pain

is coming from your gait problems.

Best of luck to you and everyone else on this board!

Karon

[Guest guest]

> This is one of the reason I love reading at this site. My daughter was also a

late walker. She also would not bear weight on her legs. I truly thought it was

her knees but everyone thought I was crazy. I got her physical therapy but once

she started walking, it was not needed. She still does not do things that

require a lot of knee bending (such as climbing and going up and down steps)

and this seems to go in cycles as well. I am not sure of the actual amount of

pain she is in. I know she has a high pain threshold so I wonder how often they

hurt and she really doesn't say anything about it (she is not quite two and a

half). Also after she wakes up she seems to be really quite stiff (we call it

her cowgirl walk). has only had one fever since starting singulair a

few months ago but she seems to be having other symptoms but with no apparent

cycle to them. Thanks for posting - I love to hear that others are going through

or have been through the same things. It helps!

Lori Rodgers

mom to four daughters including (2) ?PFS

[Guest guest]

didn't start walking late, quite early in fact (9 months)

But he often times woke up walking stiff - like a little old man!

During one of his episodes an x-ray showed that he had toxic synovitis

(irritation of the fluid in his hip)

Ellyn

Mom of (Periodic Fever) (5),

Alyssa(9), and Kate(4)

Philadelphia, PA

<slsjasrodgers@...>

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11/08/2006 07:08 PM

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Re: Re: Re: Pain in legs

> This is one of the reason I love reading at this site. My daughter was

also a late walker. She also would not bear weight on her legs. I truly

thought it was her knees but everyone thought I was crazy. I got her

physical therapy but once she started walking, it was not needed. She

still does not do things that require a lot of knee bending (such as

climbing and going up and down steps) and this seems to go in cycles as

well. I am not sure of the actual amount of pain she is in. I know she has

a high pain threshold so I wonder how often they hurt and she really

doesn't say anything about it (she is not quite two and a half). Also

after she wakes up she seems to be really quite stiff (we call it her

cowgirl walk). has only had one fever since starting singulair a

few months ago but she seems to be having other symptoms but with no

apparent cycle to them. Thanks for posting - I love to hear that others

are going through or have been through the same things. It helps!

Lori Rodgers

mom to four daughters including (2) ?PFS