Re: Swallowing Problem & CMT

May 11, 2005

Yo Bob,

I'm 43 and have had CMT since I was a child. I had problems with my throat about

10 years ago and was diagnosed with acid reflux and treatment was fairly

successful. Just recently I have lost a considerable amount of voice strength.

I'm going to see a speech pathologist in a few weeks. I'll post when I find out

more.

This is scary. I'm a pastor and need my voice to work. Keep me posted.

May 13, 2005

Yo ,

Thanks for your response. I saw a speech pathologist about two years

ago. She had me doing exercises for seven weeks. I was repeating

sounds many times and moving my tongue to different positions. It took

about 15 minutes twice a day. After about 8-10 minutes my tongue and

vocal cords hurt so much I had to stop. It was too much work for the

small weak muscles and doing more harm than good. I limit my talking

to as little as I can, even use hand motions when I can to save my

voice.

Hope you have better luck then I did. My next step is going to see

an ENT doctor and try to find something else to try. Keep me posted on

what you find out.

Bob

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