My Introduction

[Guest guest]

I came across this website and am excited about the positive approach

you have. CMT runs in our family. My mother has it(late onset) and

eventually retired from nursing because of the difficulty with fine

motor things (giving shots). She is 94 years old.

I was always looking for symptoms because I knew it was hereditary.

I now wear AFOs and have loss of muscle in my hands with dropped

fingers. I still work full time at our County Fairgrounds at the

front desk. My oldest sister has some symptoms and wears an AFO in

one of her shoes. My other sister (middle sister) shows no signs.

It took me a long time to give in to getting AFOs, but it made

shopping at the mall with my daughters so much more fun. Much less

effort and didn't get so tired. I just wish they would get some

people with CMT involved in designing AFOs. Something you can wear

and still wear beautiful shoes, that would be wonderful.

I probably have more difficulty with my hands than with my feet. Any

fine motor skill is hard to do, but like my mom I am determined.

My husband and I are looking into trying Vitamin C to see if it will

have an effect on my CMT.

I live in beautiful Oregon and have all my life. Can't think of any

place better. The beautiful Oregon coast, Mt. Hood for snow and

skiing, lots of lakes and forests, the fertile Willamette Valley, the

dry desert area of Eastern Oregon and the gorgeous Columbia River

Gorge. We have it all.