MY INTRODUCTION...WITH GREAT THANKS!

[Guest guest]

MY INTRODUCTION...

MY NAME IS JOANA , BRAZILIAN, 50 YEARS OLD, LIVED IN LONDON ...I HAVE CMT TYPE

1, AND I HAD A QUITE GOOD LIFE UP TO TWO YEARS AGO WHEN I REALIZED THAT MY LEGS

STARTED TO FEEL MUCH WEAKER AND I COULD NOT LONGER WALK AS BEFORE...FEELING

TIRED AND UPSET BECAUSE OF THOSE LIMITATIONS.

I THOUGHT THAT BEEN ON THE MENOPAUSE DID NOT HELP ME EITHER, BUT IT IS LIFE!!!

FOR US WOMAN , THE MENOPAUSE IS LIKE A SHOCK TO THE SYSTEM...BUT IT IS JUST A

TIME AND SOONER OR LATER IT WILL PASS...I DO HOPE!!!

MY MOTHER(DIED IN 99), AND MY TWO BROTHERS ALSO HAVE CMT, THEY LIVE IN BRAZIL,

AND THEY ARE OK! MY 2 BROTHERS ARE YOUNGER THAN ME...

I NEVER FELT LIKE TALKING MUCH ABOUT CMT, TRYING TO FORGET IT AND LIVE MY LIFE

WITH THIS CONDITION ...I ALWAYS BEING QUITE AFRAID OF IT SOMEHOW...

BUT RECENTLY I STARTED TO FEEL THIS NEED TO SHARE EXPERIENCES WITH OTHERS AND

TO MAKE NEW FRIENDS WHO COULD UNDERSTAND ME BETTER. SOMETIMES CAN BE VERY

ISOLATED, BUT I REALLY DO TRY TO DO MY BEST REGARDING DOING EXERCISES, READING

ABOUT DIFFERENT SUPPLEMENTS, ETC.. I THINK, I AM MY OWN DOCTOR.

HERE IN UK I COULD NOT FIND ANYONE REALLY GOOD IN THIS FIELD SO FAR!

I BELIEVE I KNOW MORE ABOUT CMT THAN MY GP, BECAUSE IF I WOULD LISTEN TO THEM ,

I WOULD BE ON STEROIDS, STRONG PHARMACEUTICALS MEDICINE, ETC...SO SAD!

MAYBE I NEED A BETTER DOCTOR..HEHEHE...WHO KNOWS?

WELL, I AM SO PLEASED TO JOIN THIS SITE, TO LEARN MORE ABOUT THIS CONDITION AND

HOPEFULLY TO IMPROVE THE QUALITY OF MY LIFE AND THE LIFE OF THE OTHERS TOO.

IT IS GREAT TO SHARE IT WITH YOU ALL!

THANK YOU SO MUCH FOR THIS OPPORTUNITY.

HAVE A GREAT DAY EVERYONE AND HOPE TO HEAR FROM YOU SOON

BEST WISHES TO ALL OF YOU!!!!!

JOANA

PS: SORRY ABOUT MY BROKEN ENGLISH!!!

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