Re: pain, orthotics, docs in SFlorida

[Guest guest]

Gretchen-

I'm glad I read the posts today because I would love to collaborate with you on

an aquatic exercise program for CMT problems. I did a presentation on the

subject last summer and have been PlANNING TO REDO IT IN A MORE PROFESSIONAL

form. Actually my sixteen year old

son who takes TV production in school filmed the first one for me and plans to

do the second version. So we'll definitely talk about that.

Thanks for thinking of me.

But today I'm writing because of two reasons. #1I walked into a patio door a

couple nights ago at full force and I basically richocheed off the glass and

ended on the other side of the patio,on the floor for

about twenty five minutes before I could move. My head and neck and thoracic

outlet was immediately terribly painful. I ended up eventually going to the ER

where they gave me 2 shots, said it was a neck strain (which I knew) and told me

to see an orthopedist.

I'm in County Florida and my Aetna HMO is very limitted. I'm wondering if

there are any people reading from South Florida who have had good experiences

with any of the orthopedisrts. Of course I want someone who understands CMT

also.

The problem that preceded this is that I had neuroma surgery on both feet in

December and I am still having very bad pain oin both feet. I honestly can

barely walk. The podiatrist wants me to get custom orthotics but they must be

both soft, accomodating and waterproof.

I now need them everytime my feet touch the bottom of the pool. My feet were

burning terribly so I have been using net clogs from Merrill with an extra

cushion and an extra arch support in them. It's much better than nothing but I

do need the custom orthotics. I've

searched online and nothing is turning up. Anyone know where I should look

next?

I am relating to much of what I read about how it feels to not be able to do

what you want because of severe pain and also the family issues. Can't write

any more about that issue right now---

Last of all, I am thinking ahead about if I will coach this year, Coaching

swimming is my first love. But I realized last year that I actually need a

scooter to get around on deck. I have a few issues

about that.! I don't have one and don't know how I can afford it.

2)As an occupational therapist I help my patients get used to the idea of

utilizing adaptive equipment but using something obvious like a scooter remains

a bit of an emotional barrier for me. However, I know that if I can find a way

to get one it would make life easier for me.

So if there's anyone in SFlorida who knows of orthopedists, neurologists, or

physiatrists that are good with CMT please let ne know as soon as possible. Of

course being on my Aetna HMO list would be best but any leads regarding doctors

or the orthotics would be

much appreciated.

Would you also alert me by email if you know something? Thank you everyone.

Deni Gillespie

swimrx@...