Re: help/advice needed pointing out symtoms to family members

[Guest guest]

Dearest ,

My empathetic heart truly goes out to you! Guilt is a big thing, a big word.

However, it is not like you purposely made your children have CMT. It is not

like you did drugs, or took medicine and they turned out wrong by some choice

you had made. In life not matter our health whether there are parents with

physical challenges or those without, there is the chance of our children having

a disorder. I am not one to know all the answers. I only can tell you that at

first I felt a bit guilty. Yet, I am a person who tries to accept the challenges

that come along. Hence, I have accepted that CMT is a part of who I am. This is

not the whole picture of me. There is the writer, the child care provider, the

heartfelt kindness, etc. We all have such positive aspects and can grow from all

the challenges. If only you could see what a beautiful life you have with your

family and children. Somehow we some times tay stagnant in life not knowing how

to move forward. I have been there. Guilt is one of the main causes of stagnant

life.

It pains me to know that your Mom reacted in such a way. Did you tell

her how hurt you were? Some times people just don't think. If you need to talk

you know where I am.

Heidi

[Guest guest]

No, I didn't tell her she hurt me. I just didn't see it changing anything. It

was nice to find out where I got this deep seeded guilt from. It gave me

something to talk to my therapist about. LOL

[Guest guest]

Dear ,

I think sometimes we all feel guilt. I somehow convinced myself that maybe I

wouldn't pass it on to my kids and that it was just a defect in my parents

genes. I think of how I feel.... I would much rather have been given life and

been born with CMT than not been born at all. Your mother shouldn't feel guilty

as neither should you. What about her mother or father that passed it on. It was

all involuntary and things we just can't help. Sure we could have chosen not to

have children, but look at what all we would have missed. Your mother is

probably just in denial and loves you so much that she would hate to think that

she was the one that passed it on to you. I am sure she never meant to hurt your

feelings. I am sure you were just like I was....Wanting children and didn't have

the money for alternative methods of conceiving. The natural way was the only

way we could do it and with that we have to take our chances. But, you know....

we have to take chances with any way its done actually and they could have

gotten something much worse than CMT. So cheer up and have a great day.

LaDonna

[Guest guest]

So very well said LaDonna.