Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Hello, I as diagnosed with CMT in 1992 and shortly afterward found out that many members of my extended family that I did not know at the time are also affected by this disease. I am a registered nurse, but have now been on disability for 6 yrs. So far in my immediate family my sister and my mom are the only other ones to be diagnosed, although many of my first cousins have it. The neuropathy continues to get worse as does the weakness, especially in the legs and fingers. I was glad to find this website to be able to find new info and to see how other people with CMT are affected. Sometimes I feel like no one really understands the fatigue that we often face. Some days my legs feel as if they just won't go. My mom and sister describe the same feeling. Looking forward to hearing from some of you. Also, has any of you ever heard of or experienced any problems with bowel control related to CMT? One of my cousins thinks it may, but I never recall reading about that problem. I think she may have something unrelated to CMT but I don't know what. Quote Link to comment Share on other sites More sharing options...
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