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AFOs

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Hey ,

I am a 35 y/o female with CMT. I, too got braces late in life. They are short

braces, just going above the ankle and I can hide them with pants. I am just

curious about the style of your braces which I saw on your website. How does

the front portion just below your knee help with support? Just wanted to know if

it was something that might help me later. Thanks.

Dawn

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  • 3 weeks later...
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Dawn wrote, " Our entire society is based on beauty and physical skill " . Although

it may seem that way and it's true there are many superficial people out there,

it doesn't mean that society as a whole fits this description. It's true; we

don't see pictures in magazines of women in leg braces, but I think we need to

put ourselves in the advertisers' place. What sells? Most would not view AFOs

as being physically attractive and retailers shouldn't feel obligated to show

models wearing AFOs. I feel its our concern to try to adapt our wardrobes to

the clothing styles that are available.

I haven't really had any trouble in the 3 years I've been wearing them. True,

I'm a lot more limited as to what I can wear, but I've

learned what to shop for. Furthermore we shouldn't be ashamed of our AFOs. It's

our individual preference to let our braces be seen or not. I am not ashamed of

the fact that I have to wear them, and letting them be seen sometimes can create

awareness. I'm grateful that when I wear them, I can walk. Without them, I

can't. It's that simple.

When I was shopping the other day, I did see a manequin in a wheelchair. I have

to admit that was kind of cool.

K.

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  • 6 months later...

Hey Spy.....they actually feel pretty good....there is hardly anything

there...but they dont seem to perform any better than my other rigid

splints....if you have insurance, it should cover it tho.

Jimmy

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Deb,

My husband, who has CMT, really regrets not getting AFOs when the doctor first

suggested them. His ankles got so out of line, and the AFOs were more difficult

to use and a lot more uncomfortable when he finally got them.

Elinor

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Marti,

You said it all. I couldn't agree more. When I was prescribed an AFO, the

first pair was not hinged. Then the next pair was. My legs weakened because

the muscles depended upon the AFO. I was in them top long.

NOT EVERYONE will have this problem. I am now in metal braces which are

attached to my shoes because I was in AFOs too long with no therapy and my leg

muscles deteriorated.

I believe folks in AFOs should be in some type of OT or PT to keep your legs

strong.

Elaine

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