Siblings with CMT question

March 18, 2005

If you have a sibling with CMT and you have CMT has it helped you deal with

your CMT any better/easier?

March 20, 2005

Hi ,

This is a good question for us. My twin and I both have Type X, so

does Dad. Unlike Dad, we are asymptomatic and have been since we were

diagnosed.

It was really hard to understand CMT when we were younger, because we

all were dealing with the loss of Mom and it just seemed that we all

cried and cried together.

My Dad has been so wonderful to us and got us on a good track with

the information in this group and continues to fill us in. Dad is

still doing well - loves his volleyball as we do. While he is midly

affected, we are aware that progress can occur, but don't see this

happening in him, nor in us.

Now, specifically related to your question: yes, Hayley and I both

feel that having a sib with diagnosed CMT makes it easier. We share

so much, and now that we are thinking of family planning, we talk to

each other about this quite a bit and share our deepest feelings.

Lately we have been talking about family genes and pre-implanation or

adoption when/if we have children.

We also talk about some of the other topics presented here too. I

also feel it helps having a sister to share this with. Because I

don't know if we'd be sharing this stuff with a brother. Alot of our

sharing is " girl stuff " - but CMT related.

Sincerely,

Hannah

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