Re: my son's sugery

[Guest guest]

Hi Betty,

My son had a similar surgery in October. He also lost a lot of

muscle. I am glad to hear your son is feeling well enough to go to school. Was

it hard having both feet done at once?

[Guest guest]

Hi Betty:

I'm sorry to hear about your son and his infections after surgery. I hope all is

well and he gets his exams completed. I know Toronto Sick Kid's is a great

hospital, but something truly out of the ordinary must have gone wrong.

I hope they don't think it is because of his CMT. I don't think there is any

relationship? Anyway, I wish your son a speedy recovery.

Regards,

[Guest guest]

Betty,

I am sorry your son had such a tough time. Hope it is positive from this point

on. I was very lucky. I had my ankle fused, arch lowered, big toe straightened,

and in surgery for over 3 hours on 2-7-05 and here I am 4+ months later, walking

barefoot in the house and walking well with a small brace in my shoe. I took

pain meds for about 4-5 days after surgery--within a week I was down to one half

a pill at night so I could sleep.I am having the time of my life doing simple

things like standing in the shower without hanging on to something for balance,

cooking without sitting on a stool, and enjoying a pain-free life for the first

time in the last 10-12 years. I plan to have the other foot done in the fall or

early winter. My surgeon is an absolute genius. Tell your son to hang in

there. Life can be tough sometimes--I've had lots of tough times, but life can

be so sweet too. I'll be dancing soon.

Tom--age 58 and getting younger!!

[Guest guest]

Hi Tom,

Thank you! I read your post last week and I was so surprised that you had speedy

recovery. My son had such hard time, I guess everyone is different. He had bad

reactions to drugs even though doctors did not use drugs on our medical alert

list as I insisted. He slept for three days after the surgery.

I wish you the best for your second surgery and dance soon.

Betty

[Guest guest]

Hi ,

It's hard having both feet done, but I thought it will be harder to go through

surgery twice. I don't know if I had made right decision or not. How is your son

doing now? Did he has a lot of pain after surgery? My son is still in pain.

Betty

[Guest guest]

Hi Betty,

Oh man,that is terrible for your son. I wish him well and hope all goes well for

him. My daughter when she was 16 was diagnosed with CMT, that is how we all

found out what the heck was in the family. She has pes cavus feet and three

doctors told us to leave them alone because they do not hurt her, just look

funny. Do not try surgery just for cosmetic purposes so she is now 25 and the

feet still look the same and no surgery was ever done.

I sure hope and pray as her Mother that I did the right thing for her. Best of

luck to your son and you. He is in my prayers.

Elaine

[Guest guest]

Thank you ,

We went to hospital this morning for check up and he is doing much better.

Doctor explained that his wounds were opened because the swollen of his feet and

that caused infection, it is unusual. One wound is still open and hope it will

be closed in one or two weeks, the swollen has come down a lot. I do see a light

in the end of tunnel now.

Take care,

Betty

[Guest guest]

Thank you Elaine,

My son's CMT is severe compared to others and it has progressed very fast in

last three years. He had brace for a year and it helped a lot, but his feet

deformed so badly last year, a team of doctors from Sick Kids hospital made

final decision that it's time for surgery. I know many CMTers has benefited from

this kind of surgery. Of course, surgery should always be the last to consider.

I wish you and your daughter all the best!

Betty

[Guest guest]

Hi Betty,

My son said he is in some pain still in the morning and evening. He goes in to

get the other foot done in a few months. I would like him to get it done sooner.

I also had the surgery that your son had and it took a while for the pain to go

away.