tough one/diverse CMT symptoms in family

May 4, 2005

Hi. This is tough... Has anyone else had the experience of having

their child get diagnosed with CMT and then personally getting

symptoms themselves?

I have been going to the gym and have noticed a definate weakness on

one side... and found that I can't stand on my tiptoe on my left

side...which is strange because I used to do ballet...

Tough... and it really isn't a big deal compared to what my son is

going through... at 19 he has major mobility problems... and here I am

at 49...

Just wondering...

Barb

Ladybug

May 4, 2005

Barb,

CMT can hit us at any age. We have it, but in some people it comes on in early

ages but for others, it's later in life.

Example: My twin diagnosed at 2 yrs. Me, at 50. It just took it's

sweet time hitting me into reality. Like a door didn't open for 48 years. Then

it was open and wham it let me know.

Elaine

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