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Someone asked me if I had polio today.

I told her I had CMT she said what huh what. This went on for a while then

she asked me what was wrong with my teeth. Never gets old does it.

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Sally,

Keep in mind that the strength lost during a growth spurt usually

returns when the muscles catch up. After the growth spurt.

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What a hoot...we had Gavin's first dentist visit last week and the hygenist

looked pretty startled for a few minutes til we explained....

I think you all can commiserate but I'm feeling a bit sad this aft, because

Gavin had a clinic appt this morning and he's in a bit of a downturn, more bones

in his feet changing, hamstrings and tendons getting tight again.

Sigh...just when you think you're on a nice plateau for a while things

change. He's in a growth spurt, of course. Thank heaven there appear to be

options of getting a physiotherapist working with him on this.

Thanks for listening

Sally

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