Would love to share it with you all...

[Guest guest]

Dear Friends,

On Friday I did go to the Neurological Hospital, and found out that

it was on the year 2000 I have done a DNA test, they had on my

files that I am Type 1A.

The doctor also told me that I do have another gift, a syndrome

called Elher's Danlos...that is why I have a bad double joints

too...I do remember thatI have done a biopsia a long time ago

regarding this, but I am not 100% sure if I do have this syndrome.

I will try to have another DNA test in Brazil next year if it is

possible.

I was talking about the pain I feel on my hips and also regarding

some supplements I am taking etc. well, I have to say that I almost had an

argument with my doctor regarding supplements and others issues. He does not

agree on supplements, think that they are not approved by FDA and therefore we

should not take it. Drugs like painkillers, steroids, Neurontin, etc...those are

ok...no problem!

I then decided not say anymore a thing..did not see the point.

He though I am very well, yes, I can walk, but he did not know how

much...and he does not feel what I feel inside anyway.

I will continue to do my exercises and take my supplements and hope

very soon I will do some further blood test. I feel very frustrated for the fact

that I am not a doctor, and yet, I am the one that have to ask to be check for

this and that like arthritis, osteoarthritis, etc, anaemia, etc.

I also ask him to see an orthotics and a physiotherapist, but if I

did not ask a thing, everything would be just fine " see you in 9

months time " , that is just the way here!

Have a Great Day Everyone!!!

Joana