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CMT and NIH

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I posted awhile back wondering if the NIH and congress where

committing money to CMT. I was right, I am not loosing my mind!!

http://www.hnf-cure.org/epublisher/publish/article_00162.php

CMT research funding and results make headlines

By Sally Pehrsson, Ph.D.

Issue date: Jan. 30, 2005

The first major advance comes with the passing of the " FY 2005 Labor,

Health and Human Services, and Education Appropriations " bill by the

United States House of Representatives. This bill includes a call by

Congress to have the National Institute of Health (NIH) investigate

mechanisms of increasing federal research on CMT and CMT-related

disorders. The NIH is to report back to Congress by March, 2005,

paving the way for increased research in the near future. An

associated report the notes that [Congress is] " concerned about the

prevalence of this disease and its effect on people across the age

spectrum and recognizes the value of CMT research for advancing

understanding into other neuromuscular disorders. The Committee

encourages NIH to identify new research opportunities on CMT that

could lead to a relevant program announcement or request for

applications. " The legislation must be also be reviewed by the U.S.

Senate, but once enacted will direct funds to the NIH to enable the

review to be undertaken.

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