introduction: Hello short time viewer first time poster

[Guest guest]

Hello,

I have been a member for about a month now. Just wanted to say that I think

y'all are awesome people. Y'all fight CMT on a day to day basis yet have a

positive attitude. (Well I am sure you have your moments.)

A little bit about me. I am an only child. Started out in Photography, and now

Film and video. I work for a large company in Dallas, TX but was born and raised

in southern Wisconsin. I am 41 and have seen CMT upclose and personal. My dads

side of the family has it. It goes like this,,,All of my dads 6 brothers have

it. (My father does not!) The 5 sisters do not. But the sisters children have

it. I think this is a CMT X disease.

Anyway I have watched my dads family walk, run and spend the rest of there lives

in a wheelchair having someone else feeding them and clothing them. They have a

lot of resentment towards my father since

he did not get it. The family was never close but I know my dad stays away from

them so he does not see the hurt.

Anyway, the reason I am here is to learn. I want to learn from you! I want to

read about your day to day struggles as well as your triumphs. I am intending to

put together a DVD or television commercial (A graphic one at that!) or both

that shows how this disease effects people. I do not know anything more then

that. It is a personal conquest for me. It is something I feel has not come out

to the main stream. I want to bottle it up and share with the world. Hoping it

will help in getting funds for research. Sorry if this

sounds crazy.

Thank you for your time and the space to write this.