Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Welcome Edie and thank you for introducing yourself to us. A child has to be at least 6 months old for testing, so there is no reason your daughter cannot be tested now (I am referring to the DNA blood test here) Wait awhile for the EMG/NCV test, besides, you may not need it, since CMT is in the family. As for what can be done - well, we're all so different and children are so different. Some use AFOS or other orthotics when they are very young, others do not. I would suggest finding a really good pediatric neurologist and and go from there. I was about 10 when I was diagnosed; the doctor told me to swim and walk in the sand alot - which I still do. Perhaps a pediatric neurologist may suggest physical therapy of some kind, maybe even vitamins. There are many other parents here who can offer you some good suggestions like , Heidi, Sally, Rick, Jeff, et all. Again, welcome to . Hope we can be of some help to you and your family. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Hello Edie, Very Warm Welcome To You. I really wish that your daughter will be fine. I had a niece like this. She was not very agile or fast either. And at very young stages of her life, my brother took her to see a neurologist. She starts straight away doing physio, she was only 3 years old...and I can tell you ...she does everyhting now, dancing, working, walk a lot, etc. She is 19 years old, a very beautiful woman! Swimming is the best. I wish I knew this much ealier that I had CMT. I found out I had CMT very late, was 28 years old...my mother had it and my two brothers too. Well, Just one day at the time Edie...hope and take it easy! I realy wish all the best to you and to all your family.Take care, Joana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2005 Report Share Posted June 26, 2005 Welcome Edie, You'll gain alot of knowledge and support from this group! Elaina Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.