Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Welcome , thanks for your introduction. The neurologist who conducted your EMG/NCV should have a written report in your file. So all you need to do is get a copy of this. Ask the neurologist WHY he/she can't give you a definitive diagnosis. Were your results normal? Have you got any family with CMT? An EMG is a good test for distinguishing CMT and also telling whether it is CMT 1 or 2. You should ask your neurologist to order the DNA blood test for you - this test can distinguish about 12 subtypes only. (There are about 46 now, I think) Genetics has farther to go. If you do not like your first neurologist, find a new one - you can go to a MDA clinic (go to www.mdausa.org and type in your zip code to find the one nearest you) or you may prefer to find a new neurologist on your own through referrals or AMA's Doctor Finder or other sources. If you let us know what State or Country you're in, someone else here may just have a contact name for you. Meanwhile, the lab that does the DNA testing (in the States) is www.athenadiagnostics.com ~ Gretchen Quote Link to comment Share on other sites More sharing options...
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