Social Security Disability

[Guest guest]

Thanks for all the suggestions regarding SSD - I appreciate it. It turns out

they didn't even look at my neurologist records, including my EMG and I even

made copies and took it to them.

Hopefully the second time they will. It is frustrating and I'm not sure how

other people deal with the pain/fatigue from CMT but the last

thing I want to do when I'm in pain is to deal with all the hoops you're made to

jump through when you become disabled. I know you have to

and I will but it is incredibly frustrating.

I wore shorts with my AFOs for a Dr.'s appointment yesterday - it was the first

time I've ever gone out in public in shorts wearing my braces- I was always

self-consious, but you know it really wasn't that bad and I was comfortable

which is what matters.

I think it is so important to work on maintaining a positive attitude with CMT

(working on that)and just live life the best you can. Thanks again to everyone

for their help - I don't post that much but I always receive my best information

on here...thanks to Gretchen as well - your efforts mean a lot.