Food and Healthy Eating to Manage CMT

[Guest guest]

Hello everyone,

Having recently been diagnosed, I am interested in understanding any food

and supplement tips you might have picked up to manage CMT - and its impact

on our nerves.

Any advice or pointers appreciated. Today I added a nutritionist to my list

of specialists and people I am seeing to try to build a " whole body "

approach to management. If I learn anything new, I will keep you all

posted.

Thanks,

Donna from London

[Guest guest]

Donna,

A few weeks or so ago Dr. Greg (CMT doctor in Washington State)

suggested to us that CMT persons follow a 'heart healthy' diet

and 'stay slim'.

As for myself, I eat low fat, low cholesteral, and low carb. Don't

laugh, I do get enough to eat and it is all good stuff. I have found

that eating smaller portions is key and also I eat these 5 times a day.

I eat alot of vegetables, fruit, also chicken and fish. I do not eat

beef or pork, nor indulge in sugary foods, or anything that has been

commercially canned, 'junk foods', 'fast foods' or alcohol. My

Internist also suggested I include a Vitamin E supplement everyday,

which I have taken for about 8 or 9 years now.

In the past, I have sometimes become Potassium deficient - happened in

high school and more recently while hospitalized after back surgery. In

both cases I was given daily doses of prescription strength potassium.

Food, healthy eating and exercise go hand in hand for me in managing my

CMT.

Gretchen