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Elaine,

I've been doing the aquatics for about 3 1/2 years now. And yes, I was

diagnosed as a child. It wasn't until I turned 30 that I got

the " exercise bug " and then I did aerobics, yoga, power walking and

other stuff. Have been swimming and biking since childhood (even before

my diagnosis) and after. LOL just had this problem with " team sports " -

couldn't do it/keep up, even with volleyball, for example. Exercise on

my own - at my own pace - has been the best.

I don't even think of aquatics as " exercise " these days...it is so fun.

Yesterday I kicked the current up to 7 mph deciding I needed more of a

challenge. Well, I got the challenge, a bit too much, but it was interesting to

see how well I did. Now I have a new goal - to do my entire circuit with a 7 mph

current going the whole time. I figure I can take the next 6 months to reach my

goal (by Christmas time)

~ Gretchen

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  • 1 year later...
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Hi Amy same with us. I think my daughters plagio is getting worse. The

left side of the back of her head is shifitng and it's starting to

shift all her bones. Her ears are starting to shift and so is her

forehead. She won't be able to get her helmet till she's 5 months old.

I don't know what to do for her head any more either. I've tried

everything. Her therapist told us to keep her out of her bouncey seat

and swing as much as possible. So she spends like 75 percent of the day

on her tummy or her good side. I only have 2 exercises down pat, she

gave us a ton too. But is only going to be our 2nd visit to the

therapist. My daughter is in the 39 percentile for her motor skills.

SHe said if they didn't get better that it was going to delay her motor

skills and of course there not getting any better. So I'm not one to

give advice about your exercises.

Hope

>

> What kind of exercises do you all have to do with your babies? I was

> given a ton of different exercises to do with my daughter, but I'm

not

> even sure if they have anything to do with the plagio. Maybe they are

> more for her delayed motor skills. I am so confused and frustrated.

>

> - Amy, mom of Chloe (plagio, tort and delayed motor skills)

>

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