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Welcome Donna

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Hi Donna,

Welcome to the group. Montyman has a girlfriend! It's great. If you are

looking for answers, you have found a terrific and brilliant group of

parents. Looking forward to hearing about your son.

Charlyne

Mom to Zeb 9 DS/OCD ?

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  • 2 years later...

Hi Donna

I know this is a very scary time for you. I was diagnosed in 1996 with AIH and then thought to also have hep c.---Diagnois of c was incorrect but AIH certain. you need to get a book written by Dr Palmer. The title is Hepatitis Liver Disease-what you need to know. I have gone to 8 docs in the past eight years but have learned more about my disease from the info provided in this book. As with anything, knowledge is power especially when dealing with the medical community. Hang in there and learn all you can. If you would like to email me directly feel free to do so.

take good care

dps0322@...

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Welcome Donna… is so right. So

much information is in that book. And, I have to expand on where she

obtained her knowledge…groups like this have taught me more than any

doctor. They know the “facts” but don’t understand (for

the most part) the daily dynamics of this disease. Welcome.

Debby

[ ] Re:

welcome donna

Hi Donna

I know this is a very scary time for you. I was diagnosed in

1996 with AIH and then thought to also have hep c.---Diagnois of c was

incorrect but AIH certain. you need to get a book written by Dr

Palmer. The title is Hepatitis Liver Disease-what you need to know.

I have gone to 8 docs in the past eight years but have learned more about my

disease from the info provided in this book. As with anything, knowledge

is power especially when dealing with the medical community. Hang in there and

learn all you can. If you would like to email me directly feel free to do

so.

take good care

dps0322@...

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  • 9 months later...
Guest guest

Welcome to the group Donna. I'm Elaina from Upstate NY. 39 and just diagnosed

with CMT type 2. Glad you joined. I'm sure you'll like it here.

Elaina.

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Guest guest

Hello Donna,

Very Warm Welcome to You. My name is Joana, Brazilian, and I do

have CMT type 1, I live in London, and joined this year. I hope

you will find this group very helpful and fun to be here with us. I am so

pleased to be part of . Thanks for your introduction.

Feel free to email me when you want to. Best wishes to you and all your family.

Have a Great Day!

Joana

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Welcome Donna,

I know you will enjoy this group. Everyone is so upbeat and kind. You will

learn alot about CMT and that your not alone out there. I have had CMT for

many years and I have 3 grown sons, all which have CMT also. We have 9

grandchildren, with the oldest being 18 and he also has it. You will surely get

the support you need from this wonderful group. Again Welcome.

Kathy in Minnesota

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Guest guest

thank you elaina. nice to meet you. im glad i found out about this group as i

have been having a hard time finding suport other then my husband when it comes

to cmt. my family is not very suportive here.

thanks again.

Donna

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  • 6 months later...

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