pain, heaviness, jelly legs

[Guest guest]

DEAR FRIENDS,

I AM HERE THINKING ...AND I WOULD LIKE TO ASK YOU SOMETHING

REGARDING CMT PLEASE.

IF EVERYBODY HAS DOUBLE JOINTS? ANYWAY, I HAVE IT!!!

I WONDER IF ANY OF YOU HAVE ONE SIDE OF YOUR BODY WEAKER THAN

OTHER?

I FEEL MY RIGHT FOOT WEAKER , DROPPED TOO AND THIS IS WHAT REALLY BOTHER ME A

LOT.

WHEN I WALK I DO FEEL AFTER A WHILE MY FOOT REALLY FUNNY AND I AM

GETTING AFRAID OF CARRY ON WALKING. I HAD LAST YEAR SOMETHING THAT

MY DOCTOR CALLED BURSITIS ON MY BOTH HIPS.

I USED TO FEEL A EXCRUCIATE PAIN , LIKE NEEDLE PAIN IN MY BOTH HIPS.

I WAS TERRIFY BECAUSE NO ONE REALLY COULD DO ANYTHING FOR ME. ONLY PRESCRIBING

ME VERY HEAVY PAIN KILLERS. WHEN I HAD REALLY ENOUGH OF THIS, I THEN WENT TO

BRAZIL, TO FIND OUT MORE THERE.

NOTHING, A PART OF HAVING INFILTRATION (VERY PAINFUL)... FOR WHILE I DID FEEL

BETTER BUT AFTER 3 MONTHS I HAD ALL THOSE SYMPTOMS BACK AGAIN.

I DECIDED TO BE MY OWN DOCTOR, HAD A HELP OF A GOOD NUTRITIONIST,

DID A LOT OF RESEARCH ON LINE, AND STARTED TO TALKING DIFFERENT

SUPPLEMENTS.

SO, I STARTED TO DO HYDROTHERAPY, WENT TO THE GYM 3 TIMES A WEEK

AND ALSO VISIT THE CHIROPRACTOR ONCE EVERY 3 MONTHS!

I TOOK MALIC ACID, MAGNESIUM GLYCINATE, AND CALCIUM EAP2 FOR THIS

PAIN. GRADUALLY I START TO FEEL BETTER. OK, THE PAIN GOT MUCH

BETTER, BUT THIS FEELING OF JELLY LEGS STILL THE SAME. I WONDER IF

YOU KNOW WHAT I AM TALKING ABOUT IT.

MY CALFS MUSCLES ARE THE PROBLEM, I COULD NOT LONGER BE ON MY TIP

TOES, MY BODY BECAME VERY HEAVY, AND THAT IS WHAT I CAN NOT UNDERSTAND WHY?

WHY SO SUDDENLY I COULD NOT LIFT MY BODY? I WALK, THANKS GOD, BUT I

FEEL PAIN WHILE WALKING, SEEMS THAT SOMETHING IS OUT OF PLACE. MY

WALK FEELS LIKE A ELEPHANT WALKING,AND I AM JUST A TINY PERSON.

I AM 1.43 TALL...QUITE SMALL, AND WHY THIS FEELING OF HEAVINESS?

IS THIS PART OF THIS CONDITION?

AS I TOLD YOU BEFORE, I NEVER WANT TO KNOW MUCH ABOUT CMT BECAUSE OF

MY FEARS, ETC...I HAVE 2 BROTHERS IN BRAZIL THAT FEELS FINE. THEY

ARE YOUNGER THAN ME ANYWAY AND USE THEIR CARS TO GO ON THE CORNER.

I MEAN, THEY ARE VERY USED TO COMFORT,AND DO NOT WALK MUCH OVER

THERE. SO, I NEVER HEARD THEM COMPLAINING TO ME.

WHAT I FIND REALLY STRANGE IS THE FACT THAT MY MUM HAD CMT TOO AND SHE NEVER HAD

ANY KIND OF PAIN, NEVER COMPLAIN OF IT...SHE USED TO SAY ABOUT WEAKNESS AND LACK

OF BALANCE. THAT IS WHAT I DO REMEMBER!

MY BROTHERS ARE THE SAME, NEVER FEELS PAIN EITHER.

AND ME, I ALWAYS HAVE THIS AWFUL PAIN IN MY BODY, PARTICULARLY WHEN

I WAKE UP IN THE MORNING. IT IS LIKE IF I WOULD HAD RUN A MARATHON

THE NIGHT BEFORE.I TAKE CLONAZEPAM TO HELP ME CALM ME DOWN EVERY

MORNING, AND TRY TO ENJOY MY BREAKFAST AND WAIT UNTIL FEEL BETTER IN

MYSELF.

SORRY, BUT I WOULD LIKE TO KNOW IF ANY OF YOU FELL IN THE SAME WAY.

I AM SORRY FOR THE LONG EMAIL. I JUST FELT TO SHARE WITH YOU ALL MY THOUGHTS AND

FEELINGS.

THANK YOU!

I WISH YOU ALL A GREAT WEEK END

JOANA