Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hi , I hope is feeling better soon. I'm so glad you have some answers!! How long do they think it will take him to recover? Just for my own point of reference, what were 's symptoms?? Besides being tired, like is he eating? I have often wondered if PID kids would get mono more frequently than others. Sandi, 's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 , Take care of yourself, too!!! Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 , Take care of yourself, too!!! Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Dear , When my daughter got mono it seemed to take almost a year before she seemed to completely recover. Our experience that year was that the mono made her more susceptible to everything. (even after the initial disease). So it was important for us to take things slowly -- the tiredness also seems to take quite a while to get over. Of course, everyone is different and may bounce back quickly after 4 weeks. But I thought I'd give my 2 cents.... Martha (mom to Chrissy IgA deficiency etc...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 My daughter had Mono at 5. It was supposedly a pretty severe case. Her spleen was 2-3x it normal size. They told us not to let her ride or bike or play anyone kind of rough housing or bike riding because of the risk . Otherwise her activity was as tolerated. I would say in about 2-3 weeks she was back to her old self. I think that it does stay in the body forever with intermittent exacerbations (Epstein Barr virus) Little kids do better in bouncing back than teens or adults. We had sore throat, very enlarged glands, and night time snoring. Other wise she was just grumpy. BARBIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 My daughter had Mono at 5. It was supposedly a pretty severe case. Her spleen was 2-3x it normal size. They told us not to let her ride or bike or play anyone kind of rough housing or bike riding because of the risk . Otherwise her activity was as tolerated. I would say in about 2-3 weeks she was back to her old self. I think that it does stay in the body forever with intermittent exacerbations (Epstein Barr virus) Little kids do better in bouncing back than teens or adults. We had sore throat, very enlarged glands, and night time snoring. Other wise she was just grumpy. BARBIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 (((HUGS))) I've had mono before and it is NO fun! Sending get well wishes and prayers his way! pattie -- Mono Well, 's blood work is back and he has Mono. Of all things to have. Oh brother. Well, it could be worse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Sandi, I had mono for MANY. MANY months. I received a trach and X-country scholarship to college and got it the summer between my fresman and Sophmore year-- they had to keep checking my titers, etc...my liver and spleen were enlarged, I had to get gammaglobulin and before tehy would let me start training for track, I had to test negative/ my titers had to be down. It was months before that happened...luckily I only missed a few meets b/c I was sick all summer. Pattie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 I'm sorry . Sure hope feels better fast!! Diane, Mom to Kody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 I'm sorry . Sure hope feels better fast!! Diane, Mom to Kody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Dear , We chose to keep home that year as she was picking up everything and easily tired. You are the best judge of what to do as you can observe and moniter how he is doing. You are probably aware that there are many options available to you: home tutor, home school, or combination of going to school for certain classes and being home for ones that might be inappropriate. If you want to get a tutor provided by the school though (or think you might want this) I would notify them as soon as possible so that they can start looking now. All it takes is a note from 's doctor. If you do go the home tutoring route, the school can still do things so that can keep in touch with the other children. For example they can assign a healthy student to stop by, call or email once a week to inform what is going on in class.(My daughter had an email-pal who had to write to her in french what was going on--My daughter had to respond in french). Good luck. I hope recovers quickly. Martha (mom to Chrissy IgA deficiency etc.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Martha I really appreciate that. I actually just read that it could take up to a year for him to completely bounce back. Soooo since school starts in about 4 weeks, what are your thoughts about sending him to school? Or playing with other children until school starts for that matter? I am going to the doc myself because I think my little stinker gave it to me. Sorry I " replied " but I don't know how to delete as Ursula said to; please educate me. Re: Mono > Dear , > When my daughter got mono it seemed to take almost a year > before she seemed to completely recover. Our experience that year was that > the mono made her more susceptible to everything. (even after the initial > disease). So it was important for us to take things slowly -- the tiredness > also seems to take quite a while to get over. Of course, everyone is > different and may bounce back quickly after 4 weeks. But I thought > I'd give my 2 cents.... > > Martha (mom to Chrissy IgA deficiency etc...) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 I had mono at age 21 and was very sick for months. It took about a year for me to bounce back completely (not completely really but close) and I caught every illness for a long time after that. It was no fun at all!! I hope that is on the mend soon. Grace 8/97 (IgA def; Specific T-cell deficiency; pneumococcal antibody def; asthma; allergies) Caelan 8/99 (Iga def; specific t-cell def; pneumococcal antibody def; asthma; severe food allergy; Latex allergy; Bactrim, Biaxin, and Pencillin allergy; Eosinophilic espophagitis, on IVIG) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 I read that the petechiae on the soft palate can be one of the symptoms of mono. I didn't suspect that with Em today, as she is NOT low on energy. I hope feels better soon, and you too -- I imagine mono makes you feel completely exhausted. (mom to , age 3-1/2. Currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 hi Dayna, I am so sorry to hear your Kate and boys are sick. Since I didn't hear back from you, I figured things got too hectic for you...I can only imagine as I have just one, not 3 (although I am watching my 6 wk old granddaughter). Thanks again for directing me to the 504 OHI. Meeting with the VP at my daughter's high school tomorrow, have printed excerpts from the IDF " Guide for School Personnel " , talked to people on pedPID (thanks for referring me here too), and done lots of reading; hopefully I am prepared. The VP knows our requests- if they aren't willing to satisfy what best serves , I will request an immediate 504 be held by Monday. (I was also given the name of an attorney that won a case against this high school for another 504 OHI student). My thoughts and prayers are with your little ones (and you too). mom of , 15, CVID, migraines fladfam@... wrote: Odd - Kate has mono right now. Now they are thinking both the boys have it too. I had in high school, I am not PID and I was out of school for 8 weeks. There is another little girl in Kate's preschool class with it. It must really be going around. Dayna This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Dayna, Am thinking of you... hang in there. Quoting " fladfam@... " <fladfam@...>: > Odd - Kate has mono right now. Now they are thinking both the boys have it > too. I had in high school, I am not PID and I was out of school for 8 > weeks. There is another little girl in Kate's preschool class with it. It > must really be going around. > > Dayna > > > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the > sole responsibility of the poster and should not be taken as professional > advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: /messages > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Dayna, I'm sorry the kids are still sick. I miss seeing you on line. Don't forget to take some sanity moments for Mom (notice I said moments!) I know. For all those of you with sick kiddos, hang in there. In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 I had Mono last year. It was horrible! I couldn't keep my eyes open, my body ached and fevered...no appetite and my throat was on fire! Once I got diagnosed with it...I was sure that must have given it to me. I hadn't heard about yet...so I thought I'd figured out why he was so sick all the time. I took him into see if he had Mono in his system and he tested negative for it. Kind of strange because we are constantly together. He was fevering way before I got Mono. But, I wonder if there is some connection? The symptoms of are very similar to Mono and Chronic Fatigue Syndrome. It was really weird that I got Mono in my 30's. I don't recommend having Mono while caring for a child...very HARD! My Mother had to come and help out. Amy- Mom to -age 2- Taking Singulair --------------------------------- Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Hi Docs,I had a new patient yesterday, a 25 year old female, seemingly healthy and fit in every respect. She came to me for her extreme fatigue due to Mono, which she contracted in October 2010. She lifts weights 3x/week, plays basketball, and has a busy active life, but she has nowhere near the energy to get through her days like she used to a few years ago.Everything I have read suggests that her fatigue should be gone by now. Does anyone have experience with this?Also, any suggestions on diagnosis codes to bill adjustments to her insurance?Thanks,MattDr. Matt FreedmanChiropractic PhysicianPure Life Chiropractic, LLC315 West Broadway Suite 100Eugene, Oregon 97401(541) 343- 5633http://www.EugeneChiropractic.comhttp://www.EugeneHyperbaric.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Hi Matt, After an illness, recovery, in the face of a food sensitivity, could be compormised. First thing I would look at would be her casein content ..... casein morphs into caso-morphine, acting just like morphine: sluggish entity, sluggish brain, sluggish metabolism, no energy, am phlegm, sinus stuff, constipation, etc ...... Attached is the food survey I designed that uncovers the number of daily exposures to dairy - not the amount of dairy taken in , jus tthe number of daily exposures to those proteins. That enables all to see the potential effect of daily recontamination and continued exposure. See or guide your patient to www.notmilk.com for further info re caso-morphine. One avenue of investigation that can actually change the intenal response: get her to go through a 7 - 10 day avoidance challenge written up in the 'Mild does not do a body good' document and see what changes. This has made an enormous difference in my fibro/chronic fatigue cases. my 2 cent suggestion. Sunny Sunny Kierstyn, RN DC Fibromyalgia Care Center of Oregon 2677 Willakenzie Road, 7CEugene, Oregon, 97401541- 654-0850; Fx; 541- 654-0834www.drsunnykierstyn.com From: mochihchu@...Date: Thu, 8 Mar 2012 06:05:58 -0800Subject: Mono Hi Docs,I had a new patient yesterday, a 25 year old female, seemingly healthy and fit in every respect. She came to me for her extreme fatigue due to Mono, which she contracted in October 2010. She lifts weights 3x/week, plays basketball, and has a busy active life, but she has nowhere near the energy to get through her days like she used to a few years ago.Everything I have read suggests that her fatigue should be gone by now. Does anyone have experience with this?Also, any suggestions on diagnosis codes to bill adjustments to her insurance?Thanks,MattDr. Matt FreedmanChiropractic PhysicianPure Life Chiropractic, LLC315 West Broadway Suite 100Eugene, Oregon 97401(541) 343- 5633http://www.EugeneChiropractic.comhttp://www.EugeneHyperbaric.com 2 of 2 File(s) Forms Milk does not do a body good 12212.doc FORMS Food Survey.doc Quote Link to comment Share on other sites More sharing options...
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