Welcome Elaine/ with family help

[Guest guest]

Welcome Elaine. Like you I have not been diagnosed with CMT but

there is no doubt about it. My mother has it so my sisters and I

have been aware of the symptoms for years. My older sister has CMT

and I have had symptoms beginning before hers. Like you I had

trouble doing much walking and had to take it slow. It would wear me

out having to exert so much extra effort and caution in walking. I

finally broke down and got AFOs about a year and a half ago.

I thought, well that is the end to fun shoes, but when I went to get

them the man suggested that I wear both AFOs and regular shoes. I

had not thought of that. In my mind it was an either-or decision. I

switch off during the week. I love the AFOs for going on walks or

when I am going to be doing a lot of walking (like shopping). I also

get tired of them holding my foot/ankle in a set position all day -

not being able to stretch my feet and having my toes stick up when my

legs are crossed.

Exercise really helps. I worked with a physical therapist for a

while and when I am consistent with them I can tell a difference. It

is just hard to be consistent and stay motivated. Now that the sun

is out I hope to go for more walks.

has the right idea in getting the whole family involved in

getting things done around the house. My girls are out on their own

now, but they were involved in helping in every area around the

house.