Early onset

[Guest guest]

Re : your daughter---Chron's Disease comes with a whole host of accompanying

ailments, as your husband may tell you. Skin problems,eye problems,pain

outside the GI tract,etc......

[Guest guest]

In a message dated 6/20/99 1:01:36 AM Eastern Daylight Time,

tyree.pines@... writes:

<< Maybe HE

ought to someday be tested! After all, he also suffers from fatigue and

occasional problems with his legs--problems he attributes to post-polio

syndrome. Hmmm.

>>

It's rare to find a child with a gradual onset without one of the parents

having it, too.

[Guest guest]

All types of CMT can occur before age 5. Age is no restriction to onset

of CMT.

[Guest guest]

Hi portslake:

It can be the most common form type 1A, a number of the type 4s (typically

recessive versions) or Dejenne-Sottas disease, what used to be called type 3,

but is now thought by some to be just a severe version of 1A.

Hope this helps!

Cheers

Sally

[Guest guest]

My twin sister and my niece both Type 1 from infancy. I was hit at age 50.

Elaine

[Guest guest]

Hi there,

I have CMT type 1A and mum knew I had it when I was born just by looking at my

feet. I can't remember when I was diagnosed, early though. I have two children

with it, my daughter was diagnosed at about 2 yrs and my son was diagnosed at 3.

We all have foot drop, and bad balance and I have a very mild case of scoliosis.

Megs